NeuroTalk Support Groups - Any with RSD in your face have eye issues?

NeuroTalk Support Groups (https://www.neurotalk.org/)

- Reflex Sympathetic Dystrophy (RSD and CRPS) (https://www.neurotalk.org/reflex-sympathetic-dystrophy-rsd-and-crps-/)

- - Any with RSD in your face have eye issues? (https://www.neurotalk.org/reflex-sympathetic-dystrophy-rsd-and-crps-/202520-rsd-eye-issues.html)

Chech for bell' palsy

That is also a condition that is a neuro condition and damage the nerve of face around your nose,eyes,mouth,but is mostly affect one side only check with your md as well I heard happen due dental decay or trauma due a dental procedure but also can appear due to stress,affect the nerve and muscle around the eye and eye lids,hope you do a research and is never bad idea to make the dr check any disease that out there,hope this help, always your friend Jesika blessings :grouphug:

Hi Nanc, I'm so sorry you are going through this awful experience with your eyes. I wish I could offer some help, but I have never had those symptoms before with my eyes or rsd. I once saw white flashing lights for a brief moment but eye dr said that my retina in my right eye was not detached so it was fine. She did say it could be related to rsd though, but I haven't had it happen since. I do get dry and blurry eyes often, but if I were you, I would maybe check with another eye dr. I also had that red dye put in, but all was fine. I am going to see an ENT dr about the ringing in my right ear soon. I will let you know what they say. It is driving me crazy too. I will pray that you will be okay my friend. Take care. With love, Renee.

Have you been checked for Lyme disease? I've had RSD since 2002 and started having problems with my left eye in 2009. I saw many specialists including those you referenced in your post. No one was able to link my eye problem to the RSD but didn't know either what the cause was. I've been through numerous tests including those for Lyme, all results came back negative. Facial palsy is a symptom of Lyme and despite the numerous negative test results it was ultimately confirmed as positive for Lyme disease a couple of months ago. After a course of 5 weeks on antibiotics it seems that my eye is back to normal. Unfortunately I still have the RSD pain but I hope the Lyme bacteria has been killed.

Quote:

Originally Posted by Nanc (Post 1059273)

Thanks Vrae and Tessa!

My husband pointed out that I also cough a lot when I am talking quite a bit, like on the phone or in a heavy conversation. This is all so frustrating...and scary! So I was given two name of drs to see for this. One of them is in the university hospital system here, so I found his email address and emailed him :) He said that he is no expert in RSD, but probably knows a bit more than a general ophthamologist. He does not usually treat pain syndromes and doesn't recall RSD causing double vision or drooopy eye, but if it effects the face "I suppose that's possible". Also said that he imagines the dr I saw wants him to rule out any other potential causes. The other dr is in a neurological practice that I went to before and left because the NP I was seeing turned into a real jerk.

Tessa - I have an appointment with a dr on May 2. I saw him 1-2 years ago for my right shoulder. I wanted to try someone in that practice that would focus more on PM, but since I saw him before I have to see him first. If he can't help me, he has to "release" me and refer me to one of his partners. Such a pain (pardon the pun)!! I was able to get in with the NP earlier, but that was a waste of time. She didn't know what to do with me because of all my allergies. The only suggestion she had was warm water pool therapy. But there is the transportation issue again. Hubby is off every other Friday so I try to schedule appts then. Pool therapy does not have Friday appts at all and the latest appt the other days is 3:00. He works an hour from home - leaves at 6:00 am, returns at 5:30 pm.

As far as my cervical spine goes, I found a report in my neuro records from Jan 2012, it has to be from a CT since I had the SCS's then. The impression states: "Multilevel degenerative disc disease with mild canal stenosis and mild to moderate left neuroforaminal narrowing from C3-C7." My facial issues are on the right side.

And thanks, we are pretty much over our colds. Just lingering, irritating mess that usually hangs on.

Thanks again both of you for responding...having a bit of a rough day today!
Nanc
:hug:

Oh Nanc,

I'm so sorry about all of these stresses hitting you like a freight train..the ptosis and swallowing difficulties... and that you are just seeing your report from 2012... and you've been under the weather, all in one?? That's alot!! :eek: Darn it you're due for better weather!!
I have had ptosis after a sympathectomy (for RSD :() and it definitely affected my vision badly. I don't know your cause but pray for speedy resolution. It would seem like a possibility that because of your neck your symptoms might be explained,(which sounds like mine too), but I don't know. I have some numbness that comes and goes in the left side of my face, muscle spasms... and on down my arms too. so far... no RSD in my face which is my blessing...

sending healing energy your way,:hug::grouphug:

Hana