Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 02-13-2014, 12:34 PM #1
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Just when you think your friend is going to be a friend.Yesterday I got a text from my old friend Saying that things are good and a lot going on.I asked her what?she said could not be any happier.Getting ready for some updates in her house.I said that's great.Really happy for you.Then she says ,going to have a painting party,can you come help.?I said NO.I can not do that.She goes oh that's right you had surgery and you are not working..I told her no not yet..I told you the other day.Then not another word..I know now that she only thinks of her-self for sure..I am so hurt by this..This means she never listened to anything I told her 4 days ago...I really do not understand people...I do not want her to feel sorry for me,but act like you care.I noticed no one listens to us about RSD only our mates..I sure am greatful for my HUSBAND..
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Old 02-13-2014, 01:10 PM #2
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I can totally relate to that emotion moosey! I have lost so many so-called friends in the last couple of years. I can't keep up and am in so much friggin' pain, they don't want to be bothered. I have one local friend who I don't see much, but we text. She will text me to see how I am doing, etc. I know she is busy between work, husband and active children. At least she checks in. Others have said that they will come see me...that never happens. My really good friends live hours away, so it is mostly electronic communications. But they check in often.

I saw some family members over this past weekend (they are all a few hours away) at my niece's baby shower. They are oblivious to what is going with me...they will never get it or understand it because they choose not to. I don't know what is wrong with people either. Most seem to be too focused on themselves therefore they have no room in their little selfish brains to even listen or try to understand. Can you tell I am a little irritated about this exact issue at the moment?

I sure am grateful for my husband too....SO GRATEFUL!!!

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Old 02-13-2014, 04:30 PM #3
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Nanc, I don't need to write a word. You have written exactly what I have thought so many times.... It's so sad. I think I still have much to give a friend, yet because of my situation and inability to just drop everything and go out, or stand in a busy pub for three hours...I am without friends so often.

I'm still me. Why do they do it? Why can't they be arsed to come to see me or to suggest lunch instead of a pub crawl, or invite me round for a drink at their house? Why do they have to cut me out? I used to be part of a group of half a dozen, and went out once or twice a month, nothing mad, but I hear nothing now, only one of them even texts every now and then to say hi.

I don't want to talk about my CRPS all the time, or cry and complain about my life. I want to talk about other things, have a laugh, catch up on news.

Oh dear. Anyone would think you've touched a nerve here!!

I wish I had a group like this that I could actually meet with. That would be good

Hang in there you lovely folk. I still know you're fab and amazing.

Bram
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CRPS started in left knee after op in Aug. 2011
Spread to entire left leg and foot, left arm, right foot.

Coeliac since 2007.
Patella femoral arthritis both knees.

Keep smiling!
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Old 02-14-2014, 03:34 PM #4
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This rsd is nothing we asked for,but friends we do..The worst is my oldest son.He could care..My youngest is great..He calls me 3 times a week..I also have a good brother and sister in-law.I see them usually 3 times a month,plus they call.But its really painful when your son or best friend does not care..I would love to just say hi..I know I have reached out to them enough.I am backing off,because it only makes my pain level go up...I hope some day they look back and say I wish........But you know we still need to pray for them.i am so greatful we can talk here and vent..Thank you all so much.hang in there..god Bless you all.
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