[Hana]

http://www.rsdrx.com/CRPSABSTRACT.htm The abstract articles conclusions are great.

I have a terrible time talking about RSD/CRPS, (horrible never wanted it) Most of the surgeries and treatments that I've had are documented in these abstracts…ver 30 years worth , and that wherever you see " what NOT to do" is what I had done ;some of these studies reference me. The conclusions made here because of those treatments are also spot on for me. I was one of the extreme cases, and at the time, it wasn't just lack of information and knowledge that made it difficult to know what to do , but also pain and real fear by all that I would lose my arms. The rest of my life had to stop every time I had a bout or flare. Treatment and surgeries were immediate and intense for years.. and no matter what, it was hard to get through. (doesn't this seem totally backwards?) I had weeks on end in the hospital and more at home to heal before i was back to school or career... Life just didn't seem to want to wait for me to catch up!! Also, PAIN wore me out!!! I can see now that I pushed it too hard to make it back. I didn't understand to go away from stress, take it easy,as this CRPS requires lots of gentle nature and loving compassion for the offending pain. Pain is "what it is". If you've ever had it, you know, and many of you describe it so eloquently... that I feel little need to add adjectives that for me now fall short of adequate!

The greatest hurdle for me is rest. For exercise, I walk a short way each day(with my camera) , and do meditation and yoga. I just joined an Adaptive Yoga class that is geared for anyone with disability and it is doing wonders while PT has failed every time. Whatever body part got the movement in PT had miserable reactions. Swelling burning ,deep pain. If it was over a surgical site it felt like it just happened.

Now I have other conditions probably related to CRPS which I will post in a new thread to any long term sufferers,or sufferers. I do believe these conditions related although no docs speak to me of it.

Hang in there everybody!! I am so sorry you have to suffer this. What kept me going all those years was the hope that what I was going through might some day help someone else.. and now I hope, inadvertently. Further, here you all are helping me! Thanks!

Peaceful evening all,

Hana