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Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS) |
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#1 | ||
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Junior Member
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Hello everyone.i have a question,I have had crps in my right foot,ankle and leg sence 6/26/2006.for the past 2 to 3 months I have Been falling a lot.its like when I start to fall my leg doesn't work and I can't catch myself.do you all think it is the rsd? My PC doc has me going to pt to build some Moselle.i don't no what to do or think about it. I think I am getting a little depressed because there is a lot of things I want to do but can't .i just turned 51.i really think I need to talk to someone that can help me with the feelings I am having.i have to use my cane all the time now,but I am imbaresed.i no I shouldn't ,but it is somthing I am having a hard time working through.well thanks for listening.i guess i just needed to vent.thank you for being there for me.i love you all.
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"Thanks for this!" says: | RSD ME (01-25-2014) |
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#2 | |||
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Member
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Hi Jeff. Sorry you are having a hard time right now. I think loss of balance can be common in RSD/CRPS. I know I have had increased issues with balance. I have a question, do you take any medications that could be causing your balance issues?
Talking to someone is very beneficial...keeping things inside is not. It helps to talk and work through the things you need to work through. I had to finally stop working at age 46, that was very hard. I had to give up my hobbies and activities. I worked through it with a therapist. You certainly should not be embarrassed about using a cane. I am 47 and have been using a rollator (walker with wheels) for a while now. You should not be embarrassed for using something that will help you get around. Who cares what other people think?? They are not the ones suffering and/or struggling. Good luck to you! Nanc ![]() |
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"Thanks for this!" says: | RSD ME (01-25-2014) |
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#3 | ||
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Hi Jeff - I am affcted in my right foot, ankle, leg too. I have fallen at least 4 times in 2 years. I have lost muscle mass in my calf despite a ton of physical therapy and I know what it feels like to have your leg give out. I also completely understand about feeling self concious - I dread being out in public and running into someone who hasn't seen me since all this happened and you get that "what the heck happened to you?" Response. Be well ~Lottie
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1999 Chronic spine pain related to Degenerative Disc Disease, Sept 2001. C6 / C7 discectomy & fusion. Jan. 2005 L5/S1 discectomy and Artificial Disc Replacement. July 2011 removal of broken . Artificial Disc Replacement. Woke up in recovery room with RSD Monster.: . Aug 2011 Stabilization of spine at L3/L4/L5. October 2014 Rheumatoid Arthritis. |
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"Thanks for this!" says: | RSD ME (01-25-2014) |
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#4 | |||
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Junior Member
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Jeff, what set off the CRPS?
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#5 | ||
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Senior Member
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Hi Jeff,
I'm sorry you've been having such a rough time. I've had rsd for almost three years after breaking my right wrist after a slip on the ice. I just started using a walker and cane about a year ago because of the rsd spread and fibromyalgia I now have. I also get dizzy spells and loss of balance sometimes when going up and down the stairs. I only use them at home because I don't go out much, but if I need to use them out I will. I know it's hard to deal with at our ages, I am 48 and never thought I'd need one so soon, but it helps so I am trying to accept it. You shouldn't be embarrassed. RSD can be very debilitating and it's better to use walking devices then to fall. I hope you sense of balance gets better and that you maybe someday can go without these walking devices. In the meantime, my prayers are with you that you get better soon. Sincerely, Renee.
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RSD ME . |
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#6 | ||
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Senior Member
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Hey Jeff
![]() I've got CRPS in my left leg, starting in my knee after an operation. I lost a lot of muscle in my left leg, particularly my quad ![]() I had physio for about a year, and the last six months or so were me doing my own thing, keeping on working at it. I'm out if the wheelchair and off the crutches for now. My leg gives way by rarely now, and I can walk almost normally for a short distance. It's a big improvement. You can get some control back, but it does take time and effort. Do the exercises as often as you can, but not so much that you exacerbate your symptoms. It's a delicate balance, but you find a way through. Never ever give up on it. Good luck, and take care of yourself! Bram.
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CRPS started in left knee after op in Aug. 2011 Spread to entire left leg and foot, left arm, right foot. Coeliac since 2007. Patella femoral arthritis both knees. Keep smiling! . |
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#7 | ||
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Junior Member
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Thank you all for being there for me.it makes me feel better when I'm not alone.i don't mean I'm glad you all hurt.i mean only someone with rsd/crps could no what we go through.i love yo all,and thank you for all of your support.
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"Thanks for this!" says: | Brambledog (01-27-2014), Lottie (01-27-2014) |
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#8 | |||
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Member
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I have bad balance but it's because of where my pain is. Since I now have it in my right foot and leg I put all my weight on my left foot/leg when standing still. Sometimes when i'm walking I trip over my good foot. It happens when I'm grocery shopping a lot. What can I do....I have more strength in my left side. I bump into door frames and door knobs all the time too.....when i'm walking around home. Im always a little off.
I'm falling apart at the seems ![]() Heather
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--------------------------------------------------- RSD since 8/2005 Originally in left and right foot Spread in 2006 and Jan 2014 Both legs, arms. Chronic pain going back to 1992 . |
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#9 | ||
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Junior Member
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Hi there
I am in total sympathy with you as I have post chemo (motor sensory) PN which affected my balance for a while. People suggested a wheel chair and a walker but I told myself that I would become too lazy if I did. I opted for a walking stick and have wobbled my way about - walls and door frames have been great. In the early stage I had to go to the oncologist for a review and was in a lift full of people. I jokingly warned them that any groping on my behalf on the way out was purely unintentional. Luckily they all laughed! But at that time and still occasionally now, I have to have three physical points of contact to avoid falling over. I have been to the shopping centres and tried cheating using the shopping trolley like a walker. It was great but I have still fallen onto my knees using them. One time a man helped me up and asked if I was alright. I was so thankful and embarrassed and I jokingly tried to assure him it happened quite often. He smiled back and said I'll have to stop drinking all that whiskey. All I could do was laugh but I felt like crying on the inside. Stupid PN I said to myself. All I can do is remind myself of the old chinese saying and pat myself on the back that I didn't let this condition keep me down! Good luck and best wishes to you all Liz ![]() |
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#10 | ||
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Magnate
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I am sorry for your struggles. I understand it is hard. Have you talked to your doctor about the loss of balance and what possible things you can do in terms of lets say pool therapy that can help you? I know it is hard to not be able to do things you want to or used to be able to. I feel the same way. I am working on this myself on finding some new things I can do that can add some happiness in my life. Someone mentioned therapy and have you thought of that? I know it wont take the pain and limitations off but it can help you feel less alone and cope with the condition. Hang in there
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"Thanks for this!" says: | suz66 (02-03-2014) |
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