Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 02-07-2014, 01:09 AM #21
AndreadePalma AndreadePalma is offline
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AndreadePalma AndreadePalma is offline
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Location: Minneapolis, MN USA
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Quote:
Originally Posted by Lottie View Post
Hi murgir - sounds like a very reasonable plan. The PM doc deserves a second chance. Yes, the researching is a lot of work . We are here to help! And there is no better investment of your energy than in improving your health and well being. Let us know how it goes ~lottie
So true! And I suspect that finding compassionate and open physicians and investing in their education with our own research might have a lasting payoff for each of us personally and all who follow.
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Old 02-07-2014, 01:40 AM #22
AndreadePalma AndreadePalma is offline
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AndreadePalma AndreadePalma is offline
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I think you're in a great situation being as remote as you are and finding concerned and devoted (-sounding) docs.

I thought I had a sprain/strain that wouldn't heal and I was self treating in my hardheaded way until I couldn't function or think as it worsened and started taking over my life. The first orthopedic doc I saw heard my story, looked at the xray and said he thought I had mild arthritis in my left thumb. and offered me a shot of cortisone. He was pretty irritated when I emotionally declined that offer and then continued to surmise the silliest and most ridiculous explanations for my symptoms. I honestly came away thinking I could have gotten more insight at the bar talking to an earnest and well-meaning drunk.

But after that I was lucky enough (of a fashion) that the next doctor suspected CRPS. I went to see my awesome internal med doc and she also suspected CRPS. They both recommended the same rehab/pm doc that I saw earlier this week and liked (who confirmed the dx). I remember thinking how lucky I was that in my midwest location I didn't run into more podunk docs just phonin' in their paperwork. Whew, I was lucky. I remember the horror and rage after the "mild arthritis" incident and I've heard enough in my short time here from many of you to REALLY feel lucky and I think that you, murgir, are lucky like me.
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