Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 03-25-2014, 06:58 PM #1
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Hi everyone. Was wondering if anyone else had drooping or electric shock feelings. My right shoulder droops so much now it's very noticeable. Also have severe electric shock feelings in my right hand, arm, fingers, and shoulders. And I can't sit, stand, walk, lay for to long before I have to sit down, move, or do something to change my position. I can't do anything for to long before I feel like I'm going to pass our from pain or fatigue. If I'm going to the mall I have to get a wheel chair. I'm only 27 is this all CRPS too? I feel like I'm 90 I have nothing left in me.
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Old 03-25-2014, 08:35 PM #2
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I do get the electric shock like feelings in my hand which is one of the symptoms of rsd/crps.
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Old 03-26-2014, 01:53 AM #3
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Hi KatieHay,
Unfortunately those shocks & drooping are some of the many joys we get to experience from having RSD. I get the shocks all over my body myself & sometimes it's just more of an annoyence while other times it's really painful & I want to scream I know how draining & exusting just doing the simplest things can be as well as dealing w/the pain & not just physically but emotionally & mentally as well, best advice I can give is try to find the humor in something each day & deal w/each day as it comes. I also know all to well about feeling old I feel like I'm about 90 myself (I'm only 35)but especially when my 84 year old Grandmother who lives w/us gets around faster than me lol I use a cane to get around but there are times where I have to use my walker or the wheel chair, when I go to the supermarket I usually get the motorized cart so I dont wear myself out tryin to get thru the store I usually get some odd looks but I'm used to it after all these years.
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GENERALIZED RSD/CRPS stage II/III (entire body
.
) since 2004
HIP DYSPLASIA(right side), hip turned & tilted into back & aprox 2in higher than left side; <wear a shoe lift>
ARTHRITIS in both hips & Pelvis; Both Ball Joints are Deteriorating; SIATICA (both sides now) & EPILEPSY
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Old 03-26-2014, 08:33 AM #4
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I have drooping of my left shoulder and the "electric shocking" in my left hand sometimes too. My CRPS started in my left arm and hand and they seem to be the most affected.
The only time I feel drained or really tired is after a seizure episode which comes and goes at different times with various triggers.
I read so many people having the same issues as me which makes me feel somewhat of a kinship.
I'm sorry you're going through this and hope you find some sort of releif...
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Old 03-26-2014, 11:25 AM #5
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Yes both of my shoulders drop and I have the electric zappers. Usally its when im in a flair and they make me exhausted. But like Russell the only time im really "drained" is usually after a seizure, which in our cause its because our brains worked over time and they need to rest.
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Old 03-26-2014, 01:59 PM #6
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Yes, I get that too. Like Heidi said, sometimes, for me it's more of an annoyance than pain. In fact I started a thread a few days ago
about "electric chills" I get other types of pain as well, this is just one of them.
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