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Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS) |
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#1 | ||
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for almost 2 years my drugs have been pretty consistent. but from time to time I have real life hallucinations. sounds and visions(no not psychic) and most of them happen during the day when I haven't taken anything. is this a normal thing.. its kind of freaky. So far I am capable of telling the difference. and my family knows when its happening just by looking at me. but still its creepy and scary. but I'm curious if any-one else has this and how they deal.
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#2 | |||
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Senior Member
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I had this problem last year and it was pretty scary...but mine ended up being the result of seratonin syndrome from the meds. The halluncinations stopped after I got off all my meds. None of the meds individually would have caused hallucinations but that seratonin syndrome was nasty business. I always knew that the hallucinations were not real at the time. For me, at least, the hallucinations were not caused by my RSD but a complication caused by the meds. I'm sorry you are going through this...I know how upsetting it can be.
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#3 | ||
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ok so this is something my drs SHOULD be looking into????
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#4 | |||
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Senior Member
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I would certainly hope so! Hallucinations could indicate all sorts of serious conditions so unless you have had a VERY thorough work up I would think there is definitely some testing that should be in order. Like I said...mine were caused by seratonin syndrome...which can kill you. I didn't have it bad enough to be at that point but what if one of my stupid doctors that I had had increased one of my meds with seratonin (which...come to think of it they did and I was made violently ill after taking that med so I stopped taking it after two tries)? Not saying yours is the same situation but you should at least have peace of mind and get as much checked out as you can.
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#5 | ||
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Magnate
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I had vertigo on and off for years, part of the problem did seem med related. I was definitely having "brain zaps." Do not decrease any meds before talking to your doc, since that can be dangerous as well... Depending on the severity of your episodes, you need to either have a plan set up with your doc on what to do, or go to the ER. I passed out several times and never went to the ER... In hindsight, the normal/smart thing to have done, would have to treated it like the emergency it was. I was so focused on my pain at the time, it was just another thing on my laundry list of body failing me.
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#6 | ||
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its funny I have a habit of discounting certain things thinking it must be normal , I did have a full physical and blood work up 2 weeks ago and i get blood tested(used to be once a myth) now once every 3 mnths. drug test for state and work. but i never made mention of a lot of things. but i did mention hallucinations to PM dr spine specialist shrink and neurologist but they never seemed bothered by it. I guess i shod say something to my GP. maybe that will make a difference. thanks, glad i mentioned this otherwise I might make a real mistake (if i didn't already). thanks
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#7 | ||
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Member
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Seroquel causes me low grade visual hallucinations and auditory as well. Unfortunately Ihave some pretty strong olfactory hallucinations which often are smoke. I'm getting to the point that I don't even investigate when I smellsmoke all the time. I'm even more careful with fire and combustibles though.
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"Thanks for this!" says: | PamelaJune (03-08-2014) |
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#8 | ||
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Member
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its a freaky thing when you smell something that doesn't exist.. the worst part is ..last year.. when the north east was hit by the earth quake.. my kids were down stairs and I was upstairs..all of a sudden i saw the house shaking and my gliding chair was rocking the wrong way.. I called them up and they didn't feel a thing.. (i thought that was the biggest hallucination i had yet) until i sw neighbors and put on the news.. one.. that was scary
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#9 | ||
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Newly Joined
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What type of work up is done for olfactory hallucinations? An MRI? After 18 years of remission, I've had two recently at onset & during unexpected and severe RSD flare ups that landed me in the ER. I never experienced this level of extreme burning (10+ for 9 hrs) that burns/damages the skin or turpentine odor when first diagnosed.
I'm now trying to catch up research and new treatment protocol (if any) and welcome all suggestions. |
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#10 | |||
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Member
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I wish I did. It might make my life a little more interesting!
__________________
--------------------------------------------------- RSD since 8/2005 Originally in left and right foot Spread in 2006 and Jan 2014 Both legs, arms. Chronic pain going back to 1992 . |
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