:cool:Go Bram & Vrae lol I have to agree dealing with this demon we all share it's not easy & it does NOT help when we are put down looked down upon or belittled because we are suffering & want some kind of relief.. I would bet those same people who place judgment on us would not last 24 hours in our bodies living w/what we do every second of every day! So SCREW EM!! I have had that done to me as I'm sure we all have (even filed complaint against a doctor & he is not allowed near me to this day) & as much as I tried to stay off pain meds especially the stronger ones it has gotten to the point that I could not keep putting myself thru hell everyday & had no choice but to get some relief but I am not ashamed I am proud to get thru every day w/out going insane :D We should all be proud of ourselves for enduring the hell we do on a daily basis & still get up the next day & do it all over again :cool:
Wishing u all peace love & happiness

Good reply Heidi! I would clap if I could but these days I look like a spaz & it hurts. Imagine a letter c against a small letter l. :D making fun of myself!

Authority
 

Bram, I have an authority from my PM, it's on file now with my GP and she and other practitioners can prescribe me the required dose when required. I got this after one of her knuckle head colleagues told me I was a drug addict because I was seeing him in her absence and required a script for patches. As it later turned out, my back was broken again and I was in severe pain, his comments upset me greatly, and I never want to be in that situation again. I hope you are managing to find a balance and as others have said you need to get onto a specialist. What meds you have will soon run out and you don't want to be in a situation where you are battling pain and withdrawal symptoms. Please don't delay, I'm serious, if you have used it regularly for 3 days or more, the body becomes dependent and stopping cold hurts it.:hug:

Kim I'm on that page with u girl. If no better night tonight then I'm demanding to see a specialist and get spine checked over. Something's not right, I mean why has the pain built up majorly in my left leg all the way through it? Still in my SI joint but not as bad as it was...but leg feels like someone is pulling the major nerve out through the top, bit by bit.

So tired. Soooooo tired. Latest lot of oramorph might as well have been water. Dreading tonight... I know I've asked it before, but why us? Hmm? Why not the bad people out there?! Please anyone who knows me, don't answer this in a spiritual way lol...it's just a rhetorical question. There is no reason, it's just the way things are. It would be amusing if it weren't so darned CRUEL.

You are all fab and amazing and you are keepin me going and even raising the odd tired smile. My husband thinks that's pretty immense given the circumstances. I think it is too. Hugs all round :hug: literally can't keep eyes open...

Bram :grouphug:

Bram

I hope that a specialist can figure out what is going on quickly. You have already been through far too much. Keep us posted when you are feeling up to it.

In the meantime, I am thinking of you.

:hug:

Kim

Bram, so sorry you are still having such a rough time. :hug: I agree that you really need to see a specialist, this has gone on way too long!! Take care and keep us posted.

Nanc
:hug:

Just an update...

Stil on the oramorph every four hours. If I forget the pain is terrible. For the first time, I didn't wake at 5.45am and slept through until 9am. Great! Problem was that I woke in a LOT of pain and did indeed do a very accurate impression of a a desperate druggie nutter as I trembled my way towards getting it into my system fast. Thank goodness it works fairly quickly...

I'm still getting up every hour or so and ambling round. Doing some gentle pelvic rotations and stretches to get movement back there. My leg muscles on my left keg are very tight and painful still, doing some careful stretches there, but I sometimes get very confused trying to work out whether these symptoms are CRPS or not. Ora combination. Very odd.

I see a doc on weds for another exam and to check whether dx the same (SI joint) or maybe different (disc?). I'll find out if they will send me for a scan or something to check. They can't just leave me on the meds forever that's for sure. Not unless they're sure it is 'judt' the CRPS worsened as result of the back pain.

Still v tired and groggy at times, and am still grim about missing so much work and letting my pupils down at an important time for them. The harsh reality of being self-employed - if you are sick, there's no help, you just don't earn until you can work again.

How are you folk out there doings. The boards seem quiet, particularlt many of you that I know are having a tough time of it. I hope you are ok and things aren't getting any worse. You are my rocks you know ;)

Thinking of you all. Gentle hugs to everyone that wants or needs one.

Bram.

Good to see your update Bram! Been worried about you and glad you have another Doc appt. This pain seems like it could be something different than CRPS and you are right to get it checked out.
I'm doing OK. Had a bad experience with an ignorant and arrogant Nurse Practitioner the other day. But my husband has convinced me to let my anger go, so you folks don't get to hear me rant now!!

Hi Bram,

I have very similar pain. I have arthritis and bursitis now in my hips now and have a crushed spine from L2-S1. When the S1 is horrible my hips, buttocks and inner thighs just seize up.
I'm unable to have that much fusion to repair it, and am hugely blessed that my legs will move at all. What I have found to help like Lit Love is epsom salts, and also I see an osteopath for cranio-sacral alignment, a massage when I can afford it, lidoderm and flector patches(anti-inflammatory patch) because I can't tolerate more steroids. Umm, and besides medicines exercise that is gentle enough not to hurt. Heat feels good, magnesium supplement helps with cramping and also is a gentle relaxant for nerves..either cal-mag or magnesium carbonate.
I am trying yoga and learning to breathe into the pain... because when we're tense blood flow for healing goes elsewhere...
Aargh. So so sorry you are suffering this and you get relief fast!

Prayers for you today Bram, Feel better! :hug:

Hana

Bram,

I actually set my alarm for 6:00 a.m. Before going to bed I put my meds and a bottle of water on my nightstand. If I waited until i woke up to start the pain meds; pain would be out of sight. I try to get to the pain before it is out of control. I can understand how you must have felt when you woke up waiting for the meds to kick in. OUCH !!!

Hope you soon get your pain under control.



Gerry