Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

 
 
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Old 03-11-2014, 06:03 PM #7
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eevo61 eevo61 is offline
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Location: California
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eevo61 eevo61 is offline
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Join Date: Aug 2013
Location: California
Posts: 389
10 yr Member
Default Keep trying

Quote:
Originally Posted by jana77 View Post
Hello all.
I'm very new to this site and very frustrated with my drs
I have crps ,diagnosed 3 months ago. Due to surgery for priecers of the left wrist.
My Ortho sent me to a pain management Dr. I had stellote block done last week
And guess what? My pain is off the charts! Gabapentin isn't helping, sleep doesn't happen. I called pain Dr today and they said don't do anything to upset cprs. And use ice! And ibuprofen. Needles to say I hit the roof. Ice? That told me he has no idea what he is treating.
Does anyone have any advice?
Welcome and we are sad to heard when for unfortunate reason we have new members in our up growing family , yes as patient myself, I had learned a lots from this side and from each member, and important advise I learned is don't give up and always ask questions,do research and if you don't get answers,keep asking until you get there,is unfortunate for us that pain management clinics sometimes just offer a short term relief but that's their job, just to help to manage our pain,is hard to learn that but eventually you get the lesson well memorized and don't expect more than that,manage your life a little more comfortable but after all there is not a long term healing,we had learn that reality and accepted when we have good days but when we had bad days we don't want to accept any negative answer,keep trying and make sure whatever treatment you decide in the future you are 100 percent sure what the upcoming results might be,we expect so much because we want to be well that we ending accepting whatever the dr suggest but guess what? Sometimes no even drs know the right treatment to follow and at the end you ended with more suffering ,so please do your research and always ask as many questions you might have,good luck and welcome, blessings to all from Jesika
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