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Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS) |
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#1 | |||
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Hey guys!
Well in all my years with RSD/CRPS, this is the first time that I spent most of the day in bed. I am usually up and in the recliner majority of the day because laying down is not that comfortable, but not today. It hurts to sit, even in the recliner with my legs up. I fear that my RSD is spreading from my left leg over to the right one. This pain is something else. I know this weather doesn't help...it is freezing and snowing outside. My incisions were all looking so much better and drying up. Now the front one is all red, itching again and hurting. Man, I am so over this...all of it! It has definitely been a rough road lately. Thanks for listening... Nanc ![]() |
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"Thanks for this!" says: | moosey2me (02-04-2014) |
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#2 | |||
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Hey Nanc! I'm so with you right now. My everything is raging! I feel like my body is a torture chamber. I can barely type, or anything else so I'll keep it short. Just a quick note to say... you're not alone hon, and I so get it. I hope you feel better soon.
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CRPS II Full Body via L5-S1 Discectomy Surgery in 2004 Symptoms started upon waking from surgery in right foot/leg, mirrored to left foot/leg and then EVERYWHERE else. Vision without action is a daydream. Action without vision is a nightmare. Japanese proverb, |
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#3 | |||
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Hey Vrae! Sorry you are having a hard time too! This really sucks...and so unfair! Hope you feel better soon too!
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#4 | |||
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Nanc, Vrae & Bram.. Ditto here!! Grueling.. hoping it lightens up soon for all of us.
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"Thanks for this!" says: |
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#5 | |||
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Member
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Nanc, Vrae, Bram, Zoo,
My heart goes out to ALL of you!! I spent 3 yrs. in Michigan & the cold was so painful & that was before the CRPS monster got me. Cold water or just being outside with a bare arm below 60 degrees makes it turn purple. Wishing some warmer temps. and better times for all of you. I know what it feels like when you just want to be over ALL this & there is no "over it". Hang in there & I'll send you some virtual sunshine ![]() ![]()
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RSD/CRPS and contracture of left hand and arm after surgery for broken wrist. |
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#6 | ||
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Senior Member
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Oh no
![]() Nanc, Vrae and Zook and anyone else coping with a flare at the moment: hang in there. It will ease off eventually. I have to keep telling myself that ![]() Oh it's just so hard to find any positive thinking when you are just pain. When even being still hurts, but moving about hurts more. Rock and hard place, over and over again. Damn tooting pile of crud. Come on you researchers and drug companies and doctors - find a blinkin cure/effective treatment for us poor fleckers out here living with this thing every single day of our lives... We deserve a break! I have a challenge for us - to find a smile today, and share it with the rest of us ![]() Take care of yourselves everyone, and do the R&R thing ![]() Bram.
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CRPS started in left knee after op in Aug. 2011 Spread to entire left leg and foot, left arm, right foot. Coeliac since 2007. Patella femoral arthritis both knees. Keep smiling! . |
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