Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


advertisement
Reply
 
Thread Tools Display Modes
Old 04-09-2014, 11:27 AM #1
eevo61's Avatar
eevo61 eevo61 is offline
Member
 
Join Date: Aug 2013
Location: California
Posts: 389
10 yr Member
eevo61 eevo61 is offline
Member
eevo61's Avatar
 
Join Date: Aug 2013
Location: California
Posts: 389
10 yr Member
Default Surgery finally done,but pain was quite awful

yes I got there @ 830am ,prep started at 9 am actual surgery around 11-1130am,we when over with dr,anesthetist rsd issues,and so far they try to keep my pain control,when I woke up maybe around 230pm I do remember I was in a lot of pain,the nurse game some pain med but told me that she can't give me too much because earlier the medication did not allowed me to breath well,then after an hour or so,they told me try to walk and use the restroom so the air inside might be able to be released and that work fine,when I got discharge aound 430 pm I was fine we got home 30 min later took my tramadol and noticed that I wasn't able to lay down or sit and any way,rsd Renee explain me that but for some reason at the moment I forgot, so I called dr office and they advice me same what Renee already told me deep breath and slow release the air,that help but also got like pain in my whole right side arm,where they place the needle and also the site the work for the incision right side,they weren't to use the left side because of my scs generator ,so far I have pain,will continue with my meds rutine,called md yesterday and he will give me one of those breathing blower or some type of device to help me with gain a normal non painful breath,so bad pain when you try to breathe,Renee advice that too,so thanks rsd Renee ,I also apply patches on my arm,back,close to surgical site for pain relief,flector and also forgot to mention lidoderm patch as well all that combine help me a little,today I hope to have less pain then yesterday,high hopes,but if not,I will try to keep myself relax and do the best to avoid to create flare ups, definitely no flare ups,is painful,yes,I felt that this surgery is more painful than my second scs repositioning so weird,but thanks to all of you for your friendship and support from ,all of you,soon I hope to tell you that I'm fine at least on this matter,rsd and my right foot injure can be put on hold for now I won't even pay attention to it,but really I'm so happy with all your best wishes and support,I felt so bless to have you guys and my husband and daughter too,she is doing great by the way,thanks for mention that too guys,she really appreciate your words of comfort for mommy and daughter ,and my husband as well feel happy That we can share,learn and teach our experiences to others who are going or start this process of being with rsd/crps condition,also blessings to you all as always your friend eevo or Jesika. I now have great excuse to eat gelato any time I wanted,Von's or pavilion depending on your states or cities sale this gelato called talenti the best gelato,well after the real Italian gelato at course,is kind of pricy,one pint is about five dollars but im sick so no excuse for me to not have it so spoil, well hope to report you guys later how the day went by,and give you some good news,thanks again
__________________

.
eevo61 is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
RSD ME (04-09-2014), zookester (04-09-2014)

advertisement
Old 04-09-2014, 11:40 AM #2
Adalaide's Avatar
Adalaide Adalaide is offline
Junior Member
 
Join Date: Feb 2014
Location: Utah
Posts: 91
10 yr Member
Adalaide Adalaide is offline
Junior Member
Adalaide's Avatar
 
Join Date: Feb 2014
Location: Utah
Posts: 91
10 yr Member
Default

I'm sorry you're having such a rough time. I just had surgery two weeks ago and while things went well, getting my pain under control immediately after surgery and since has been a challenge. Hopefully everything with your breathing will straighten out and get better as your pain gets better and you recover and you're body has a chance to get things straightened out.

Be good to yourself. And remember, Talenti makes chocolate covered gelato pops now which are super portable and great for eating in bed! There is a reason I'm always dirt poor, and it might be Talenti's fault.
Adalaide is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
eevo61 (04-09-2014), RSD ME (04-09-2014)
Old 04-09-2014, 01:11 PM #3
eevo61's Avatar
eevo61 eevo61 is offline
Member
 
Join Date: Aug 2013
Location: California
Posts: 389
10 yr Member
eevo61 eevo61 is offline
Member
eevo61's Avatar
 
Join Date: Aug 2013
Location: California
Posts: 389
10 yr Member
Grin Thanks for the tip and advice

Quote:
Originally Posted by Adalaide View Post
I'm sorry you're having such a rough time. I just had surgery two weeks ago and while things went well, getting my pain under control immediately after surgery and since has been a challenge. Hopefully everything with your breathing will straighten out and get better as your pain gets better and you recover and you're body has a chance to get things straightened out.

