Well this question is mostly for the ladys but some of you guys might heard something about it, I never mentioned before had crps for 2years now ,had 2 surgeries related to scs implant and battery repositioned but during my period since the first trial and after the permanent,every month I develop some type of rash on my back around my incision site where my LEDs are located and the little bumps gave me so much pain that feels like flare ups,also last years in a urgent care visit during one of those occasion the URgent care md mentioned that I have some kind so cystitis and I though I had kidney stone
Because of the pain and also feels like those little bumps where shingle but they tell me it was a small rash to something that I might ate,well, every month is the same routine I told my pain management md about it and he said is not crps related but happens same symptoms every month after my trial and then after my permanent implant ,my case is wc related so I assume they ignore whatever is not related to my original injury site which is my right foot and ankle,does anyone have the same issue I do think is related because is not a coincidence that's happens every single month and the pain is real strong not like those cramp we get monthly I still feel then but also those red bumps around my back hurts when u touch then or my clothes rose then generates burn and pain plus the other uncomfortable symptoms that we already suffer as lady's do every month,any advise or info so far my rep and dr said that their not related,could that be? If anyone know ,give me a hint so I can discuss that again with them,thanks

I have lived with RSDS in my R leg since 1998. Yes, I have some of the worst pain during my Menstrual Cycle, not part of the cycle, but because of the RSDS. The pain is located where it normally is, but during the cycle it is much more intense, to the point that I cry out loud for a week or longer, hard to eat or sleep. The pain starts days before and lasts during the cycle. Now that I am in the midst of Menopause, I still have the intense pain when I have a cycle, but only cycle once to three times a year. Literally I have seen over 40 doctors about my RSDS, including the Mayo Clinic, and the one thing I can pass on to you is that you will find that you know more about RSDS than the doctors will, but they do not like to be told/shown that. I hate changing doctors, but that's another story for another day. A four-year med student spends zero to one-hour of 'pain education' and a veterinarian studies twice as long.... sad, oh so sad. Check out: ** RSDS or Chronic Pain Support Groups, Online RSDS organizations, and blog sites.. Knowledge is power. I like this site, good information with some cute stories... Lookup: ** A brand new book from author Judy Foreman wrote, "A Nation in Pain: Healing our Biggest Health Problem." The book covered RSDS, and I found some valuable information in it. I hope I helped you out some, and please let me know if there is anything else I can do. Best Wishes from the Lil Pain Pixie, Ann
P.S. Since this is my first post I am not allowed to list websites until my 10th post, so please excuse the odd websites, I removed the periods and added spaces in their place, I hope it works.

O-M-G YES! I could not agree with you more! Hands down the worst of my symptoms are expereienced during my cycle. I don't even need those parts anymore, so it's like some CRUEL monthly joke.


Right on Pixie, no one knows your body or this disease the way you do. And even the disease in some ways is experienced differently for each of us, but all with common threads.

eevo - I have not had an SCS so I am affraid I cannot offer anything there. In fact, I fear that is the next decision I will be making relatively soon. <sigh> So sorry that you are struggling right now hon. Hang in there and if you are uncomfortable and continue to have this rash/bumps keep bugging the docs until you get a resolutoin. Perhaps go see your PCP. Best of luck with this!