Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 05-16-2014, 10:17 PM #31
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Catra, so happy for you! Its time to start a new thread with a happier title !!!:-)
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1999 Chronic spine pain related to Degenerative Disc
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Sept 2001. C6 / C7 discectomy & fusion.
Jan. 2005 L5/S1 discectomy and Artificial Disc Replacement.
July 2011 removal of broken
.
Artificial Disc Replacement.
Woke up in recovery room with RSD Monster.:
.

Aug 2011 Stabilization of spine at L3/L4/L5.
October 2014 Rheumatoid Arthritis.
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Old 05-17-2014, 06:55 AM #32
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Quote:
Originally Posted by fbodgrl View Post
Have you told anyone but us?? My sister told me after she took home tests...she couldn't wait



Great news!!
Last night I finally got to tell some family...my cousin and my aunt who live nearby (my parents and brother live in another state...I will tell them a week from today when I visit in person). They are VERY excited and happy for me. I plan on telling people at work now too...which will be fun I think because I work with a good group of people. It's been so hard waiting...
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Old 05-17-2014, 06:56 AM #33
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Catra, so happy for you! Its time to start a new thread with a happier title !!!:-)
Agreed...my next update I will start a new thread with a happy title.
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Old 05-17-2014, 10:01 AM #34
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Very Happy for you!!
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Old 05-17-2014, 02:01 PM #35
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Congratulations Catra!
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Old 05-17-2014, 09:32 PM #36
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Catra, Brave one Congratulations! A Pregnant Woman is a Miracle on two feet.. One with CRPS? A Double, Triple oh heck as many times a miracle as our pain can go too..(and that's high!) Sincerest best wishes and hopes for those pregnancy hormones to give you a remission through and way way beyond your child's birth. All that being said I also hope your CRPS is a limited non spreading type. Also soonest you should ask your OB/GYN what possible effects your CRPS meds may have and get him to work with your Pain Dr to find the best mix that will help you out but have no effect on your baby...
PS Double check anything they work out with your Pharmacist as they have more immediate experience with drug interactions

Best of Luck Hun and get that Boyfriend of yours to install grab handles around that tub so you can get the relief from the tub without having to worry about either falling or turning into a prune! *LOL*
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Old 05-18-2014, 01:01 AM #37
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Catra, Brave one Congratulations! A Pregnant Woman is a Miracle on two feet.. One with CRPS? A Double, Triple oh heck as many times a miracle as our pain can go too..(and that's high!) Sincerest best wishes and hopes for those pregnancy hormones to give you a remission through and way way beyond your child's birth. All that being said I also hope your CRPS is a limited non spreading type. Also soonest you should ask your OB/GYN what possible effects your CRPS meds may have and get him to work with your Pain Dr to find the best mix that will help you out but have no effect on your baby...
PS Double check anything they work out with your Pharmacist as they have more immediate experience with drug interactions

Best of Luck Hun and get that Boyfriend of yours to install grab handles around that tub so you can get the relief from the tub without having to worry about either falling or turning into a prune! *LOL*
Thanks so much! Since my miscarriage last year I have actually been off ALL meds (and I was off most of them before that...was only using clonidine patches at the time). I still use a TENS for pain, tDCS, and hot baths. Other than having to swap the hot baths for slightly warm baths...all of that has gotten the all clear from my docs for continued use.

Unfortunately...my CRPS has spread to ALMOST full body...but stopped short sparing my head above the neck (my neck is affected) and my right leg...and I don't have it internally either thank goodness. I am worried about the risks of a C-section...but whatever comes I will deal with it. I have already discussed the need for a dense blockade if it comes to that.

I haven't experienced remission...but I am generally feeling pretty good these days. I still get flares and am subject to the same triggers as always...but I think I'm just hopped up on happiness and joy right now to the point where I feel great aside from the pain. And when you're happy to the point of distraction it even distracts from the pain...so that's a bonus. I just have to be careful not to let myself get careless just because I am feeling good...I am often guilty of that and have caused some flare ups in the past few weeks because I got careless.

I know there are a lot of things that I have to work out...especially when it comes to caring for the baby...but I am game for the challenge. One thing that can be said for me...I am stubborn about not letting this CRPS monster hold me back from living my life. My stubbornness got me out of the wheelchair, got me back to work full time, and it will get me through this.
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Old 05-18-2014, 08:03 AM #38
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You are truly inspiring! One day thus baby will now how much you risked and dealt with to get him/her here.

I personally have no desire to have kids(some people find that strange). I have an 8 year old nephew I love very much and that is enough for me! I am always so happy when people who really want children are able to have them!

I'm glad you got to share the news with some people now!

I just found out a friend who has been trying for years is 18 weeks pregnant with twins!
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Last edited by fbodgrl; 05-18-2014 at 08:04 AM. Reason: forgot something
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Old 05-18-2014, 09:48 AM #39
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That's exciting! Congrats to your friend!

I didn't really think I wanted kids either...until we had an "oops" pregnancy while I was taking birth control last year. I ended up miscarrying very early (around 7-8 weeks)...it was a heartbreaking experience and even in the short time before the miscarriage I completely fell in love with the idea of being a mom. It was really hard to see all these people at work and just around out and about who were pregnant...and it was hard even seeing my boyfriend's nieces and nephew without thinking about how much I now wanted to be a mom now.

I'm so very happy and excited about this pregnancy and how well things are going so far. I don't kid myself and think it's going to be easy...I know it will be VERY hard taking care of a little one with all my own health issues...but we will make it through. This little one will be very loved...and that's the most important thing.
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Old 05-18-2014, 10:47 AM #40
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So very happy for you Catra!!!
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