Maybe I missed this somewhere so forgive me for asking.
Does anyone experience a symptom of a pin & needles electric feeling
type "chill" to affected lilmb? Of course along with the many other
weird variety of pains we get. I've had this over a yr. & this one is
kinda new.
Also, I DO try to keep with you all, but can't stand more than a lilttle
at a time to type & very slowly, so I read more than I can post.
to you all!

Hi Di...

So sorry you are suffering today.. Inability to stand or type in addition to pain IS frustrating and can be depressing too. It is also part of my every day, and so i'm glad you came along... Yes, I have been in a similar boat with the pins and needles--and the chill. In my worst arm with contractures, when vasospasm happens and circulation is cut off, my arm goes cold, and the sensation is aching in my bones and muscles with the feeling of them being shredded from my bones ,also with electrical zinging, zapping and tingling; I feel electricity running right straight through it. When it cycles the other way to heat... the electricity might as well keep on going to city generators. I think I could light up the city for a week. When that happens I can't tolerate a breath of wind... I also have spinal cord impingement that causes similar symptoms. Darn, surely there must be a way to harness all this energy for the good!

I try to look at this as an interesting phenomenon, and I talk to my body. I try to pay attention..and definitely speak to it with compassion. If we don't who will? Oh, and before I forget, I found a relatively benign but effective treatment for contractures, muscle and bone loss,and fasciitis. I. forgot about that one! I had cold laser- about 8 treatments- non painful, that loosened up fascia and muscles-- It worked and I haven't slid back;it's been a year..and I feel as if I should whisper.

Prayers for easing of your pain...

Hana

Yep, ditto here. Randomly icy electric chills and often like someone is pouring cold water down my legs Its more annoying for me than painful like the other symptoms. So sorry you have these also.

Hey Di, So sorry you are having one more thing hon.. ugh! You are FANTASTIC at keeping up with all of us on here! You've made me feel like a million bucks more times than I can count. Thank you for that! I hope you feel better quick hon!

AzDi - surely no need to apologize! We all do what we can within our personal limits. Chime in whenever you feel up to it :-)
Yup! I get similar sensations. I call the horrible ones "zingers". Those seem random, haven't associated it with any one thing.
Zookester - I get the ice water running down my calf. Also, the foot thinks its cold and wet when its certainly warm and dry. I also have painful numbness in my foot that worsens when I walk. Occasionally I get burning when I wake up in the moning, but mostly it feels like my leg is submerged in icy water. Its a mess.

I'm the same with reading more than posting. My non RSD arm has been having issues so I have been trying to use it less.

I get electric shock type pain. Zaps from time to time. Not sure if that matches what you are describing. I got them a lot more before, so one of these meds must be helping

Ditto on the "pins and needles".......but I'm getting it through most of my limbs, very intermittently, even though I'm not full body CRPS. Not painful really, but another annoying thing to deal with.

Not sure what is going on; I read that it is possible to have this side effect from gabapentin (neurontin) which I have been on a heavy dose since 2008. I think I might get a read on this from my primary CRPS doc.

This condition never ceases to amaze (and depress) me!

I get those too!
Especially hen my body reminds me when I forget med time and weather changes.
I'd make a great weather forcaster...

Requip might be useful for that annoying electric component.

Electric chills, now that doesn't sound like any fun at all. damn ... so sorry Di. I get chills, random spots of chills/Goosebumps, but they are not electric...yet. So sorry you are dealing with this!