NeuroTalk Support Groups

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NeuroTalk Support Groups (https://www.neurotalk.org/)

- Reflex Sympathetic Dystrophy (RSD and CRPS) (https://www.neurotalk.org/reflex-sympathetic-dystrophy-rsd-and-crps-/)

- - Confused (https://www.neurotalk.org/reflex-sympathetic-dystrophy-rsd-and-crps-/200645-confused.html)

moosey2me

02-07-2014 11:24 PM

Quote:

Originally Posted by heatherg23 (Post 1049066)

I wouldn't go by what a primary doctor said. They aren't pain doctor's and they don't see that condition on a regular basis.

I wouldn't worry about him just find a pain doctor if u can. The pcp should have suggested it right away. In my experience pcp's hate the word PAIN. Usually when I say that word they say "okay find a pain doctor". Like i'm a lepper.

You are right..good advice..:winky:

lonewolf

02-08-2014 01:33 AM

Thanks for all your comments It has helped to know I'm not alone.
These past 18 months have been up & down every time I turn around.
I'm not worrying anymore about what my pcp thinks about my CRPS
my pain Dr. says I have CRPS & she is my Dr. for it, not my pcp. Only
thing he has to do is my blood pressure/high heart rate. I am finding
alot of info that is helping me from all you. :Thanx:

lothgar

02-10-2014 12:56 PM

Look up pain management Doc's the has experience with CRPS. I have had some crappy doc's and had to keep searching until I found they guy I see now. If you can, do not get another EMG, these tests can worsen CRPS in some patients. Talk to your doc about blood pressure meds if needed, crps causes restrictions of many blood vessels and leads to increased blood pressure, during a flare up mine hit 170/140. I wish you the best.

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