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Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 04-05-2014, 11:16 PM #11
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I hate that you’re not feeling well, but wow! Congratulations catra! How exciting! And how wonderful that you had such a nice experience at the hospital, that’s so rare. I’m glad that they at least set your mind at ease with the baby. Now if we can just make mama feel better. I hope that’s soon! Take it easy hon, Vrae
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Old 04-06-2014, 09:34 AM #12
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Just wanted to say thank you everyone for the kind words. I'm feeling more upbeat today...but the pain is still pretty bad (no change really). I'm very thankful for the weekend off so that I can just rest up for a few days in very loose fitting comfy clothes. It's back to work Monday morning...so we will see how that goes.

But I am VERY happy about the pregnancy and very relieved that everything is okay with the baby. I have my first appointment with the OB on Thursday...hoping maybe she will have some more ideas on what is going on with this pain and what might help with it.
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Old 04-06-2014, 04:22 PM #13
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Get some rest and keep us posted!
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CRPS II Full Body via L5-S1 Discectomy Surgery in 2004
Symptoms started upon waking from surgery in right foot/leg, mirrored to left foot/leg and then EVERYWHERE else.

Vision without action is a daydream. Action without vision is a nightmare. Japanese proverb,
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Old 04-06-2014, 08:11 PM #14
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Quote:
Originally Posted by catra121 View Post
Just feeling the need to vent a little...

I found out a little over a week ago that I am pregnant (about 8 weeks right now). I'm very excited. Last night...I started to get some really bad abdominal pains and chest pains so I left work and went to the ER.

The people at the ER were truly wonderful...I have never in all my trips there had such a completely wonderful team of people take care of me...and I am actually looking forward to getting a survey so I can give them all glowing reviews. They kept me warm, with warm blankets every 30 minutes or so and every single one of them was comforting and trying to make me feel better.

They had me get a chest xray (double shielded by tummy), I got 2 EKGs, LOTS of bloodwork, IV fluids (which means they used both my arms), and I was subjected to a 2+ hour ultrasound where I swear they checked every nook and cranny of my insides. Good news...everything looks great including my little one (who I got to see for the first time on the ultrasound complete with heart beat at about 1:30am). Bad news...I feel like I have been beaten black and blue from the inside out. It was the ultrasound, the IV site, and the blood draw sites that really did me in...the ultrasound was the worst though I think.

Basically they said it's the pregnancy hormones running crazy and causing really bad heartburn (I've NEVER had heartburn that felt like this) or could possibly be a flare up of my RSD due to the stretching and straining that's going on in my abdomen (the bloating is ridiculous...I look huge but I know I'm not showing this early). Fun stuff, huh? They told me I was right to come in though because with this sort of pain...you just don't know and need to get checked out. There were a lot of serious things that it COULD have been...so I'm glad I went in. But goodness...today I really feel like I was beaten up and left for dead in the street...and that's on top of still having the pains I went there with.

So I'm supposed to rest, wear loose clothing, and watch what I eat...then follow up with my OBGYN. Thank goodness I have the weekend off. I'm not moving off this couch for anything besides food if I can help it...

At least I have the peace of mind...knowing everything is A-Okay functionally...and that it's just the pain (as always) that's bothering me.

Thanks for being there for me to get that off my chest...just needed to let it all out...
Hi,

Congrats, on the baby news. That was wonderful to hear.
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Old 04-06-2014, 11:19 PM #15
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That is great news!!!!With all that ,do you if it could be the meds..for the heartburn..?Mine was..The main reason I say this I felt the same way...No baby here though..lol..good luck,happy for you..Do you have other children?
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Old 04-07-2014, 05:25 PM #16
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Originally Posted by moosey2me View Post
That is great news!!!!With all that ,do you if it could be the meds..for the heartburn..?Mine was..The main reason I say this I felt the same way...No baby here though..lol..good luck,happy for you..Do you have other children?
I don't take any meds...I got off all of them except clonidine a couple of years ago and stopped taking the clonidine last July when I found out I was pregnant (ended in a miscarriage at 7 weeks)...and I never started taking the clonidine again because I knew we might try for kids at some point. So no meds.

The more I think about it...the more it really seems like it's just the RSD. It just feels absolutely nothing like heartburn and since everything else checked out okay I feel like that has to be it.

I'm feeling a lot better today though. It's still there and occasionally real bad...but much better than yesterday (and it got REAL bad yesterday...like scream out loud bad).

And I do not have other children...this would be my very first. Scary...but exciting too.
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Old 04-07-2014, 06:25 PM #17
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Im so excited for you catra!! Im sorry your having so much pain though. Both my SIL's had bad pain in there pelvis/stomach area during there first pregnancy's and there Dr said it was just from everything moving into place and stretching, and when they both got pregnant again last year the 1 had the same pain and went to the ER because she thought she was miscarrying again, but nope just everything going into place. I have 2 older brothers and somehow both my SIL's managed to get pregnant around the same time of each other both times. I have a 9 month old niece and a 3 month old nephew, I get to watch him everyday so its been pretty fun. And im sure your RSD isn't helping either, especially since our pain can be triggered by our hormones and yours are not normal right now and your body is now shifting and adapting for the little one your carrying.
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Old 04-08-2014, 03:13 AM #18
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Yep...this is why I think it's the RSD being flared up by the pregnancy. I have RSD in my whole torso, front and back, so it seems that all the moving and shifting and stretching would likely be the cause of the additional pain. Between that and just the changes going on inside (hormones and all)...I think it's kicking my RSD into overdrive.

Just a couple more days until I follow up with the OB...hoping for good news that everything looks great and is going well with the little one. I'm making up my list of questions and things I want to go over with her, including some of my concerns about the RSD.
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Old 04-10-2014, 05:00 PM #19
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Wanted to update...

Had my first prenatal appointment today...everything looks great with the little one! I'm feeling almost 100% back to where I was before the pains in my abdomen. The consensus is that it was an RSD flare up. We went over the plans for a dense blockade should I need a C-section (she suggested it before I even brought it up so that is comforting). Feeling very good about everything right now. Fingers crossed that things continue to go well for the next 7 months and beyond.
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Old 04-10-2014, 07:05 PM #20
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Default Congrats Catra!
We are so happy for your first baby,also remember be with rsd and pregnancy brings so many hormone changes and flare ups,make sure your ob gyn know and understand the condition 100% so they have the best approaches during the upcoming months!I only had one child she will be 21 this June,but sure is scary the first baby,also I'm glad the hospital staff treated you so well,that's definitely make your condition less uncomfortable,take all the care you need to be well and your little one too,don't be afraid,all new parents feel the same way,the different is you have rsd but that only requires more care which I'm sure dr and family will give you everyday,whenever you need to release your emotion we are all here,your child will have so many uncles/aunties ,we all be taking care of that emotional part for you,we all support each other after all that's the reason we are all here,be for each other so just let us know your concerns if we can help,have no doubts ,we all will carry you on,so don't worry and enjoy this days,might sound easy to say but a baby is always a joy and a blessing to have,God have bless you and he knows you will be the best mom,please try to enjoy and treasure those memories,later on your child will enjoy listen your stories about how you were so happy about him/her coming to your life,keep fighting now you have one more reason to keep going on,rsd will never stop your happy days,smile and enjoy as much as you can,blessings from Jesika /eevo
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