Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 02-25-2014, 08:20 PM #1
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Default Tennis elbow or rsd spread?

My left hand and wrist has been battling rsd for 20 years now. I found I could carve wood. I carved to keep my hand busy and take my mind off rsd. Now my elbow has been hurting for about a month. My pcp said it was tennis elbow and to stop carving and rest and use ice for swelling. I did not use ice but I did stop carving and rested. Now the pain is worse and I am not sure whether tennis elbow takes a long time to heal or I am reinjuring somehow (altho I do not see how) or resting it is encouraging the rsd to spread. I feel the pain has changed from like a pulled muscle to rsd like burning and aching, to shock like pain that travels to my hand. Has anyone of you had tennis elbow and am I just worrying needlessly as my doc says? Any comments truly appreciated. Thanks.
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Old 02-26-2014, 10:06 PM #2
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My left hand and wrist has been battling rsd for 20 years now. I found I could carve wood. I carved to keep my hand busy and take my mind off rsd. Now my elbow has been hurting for about a month. My pcp said it was tennis elbow and to stop carving and rest and use ice for swelling. I did not use ice but I did stop carving and rested. Now the pain is worse and I am not sure whether tennis elbow takes a long time to heal or I am reinjuring somehow (altho I do not see how) or resting it is encouraging the rsd to spread. I feel the pain has changed from like a pulled muscle to rsd like burning and aching, to shock like pain that travels to my hand. Has anyone of you had tennis elbow and am I just worrying needlessly as my doc says? Any comments truly appreciated. Thanks.
its funny you say this..About 2 months ago I pulled a muscle in my left should down arm,hurt a lot.Went to the doctor,told me heat and exercise it.now my elbow is very tender.When it first happened I thought oh boy..Pain was terrible started changing the way you said burning,pain,and thumbness ,tingling...so I thought rsd.But after 6 weeks ,started to only hurt elbow area..I cannot lay it against anything..The pain shoots up.The sheets even hurt against..But different than rsd..I have that it right hip to foot and started in left hip and knee..4 years worth..I hope this helped.. My hubby says he thinks I have tennis elbow.I see my doctor tomorrow I will let you know how it goes..
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Old 02-27-2014, 08:45 AM #3
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Originally Posted by KathyWP View Post
My left hand and wrist has been battling rsd for 20 years now. I found I could carve wood. I carved to keep my hand busy and take my mind off rsd. Now my elbow has been hurting for about a month. My pcp said it was tennis elbow and to stop carving and rest and use ice for swelling. I did not use ice but I did stop carving and rested. Now the pain is worse and I am not sure whether tennis elbow takes a long time to heal or I am reinjuring somehow (altho I do not see how) or resting it is encouraging the rsd to spread. I feel the pain has changed from like a pulled muscle to rsd like burning and aching, to shock like pain that travels to my hand. Has anyone of you had tennis elbow and am I just worrying needlessly as my doc says? Any comments truly appreciated. Thanks.
Hi Kathy,
Yes. I do have tennis- elbow pain and like you, was worried about RSD spreading. However, I had a tennis elbow type injury alone that caused this pain, and it is without RSD .
If rest doesn't work and pain isn't improving find a doctor who can diagnose the injury. I have a partially torn tendon, and any stress on it is excruciating. Still, I will not have it repaired for fear of the real RSD thing.

Best best wishes for healing,

Hana
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Old 02-27-2014, 01:31 PM #4
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The fear of spread is with us all. I do not have tennis elbow but I fell awhile ago on my elbow just right and the rod in my arm dislocated from my shoulder and tore trough the bone. talk about pain!!@#$.
Now I can feel the rod under my skin and it still causes me lots of pain and discomfort. X-rays show that the bone now has formed around the rod and to fix the problem it would take surgery that would have unknown havoc with my CRiSPy situation.
So now hear I am muddled about what to do...
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Old 02-27-2014, 01:47 PM #5
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tennis elbow pain/symptoms -other names for it golfers elbow, cubital tunnel , epicondylitis.

Sometimes the pain/symptoms can be caused by irritations or compression on the nerve up near the neck/shoulder/collarbone.
The wood carving is what made me think it might be based higher up, the posture , pushing, holding the wood, detailed work...

I had elbow pain (assembly /production work) and it was based from the tension & spasms in my neck & upperback muscles, treating the elbow itself didn't help much, then when posture & upper muscles were treated the elbow pain faded away.

This could be caused by forward head/shoulders posture, or trigger points in the muscles of the upper back or neck muscles.

Here is a neat trigger point chart that is clickable - you can find elbow pain then click it and the images will show you where to feel for possible trigger points, then how to treat it.
http://www.pressurepointer.com/pain_reference_chart.htm
http://www.pressurepointer.com/Users1.htm

If you ask a friend or look in a mirror from the side you can check your head/shoulder alignment.
a few simple things to help remedy that here -
http://neurotalk.psychcentral.com/album.php?albumid=422

Many other ways on youtube also.
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Old 02-27-2014, 10:13 PM #6
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I went to the doctor today like I said I was going to..Guess what I forgot to ask him about my arm..lol..Was talking about RSD and my Meds..And Blood pressure forgot about my arm..and spoke to him about insur...so sorry I hope you feel better..
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Old 02-28-2014, 09:13 PM #7
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Default Thanks everyone!

Your responses have made me feel better. I am going to take your advise and check out the links you posted Jo*mar and do a little self research. moosey2me, no bothers that happens to me a lot. I get home and realize I haven't asked questions that I actually wrote down. It's overwhelming talking to our docs bc we have so much going on.
I am thinking I really need to see rsd doc. I looked up in my area and there is one doc but he refused to see me bc he did not believe I had rsd bc it's so rare. And he's supposed to be a rsd specialist. Makes me wonder. My cousin recently was diagnosed and I have talking to her about the docs she sees, but they are two states away and do not take my insurance. So research here I come.
Thank you so much for your replies. I am humbly honored to talk to others in the same boat. Your support means a lot.
Take care my CRiSPy friends.
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