Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 04-03-2014, 08:41 PM #1
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Default surgery was good

My surgery last week went really well. I had printouts handy for my appointment with my surgeon, and for the staff at the hospital. There was a small issue with getting an IV in me at first because you tell a person not to drink all night before they come in and they'll be dehydrated and have crappy veins. They blew a vein before they called the anesthesiologist and had him do it. One and done. The only thing I took issue with in prep was that they wouldn't let me wear my "street socks" which are my fuzzy socks and I refused to wear their crappy, rough socks. So I had to go without. Their gowns instead of the regular hospital gowns were these fancy paper thingers that can be heated or vented that was actually super comfy. We found a suitable solution together to the thingers on my legs too.

Apparently my husband says they kept me in recovery for a long time because they had issues getting my pain under control. I vaguely remember waking up and them asking me about pain and telling them "oh god it hurts" and there was morphine and I slept again. There was ice and someone kept harassing me to be awake but I was so sleepy. I find it all very amusing.

They wouldn't let me out of bed until around 9 that night. But they also said I could eat whatever I wanted so my husband brought me my meatloaf from home and it was so nice to have real food. By morning they told me I could have those stupid "so you don't get clots things" on my legs off if I got up for a walk every hour or two, so I did.

Overall everything was great. Everyone was super nice to me. The nurses were really good about asking to touch me and no one ever tried to put a cuff on my left arm. (Which is good for them because I can't vouch for anyone's safety if they did while I was on morphine.) The best part was though that while we did have trouble until early the following morning with keeping my pain at the surgery site under control, I woke up with zero pain otherwise. Zip, zero, zilch. And until the morphine wore completely off the day after I was home, it didn't start to come back. The percocet even helps to take the edge off of it. I never thought I'd have a moment's respite from the burning, and it's back full force. I forgot what it felt like to not feel like this. And now, on top of it I won't have to suffer every month from stupid painful periods any more. It's just this and my migraines for pain. I can handle that.
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birchlake (04-04-2014), Brambledog (04-04-2014), Nanc (04-03-2014), RSD ME (04-03-2014), Russell (04-04-2014), Vrae (04-03-2014), zookester (04-03-2014)

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Old 04-03-2014, 11:05 PM #2
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I'm glad your surgery went well and you're home with your husband and feeling better. I hope you have a good night's sleep and start feeling better every day. My prayers are with you. Take care and get plenty of rest.
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Old 04-03-2014, 11:30 PM #3
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Hi Adalaide!

Great to hear from you! I am VERY interested in your recovery. My doctors have decided to opt for least invasive and less recovery of uterine ablation for me, but much discussion has been had about a hysterectomy. Frankly I just don't think it's a good idea for me right now, and as soon as I get some of my pain under control, it is next on the list of things to conquer.

I'm glad to hear that you sound like you're doing well. Did they leave your ovaries?

Sorry to hear that they wouldn't allow the comfort item of socks of all things... goodness. And yikes that they blew a vein, that sucks. I am glad to hear that overall it was a good experience though. whew.. Keep us posted hon. I hope you continue to do well!
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CRPS II Full Body via L5-S1 Discectomy Surgery in 2004
Symptoms started upon waking from surgery in right foot/leg, mirrored to left foot/leg and then EVERYWHERE else.

Vision without action is a daydream. Action without vision is a nightmare. Japanese proverb,
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Old 04-03-2014, 11:45 PM #4
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So happy to hear your surgery went well and that you are on the mend.

Take care of yourself,
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Old 04-04-2014, 12:05 AM #5
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Glad to hear the surgery went well. I know your positive attitude and strength will propel you through a speedy recovery.

-Be well,
Tessa
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Old 04-04-2014, 12:08 AM #6
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I did keep my ovaries. I'm way too young for menopause on purpose, only 36. But I also told the doctor when he said ablation was a better option that at my age it would mean that I would probably need it more than once and that I don't want more than one surgical procedure if I can help it. I've got 17 and 19 year old daughters, and had less than zero desire to start that baby crap over again. Babies are cute and all, when they belong to other people.

I'm still fighting to get the pain from the surgery under a reasonable amount of control. My surgery was on Thursday a week ago, and I'm still taking percocet which I'd like to be off of. Or maybe it's that I'd like to be on it because it dulls my CRPS pain and that's what scares me the most and makes me want to be off it. Mostly I'm sleeping though, and the half doses are getting me through my waking time, I just need the full doses to be able to fall asleep without feeling like I had my guts ripped out. It's amazing how when you're just laying there with nothing to distract your brain how the pain can creep up so much more.
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Old 04-04-2014, 12:44 AM #7
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Quote:
Originally Posted by Adalaide View Post
I did keep my ovaries. I'm way too young for menopause on purpose, only 36. But I also told the doctor when he said ablation was a better option that at my age it would mean that I would probably need it more than once and that I don't want more than one surgical procedure if I can help it. I've got 17 and 19 year old daughters, and had less than zero desire to start that baby crap over again. Babies are cute and all, when they belong to other people.

I'm still fighting to get the pain from the surgery under a reasonable amount of control. My surgery was on Thursday a week ago, and I'm still taking percocet which I'd like to be off of. Or maybe it's that I'd like to be on it because it dulls my CRPS pain and that's what scares me the most and makes me want to be off it. Mostly I'm sleeping though, and the half doses are getting me through my waking time, I just need the full doses to be able to fall asleep without feeling like I had my guts ripped out. It's amazing how when you're just laying there with nothing to distract your brain how the pain can creep up so much more.
Keep on them about your pain meds to keep your discomfort under control. Since being blessed with the ultimate disease in humility (CRPS) in 2008, I have had to undergo (no options) surgery for a hernia, acute appendicitis and 3 surgeries for a melanoma. I had no problem at all chewing on a few nurses and a doc or two about my pain meds post-op!
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Old 04-04-2014, 10:30 AM #8
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Adelaide, I'm so glad you had a positive surgery experience and are coping well post-op - surgery is always scary, but with CRPS it's a right mare!

I'm sure you'll do well, you have an excellent mix going - listening to the docs, but being very sure of what you need, where to make compromises, and where to be firm. I hope it continues to go well. Don't worry that it's taker a little longer than you thought to lower your pain meds, we cripsy folk work differently to regular people when it comes to nerve stuff, and yours will be firing more than they should be after the surgery. It'll settle down again.

Good luck with everything, and keep us posted

Bram
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Keep smiling!
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