Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


advertisement
Reply
 
Thread Tools Display Modes
Old 02-12-2014, 10:51 PM #1
Vrae's Avatar
Vrae Vrae is offline
Member
 
Join Date: Apr 2011
Location: Denver
Posts: 703
10 yr Member
Vrae Vrae is offline
Member
Vrae's Avatar
 
Join Date: Apr 2011
Location: Denver
Posts: 703
10 yr Member
Exclamation ‘You work until you die:’ Inside America’s fragmented safety net for the disabled

http://www.washingtonpost.com/blogs/...-the-disabled/

Well, this was educational and frightening. I had no idea that states have a MEDICAL ASSISTANCE ESTATE RECOVERY PROGRAM... omg! Really?!

" The honest reality is that Medicaid isn’t just health insurance. For many folks, it’s really a health-care loan. In many states, there is estate recovery that comes attached to Medicaid, particularly in long-term care services. It’s a piece that’s being whittled down regarding health-care reform, but it’s there."

Much more in this article that I found interesting and thought perhaps you all would too. We've really got to do something about this mess we call healthcare.
__________________
CRPS II Full Body via L5-S1 Discectomy Surgery in 2004
Symptoms started upon waking from surgery in right foot/leg, mirrored to left foot/leg and then EVERYWHERE else.

Vision without action is a daydream. Action without vision is a nightmare. Japanese proverb,
Vrae is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
birchlake (02-15-2014), Jimking (02-21-2014), moosey2me (02-13-2014), zookester (02-13-2014)

advertisement
Old 02-14-2014, 01:38 PM #2
AZ-Di's Avatar
AZ-Di AZ-Di is offline
Member
 
Join Date: Mar 2013
Location: Arizona
Posts: 453
10 yr Member
AZ-Di AZ-Di is offline
Member
AZ-Di's Avatar
 
Join Date: Mar 2013
Location: Arizona
Posts: 453
10 yr Member
Default

Thanks for this Vrae. I'm going to have to read it a couple more times.
__________________
RSD/CRPS and contracture of left hand and arm after surgery for broken wrist.
AZ-Di is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
moosey2me (02-17-2014), Vrae (02-14-2014)
Old 02-15-2014, 09:18 AM #3
Brambledog Brambledog is offline
Senior Member
 
Join Date: Jul 2012
Location: England
Posts: 1,122
10 yr Member
Brambledog Brambledog is offline
Senior Member
 
Join Date: Jul 2012
Location: England
Posts: 1,122
10 yr Member
Default

Just finished reading the whole thing through....I had absolutely no idea how complicated your health system is. The estate claim thing is a bit scary - if the state Medicaid has a claim on your estate, they should be upfront about that from the word go. Scary when you think how many families must be losing a loved one and then realising there's nothing left to inherit because Medicaid came along and nabbed the lot. Yikes.

I definitely like the emphasis being on employment for the disabled, but of course it always depends which type of disabled you are. Of you're in a wheelchair, that's one set of challenges, but something a lot of people are familiar with and wouldn't be too surprised about. Now let's all think about employment for someone with serious CRPS. Now there aren't just the physical mobility issues, but the need for flexibility with attendance and hours, and what if you have a bad flare and can't go in? What if your foot just balloons up suddenly and you have to elevate it and burst into tears from the intense pain? Your coworkers who are happy to have a wider aisle in the office, or a lift installed, are suddenly unhappy because you've had to have three days off this week, and now you're in you are struggling to concentrate today and have to leave early. How many employers would deal with that for an extended period of time? One good week where you're in every day and then a bad one where you attend maybe 25% of your normal hours is not an employee a lot of firms could support long term.

It's a very difficult subject all round. It's not easy here in the UK, but I definitely think you guys in the US have a more complicated and cost-based system...

Bram.
__________________
CRPS started in left knee after op in Aug. 2011
Spread to entire left leg and foot, left arm, right foot.

Coeliac since 2007.
Patella femoral arthritis both knees.

Keep smiling!
.
Brambledog is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
birchlake (02-15-2014), moosey2me (02-17-2014), Vrae (02-15-2014)
Old 02-17-2014, 01:04 AM #4
moosey2me's Avatar
moosey2me moosey2me is offline
Member
 
Join Date: Nov 2013
Location: Gloversville NY
Posts: 252
10 yr Member
moosey2me moosey2me is offline
Member
moosey2me's Avatar
 
Join Date: Nov 2013
Location: Gloversville NY
Posts: 252
10 yr Member
Default

I am wondering what will happen with my uncles place..Which was my grandmothers..Which is left to me...Ha Ha I really wonder since he has been disabled for years..now it sounds like they get it?????????
moosey2me is offline   Reply With QuoteReply With Quote
Old 02-20-2014, 12:26 AM #5
finz finz is offline
Senior Member
 
Join Date: Feb 2007
Posts: 1,804
15 yr Member
finz finz is offline
Senior Member
 
Join Date: Feb 2007
Posts: 1,804
15 yr Member
Default

Quote:
Originally Posted by moosey2me View Post
I am wondering what will happen with my uncles place..Which was my grandmothers..Which is left to me...Ha Ha I really wonder since he has been disabled for years..now it sounds like they get it?????????

Whose name is the house in ? If your grandmother left it to you and you just let him live there, it's your's. If your uncle inherited it from his mother and he left it to you then you need to check if their is a Medicaid lien against it IF he was on Medicaid. Many people are disabled and not on Medicaid.
__________________

.


Gee, this looks like a great place to sit and have a picnic with my yummy bone !
finz is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
moosey2me (02-23-2014)
Old 02-20-2014, 12:47 AM #6
finz finz is offline
Senior Member
 
Join Date: Feb 2007
Posts: 1,804
15 yr Member
finz finz is offline
Senior Member
 
Join Date: Feb 2007
Posts: 1,804
15 yr Member
Default

Quote:
Originally Posted by Brambledog View Post
The estate claim thing is a bit scary - if the state Medicaid has a claim on your estate, they should be upfront about that from the word go. Scary when you think how many families must be losing a loved one and then realising there's nothing left to inherit because Medicaid came along and nabbed the lot.

If Medicaid has a claim on the estate, the person who used Medicaid services and their spouse has been made aware of that. In some families they might choose not to share that info with the rest of the family.

Medicaid benefits were designed for the very needy. If the patient has significant assets, like a home, Medicaid allows them to get the needed care without having to sell their home to pay for care while they are still living in the home.

There are some protections in place to protect some assets for the spouse of the patient. My mom will probably need to go to a nursing home soon. That care averages $100,000 a year. My parents can pay for that for a short time, but certainly not for 20 years. When her free cash runs out, she will transfer to Medicaid to pay for the nursing home. Medicaid will not place a lien on the house, forcing my dad out, because the total value of the house is less than $800,000. That amount buys a pretty nice house around here. He has a friend from his caregivers support group who is dealing with a Medicaid lien on his house for his deceased wife's nursing home care because their house is worth $1.5 million. A spouse is also allowed to keep (in my state) $114,000 in cash of the shared assets.
__________________

.


Gee, this looks like a great place to sit and have a picnic with my yummy bone !
finz is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
moosey2me (02-23-2014)
Reply


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
Survey: Medicare doesn't work as well for younger disabled as it does for seniors indigogo Parkinson's Disease 0 08-12-2010 02:14 PM
Dehumanizing the disabled in America lou_lou Social Chat 11 05-09-2007 09:41 AM


All times are GMT -5. The time now is 08:11 PM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.