Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 02-25-2014, 09:11 AM #1
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Good Morning All,

I was diagnosed with RSD on New Years Eve by a hand surgeon who I went to after I started to get burning pain in my hands. I had been seeing a neurologist for a bad concussion I had received a year ago and he thought that the burning might be a symptom of my concussion.

I only had the one symptom,the burning pain but starting yesterday and continuing today my hand has a blotchy red color to it.I will try to attach a photo . If anyone could give me their opinion if this is what they mean by color change as a RSD symptom I would appreciate it.

thank you,

Joe
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Old 02-25-2014, 10:15 AM #2
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[QUOTE=joby7165;1053363]Good Morning All,

I was diagnosed with RSD on New Years Eve by a hand surgeon who I went to after I started to get burning pain in my hands. I had been seeing a neurologist for a bad concussion I had received a year ago and he thought that the burning might be a symptom of my concussion.

I only had the one symptom,the burning pain but starting yesterday and continuing today my hand has a blotchy red color to it.I will try to attach a photo . If anyone could give me their opinion if this is what they mean by color change as a RSD symptom I would appreciate it.

thank you,






Is there pain too?It looks blotchy like my leg gets..But you may also have something pinched..Does it feel knub? I pulled a muscle about 3 months ago and I had pain all down my neck,arm and fingers.It also turned colors..So keep track of what happens.Write it down..Like even if weather is bothering it..Using it,Sharp pain,knubness,ect..If it is rsd,do not use ice..Use heat only..good luck..Hope you feel better soon..
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Old 02-25-2014, 01:02 PM #3
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Yes, it does look mottled red. Like moosey said, keep track of descriptions of the pain & other changes like shinyness, thining skin, nail changes. NO ICE if
it's RSD. Keep it moving gently all you can.
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RSD/CRPS and contracture of left hand and arm after surgery for broken wrist.
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Old 02-25-2014, 05:03 PM #4
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Definitely keep a diary of your pain, symptoms, temperature and colour changes - they are exactly that - the changes in skin colour and temperature that happen in that area alone, not your whole body, or both hands as a result of being outside for example. Take photographs of anything unusual you see and take everything to your next appointment. Doctors love these kinds of records.

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Old 02-25-2014, 05:56 PM #5
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Thanks for all the input. The other issues I had was severe swelling in my right foot and lower leg,will include another photo.Once the hand specialist diagnosed me with RSD I have been reading everything I can about the disease.

I do have the shiny like appearance on my fingers of both hands. I have the same symptoms on my left hand just not as severe.Also,my skin feels like rice paper.Every once in awhile I'll get a severe electrical like shock in my hand.The joints in my hand are very stiff,I can open my right hand completely with extreme difficulty but I can't close it into a fist.The nail growth is pretty weird as well,growing much quicker than usual.It is pretty bizarre to get diagnosed with such a strange condition with so many strange symptoms to only start crossing off so many of them in my head.

The hand specialist recommended occupational rehab which I did for three sessions before workers comp denied it saying that it wasn't associated to my fall from work so I've been doing the exercises at home trying to hold this at bay but it seems to be getting just a little bit worse every day.

Joe
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Old 02-25-2014, 09:00 PM #6
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Quote:
Originally Posted by joby7165 View Post
Thanks for all the input. The other issues I had was severe swelling in my right foot and lower leg,will include another photo.Once the hand specialist diagnosed me with RSD I have been reading everything I can about the disease.

I do have the shiny like appearance on my fingers of both hands. I have the same symptoms on my left hand just not as severe.Also,my skin feels like rice paper.Every once in awhile I'll get a severe electrical like shock in my hand.The joints in my hand are very stiff,I can open my right hand completely with extreme difficulty but I can't close it into a fist.The nail growth is pretty weird as well,growing much quicker than usual.It is pretty bizarre to get diagnosed with such a strange condition with so many strange symptoms to only start crossing off so many of them in my head.

The hand specialist recommended occupational rehab which I did for three sessions before workers comp denied it saying that it wasn't associated to my fall from work so I've been doing the exercises at home trying to hold this at bay but it seems to be getting just a little bit worse every day.

Joe
Oh boy that's looks sore..Sorry you are going through so much.You know whats weird when I read other threads I said oh ya that and that ya that's part of it too,,but I guess I forget all of that because its the norm of every day...Weird right..You get so used to these things you tend that's the norm for us..lol
But anyway keep track of everything and who you saw,and what you had done..Very important...Good Luck
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Old 02-25-2014, 09:23 PM #7
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Thanks for the good advice Moosey, I will definitely keep track of everything
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Old 02-26-2014, 10:19 PM #8
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Quote:
Originally Posted by joby7165 View Post
Good Morning All,

I was diagnosed with RSD on New Years Eve by a hand surgeon who I went to after I started to get burning pain in my hands. I had been seeing a neurologist for a bad concussion I had received a year ago and he thought that the burning might be a symptom of my concussion.

I only had the one symptom,the burning pain but starting yesterday and continuing today my hand has a blotchy red color to it.I will try to attach a photo . If anyone could give me their opinion if this is what they mean by color change as a RSD symptom I would appreciate it.

thank you,

Joe
Good evening Joe, I am so sorry you are going thru this. I was diagnosed Jan 2014, had two gangling blocks which cut down my pain by 90% . I also have a GREAT doctor . Find a doctor that listens to you, and I believe this could onset from your hand surgery. My rsd/crps came ON AFTER I BROKE MY ARM DECEMBER 2013. Keep talking to the doctors !!!
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Old 02-27-2014, 10:16 AM #9
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Thank you Tullis, your situation and results have given me hope since my neurosurgeon told me that my neurologist would probably recommend ganglion blocks to me but my biggest fear is my second treatment of botox for the awful migraines I've had since my concussion last January but I'm going to bite the bullet and get the botox,I can't take these headaches much longer.

thanks again!
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Old 02-28-2014, 01:16 PM #10
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Quote:
Originally Posted by joby7165 View Post
Thank you Tullis, your situation and results have given me hope since my neurosurgeon told me that my neurologist would probably recommend ganglion blocks to me but my biggest fear is my second treatment of botox for the awful migraines I've had since my concussion last January but I'm going to bite the bullet and get the botox,I can't take these headaches much longer.

thanks again!
I have to say it only took two blocks for the pain decrease just be positive. My doctor also told me if I was not showing improvement to call him. Again a GOOD doctor is so important. Good luck I am also wearing a compression glove to keep the inflammation down and it has helped
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