Dear Neurochic, Tessa, Bram, Fbodgrl, Eev and Tos and everyone else here on this forum,
I sorry I'm late posting this but I needed some time to come to terms with my disappointment of the so called institute for crps. I wanted to thank all of you for caring enough to try to cheer me up. Having you all for support means more to me then you'll ever know. And though having rsd has brought me to a painful and difficult new world, it has also brought me to all of you. And I find myself very blessed and lucky to have you all as my friends. Thank you again with all of my heart. With love, your friend, Renee.

I'm so sorry this happened Renee. Having your hopes crushed is horrible. Just remember that the failure is NOT yours, it is theirs, so there's nothing you could have done about this...at least you tried, and you've warned others on this forum about the place. Every cloud has a silver lining and all that :rolleyes:.

There will be something else. Never give up hope :)

Bram.

RSD RENEE, Not sure if this place was mentioned earlier in this thread or not, or whether it's close to you. (see link below)

http://rsdhealthcare.org/location.html

CRPS Institute is a sham
 

At least that was my impression when I phoned. They were quick to say they didnt accept insurance, and we're even quicker to find out how much my out of pocket benefits were for the up-front fees of $1,200 I would have to pay for the initial consult. From what I can tell, this is an umbrella organization for a privately managed spine center.

I thought the initial consultation was free, but after reading again after I talked to person as TSCI (this so called institute) I saw that only the review of my medical records was free. The initial consultation just for the drs was $700.00 and they didn't accept insurance. Then there was an additional charge for the psychologist. I guess I forgot to read between the lines. You'd think I'd have learned by now.

Renee (and others who have had contact with this 'Institute'), if you have time it might be good to send a report of your experience to the big CRPS sites like RSDorg etc. They must have had info about this place sent to them (ie marketing bumf), and it would be useful for them to hear a 'real' experience :rolleyes:. If they get a few saying similar stuff, they might warn more CRPS sufferers than we can reach here...

Just an idea ;)

Bram.