Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 03-22-2014, 06:43 AM #1
Brambledog Brambledog is offline
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Join Date: Jul 2012
Location: England
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Brambledog Brambledog is offline
Senior Member
 
Join Date: Jul 2012
Location: England
Posts: 1,122
10 yr Member
Default MRI results for lumbar spine....thoughts?

At L5-S1, disc narrow and dehydrated.
Modic type 2 endplate spinal change (in the two vertebrae).
Left paracentral disc protrusion displacing the transversing left S1 nerve root posteriorly.
Swelling of left S1 nerve root ganglion.

Basically I have a slipped disc of some type (herniated? Protruding? Prolapsed?) and type 2 modic changes. Modic changes are a change in the bone structure of the two vertebrae, replacing healthy bone marrow with infected fluid. There are 3 types, 1 is worst. Treatment is tricky, experimental and confused.

I have to wait now (of course ) to see a spinal specialist, but will see the physio next week. Obviously with the CRPS everything is complicated, so I'd really like any advice or thoughts from those with experience of spine problems themselves, or knowledge of correct treatment protocol I should expect. I've had my share of treatment that turned out to be wrong in the end, and I don't want to risk making this worse now...

The pain is variable. Overall I think it's improved from the early days that got me on the morphine hell-ride in the first place. I'm just taking paracetemol now, because I want to know if I aggravate it, not do more damage by doing any old thing in a drugged out haze. Mornings are worst, mentally and physically, afternoons probably better. Evenings uncomfortable. I struggle to settle down in any position, so I alternate between standing and walking, sitting and lying down. By night I'm knackered and strangely I'm sleeping ok.

Any ideas on stretches, exercises, positions etc would be very welcome. I'm walking as much as I can, which isn't much at any one time lol.

Thanks guys. Hope you're doing ok today.

Bram
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CRPS started in left knee after op in Aug. 2011
Spread to entire left leg and foot, left arm, right foot.

Coeliac since 2007.
Patella femoral arthritis both knees.

Keep smiling!
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