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-   Reflex Sympathetic Dystrophy (RSD and CRPS) (https://www.neurotalk.org/reflex-sympathetic-dystrophy-rsd-and-crps-/)
-   -   CRPS playing up due to...wait for it... (https://www.neurotalk.org/reflex-sympathetic-dystrophy-rsd-and-crps-/201778-crps-playing-due-wait.html)

Kevscar 03-08-2014 12:55 AM

Kim no wound is silly for any of us, 7 -8% of us get wounds that may never heal I got bitten by flying ants 22 july 2011http://i834.photobucket.com/albums/z...psc07bec1f.jpg
Didn't heal until this Jan

anon6715 03-08-2014 04:39 AM

I'm sorry, Kev. I didn't mean to minimise what you are going through or what anyone else is going through. I guess I just wanted to acknowledge that I was lucky in that it didn't turn into something worse, as I know it could have and as I know small wounds have for so many others.

Although I am always in intense pain, I know that I am lucky compared to many of you. I think I just feel bad complaining about something that happens to me when I know you and others here are so much worse off. I don't want you guys to ever think that I don't know how much you're suffering or that I don't care.

:hug:

Kim

Quote:

Originally Posted by Kevscar (Post 1055591)
Kim no wound is silly for any of us, 7 -8% of us get wounds that may never heal I got bitten by flying ants 22 july 2011Didn't heal until this Jan


eevo61 03-08-2014 08:54 AM

We are not nuts just had bad days
 
Quote:

Originally Posted by KimA (Post 1055509)
Thanks folks. Things have pretty much gotten back to 'normal' now. It wasn't really a big deal, it was just ridiculous. I didn't even bother telling anyone except my husband and my cripsy friends here. Who else would understand? I think if I told people that my pain ratcheted up because of a paper cut, they would just think I'm nuts.

We all have bad days in many different ways,people might think we are inventing stuff just avoid doing things or have a normal life but reality is as silly that might sound,who has a normal day with crps? Nobody,we are trying to be so careful to avoid more pain that for the rest of the world we are just a bunch of weird and paranoid dudes but who wouldn't be, no your ok,you just had a bad day but as usual it was lucky for you just that,a bad day,we are not crazy,pain is real,bad days too,good luck and blessings to all :grouphug:

Hana 03-08-2014 10:32 AM

My belief is that it can be anything to trigger CRPS... really. Almost anything. I have seen so many different kinds of injuries or upsets to the system cause this... :eek::(:confused::mad: :eek: I think our SNS sympathetic nervous systems are primed and ready for just that insult :mf_swordfight:. And when I have flares, the triggers can be just as different too... I do know that I have crossover and extra sympatethetic ganglia, also, my blood vessels are tortuous ..

My belief is that I am just that perfect storm if you will. :rolleyes: :rain: I'm trying to get to the bottom of it now because it is so maddening.:ranting: I don't feel badly about all of the treatments and surgeries I had to "fix" it, and me...For that information may we long benefit. However, especially in the last 10 years with all of the advanced DNA testing and as I watch my body develop new problems and conditions, I wonder if there is genetic predisposition... and I'm wandering into those weeds..

May you all have respite from pain today... :grouphug: :) :circlelove:

Hana

Kevscar 03-08-2014 01:13 PM

Kim you didn't minimise anything. It's just that I know most aren't aware of what the slightest wound can do to some of us and I was worried you might be one

jana77 03-11-2014 06:49 PM

understand the paper cut!!
 
Hi guys! New to the site. So glad I'm not alone with this rsd/crps.
I have it (right now) only in left arm. Hit my elbow turning around to leave my daughters room. Thought I was going to die!! I have a high threshold for pain..i thought.lol!! For about 15 minutes I was contemplating going to the ER.
then it hit me that my crps was the reason I was in so much pain.!


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