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Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS) |
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02-11-2009, 03:22 PM | #11 | ||
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I am curious about Radiofrequency nerve ablation for two reasons: 1. my husband is a paraplegic and his doctor recomended we research it for his referred pain and spasms. [edited per NT Guidelines regarding research] |
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03-29-2009, 08:08 PM | #12 | ||
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I had the nerve ablation done almost a year ago, my doctor made it clear that for the first six weeks i would be in more pain, i honestly didnt think that i could have worse pain but sure enough for about 6 weeks it was the worst i ever felt. I did hower get some relief from the nerve ablation. But now am having the same facet pain and pain down my leg again, even after several shots of cortisone directly in the facet joint. My problem is that my doctor is offering to do this nerve ablation again, and i am scared i have to work, i have children, and why is i keep getting the same treatment even after almost 2 years, is there not any other treatments. And i asked my doctor if i should get another mri since he is going by one that is 2 years old, he said no not needed. Help should i get a second opinion, or get this second ablation to see if it helps longer. Tired of being in pain
nurseheather |
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03-30-2009, 02:19 PM | #13 | |||
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I would definitely get a 2nd opinion!! Nerve ablations do not help anything and there are other treatments available depending on what you can manage. There is lidocaine infusion, hbot to name 2 that's in my head. :-) Insurance doesn't pay for hbot unless it's for an "approved" condition. From what I've heard about the infusions, it depends on the insurance company. A couple of people who posted about it said they were denied then appealed and the insurance did pay for it. Others had their's pay for it with no problem.
Going by an MRI that is not 2 years old is NOT a good thing! Who knows what changes may or may not have taken place. Find another doctor because this one seems, at least to me, is not going to help you at all. Hugs, Karen
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Laugh until you cry, don't cry until you laugh. Living, loving and laughing with RSD for 14 years and counting. |
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03-15-2012, 08:23 PM | #14 | ||
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03-16-2012, 09:22 PM | #15 | ||
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Hi Lisa,
I had to reply to your saying "From what I understand, RSD is not hereditary." Unfortunately, RSD is hereditary BUT just like any other disease we all have the certain RSD gene in our body but it may or may not be triggered by a nerve damage to get the outcome of RSD. I do not have anyone in my entire family with RSD...aren't I the lucky one to get it lol!! I guess with genes it is just the luck of the draw. Let's hope our sons NEVER have to go through what we go through with RSD. It affects everything in your entire life and our poor children have already been through so much with their parent having RSD. Well good luck in your healing journey. kathyd |
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03-18-2012, 08:38 PM | #16 | ||
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Hi Lisa, I haven't checked in for quite a while, wish I had since I have had this procedure done. For the first couple of weeks it did seem like I had more pain, then things settled down. I did get some relief but not full coverage for my shoulder. I had another facet joint injection and had complete relief in the shoulder area. I am now waiting for insurance approval for the second ablation, and let me tell you it can't come soon enough!! My pain doc was hopeful that if we "stacked" procedures it would give me better relief i the shoulder. Sending you prayers and blessings, Another Lisa
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