Does anyone have experience with ketamine treatments in Tampa with Dr. Kilpatrick at the RSD institute there?? If so please tell me your experience.... If not if you have a recommendation for another dr or location anywhere else I would love to hear it. I'm in houston so staying in town is not an option so I'm going to travel, just want to see the best! I've decided I'm doing it just would like to have some input from others who have experienced it and what it feels like?? Thank you! This is my first post and really excited about meeting others who go through what I do cause where I am no one I know has anything remotely close to what I go through daily.....

My wife has RSD now for 11 years. She does not have experience with this doctor but through the years I've heard nothing but good things about Dr. Kilpatrick. He is on our short list if needed a this time. My understanding is the RSD institute does not except insurance. If you see him keep us posted, and good luck!!

That's good to hear! No he does not take insurance but they will give you all the necessary paperwork to complete for out of network reimbursement for treatment. I know we won't get it all covered but my husband, family, and I decided we HAVE to try it regardless of cost. I'm too young to just go on with status quo and my husband and children need me, especially my son with autism to not give it a chance.... I have a consult appt on April 11th so I will for sure post how it goes!!! Thanks so much for your response and I will pray for your wife as well!!!

Yes I've heard they will work with you to attempt to receive reimbursement. My wife's BCBS did pay for her outpatient infusions, both ketamine and lidocain at GW Hospital in DC. My concern at that time was GW did not have extensive experience with ketamine where as Dr. Kilpatrick does. With this doctor even if the Ketamine fails he knows this disease and above all knows how to treat those with RSD with respect. I'm sure he has other tricks up his sleeve. If you've just acquired this disease, treat it quickly, the earlier the better. It took my wife 4 years for that to happen. Again good luck!!!

Thanks! I have bcbs too so I'm hoping to be able to get reimbursement for something back. I have had it for 5 years about but it's just now starting to spread within the last 6-8 months from what my dr says is extreme stress that has unfortunately I've had no control over in my life.... I'm starting with a pain therapist soon to work on controlling my stress levels better but also am looking forward to going to Florida to figure out my medical options.... Good luck to y'all too!