Be good to yourself. And remember, Talenti makes chocolate covered gelato pops now which are super portable and great for eating in bed! There is a reason I'm always dirt poor, and it might be Talenti's fault.
I'm sorry you also had surgery,dawn, lately can only talk about surgeries weird,but thanks I'm doing much better then yesterday I now later pain will kick harder because anesthesia will pass my bloodstream completely,so my only hope and plan is get ready for the fight,is a challenge as you said but I don't want end it up with an awful flare up, no way,and talenti gelato pops, interesting had not seen it yet,at least here in my area I will call some stores and see who carries them you are right I can't afford to buy to many,have to hid then from other people but sorry can't share the gelato,too pricy,I will make my husband look for then,thanks and by the way is a pleasure meting you Adalaide,hope we can get in contact often and hope your recovery totally soon and smooth,best wishes for you as well, and blessings from your new friend Jesika aka eevo,thanks
__________________

.
eevo61 is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
RSD ME (04-09-2014)
Old 04-09-2014, 01:28 PM #4
RSD ME RSD ME is offline
Senior Member
 
Join Date: Sep 2013
Posts: 1,500
10 yr Member
RSD ME RSD ME is offline
Senior Member
 
Join Date: Sep 2013
Posts: 1,500
10 yr Member
Default

Hi Eev, I hope you feel better today than yesterday. I'm sure you will. It takes a few weeks but you'll be okay. And I think the gelato sounds like a great idea! I wish I thought of that! You enjoy the gelato. You deserve it. You've been through alot. Thank you for the kind words. It brightened my day. I'm glad I could help. You and everyone else here help me too by always being so supportive, so it's the least I could do. I'm always here if you have any questions or just need to talk. I will be checking to see if you are okay again tonight. So if you're up and need a friend, I'll be here. Now get some rest and have some of that delicious sounding gelato! With loving prayers, Renee.
__________________
RSD ME
.
RSD ME is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
eevo61 (04-09-2014)
Old 04-09-2014, 01:30 PM #5
Nanc's Avatar
Nanc Nanc is offline
Member
 
Join Date: Jan 2011
Location: VA
Posts: 975
10 yr Member
Nanc Nanc is offline
Member
Nanc's Avatar
 
Join Date: Jan 2011
Location: VA
Posts: 975
10 yr Member
Default

Jesika - glad you made it through surgery ok and that you are better today than yesterday. Just remember to stay ahead of the surgical pain with meds to help you through. Also remember that this surgical pain is only temporary. I had my SCS's removed in January and it was rough, but temporary. My healing process was delayed a bit with the bad allergic reaction I had, but it is gone and I am healed completely from it!!

Wishing you the best!
Nanc
Nanc is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
eevo61 (04-09-2014)
Old 04-09-2014, 01:44 PM #6
eevo61's Avatar
eevo61 eevo61 is offline
Member
 
Join Date: Aug 2013
Location: California
Posts: 389
10 yr Member
eevo61 eevo61 is offline
Member
eevo61's Avatar
 
Join Date: Aug 2013
Location: California
Posts: 389
10 yr Member
Default So glad u doing much better

Quote:
Originally Posted by Nanc View Post
Jesika - glad you made it through surgery ok and that you are better today than yesterday. Just remember to stay ahead of the surgical pain with meds to help you through. Also remember that this surgical pain is only temporary. I had my SCS's removed in January and it was rough, but temporary. My healing process was delayed a bit with the bad allergic reaction I had, but it is gone and I am healed completely from it!!

Wishing you the best!
Nanc
I also had my scs generator repositioned as you already know but my buttock area and whole left leg not at all,still might take time considering I had it for one whole year,but so far it works better in my abdomen,gallbladder issue,well that I wasn't expected but I will be real careful in controlling the pain,less thing I need is a flare up,hope all your future medical treatment work well too,I'm bless with having all of you and always sending blessing as well talk to you soon Jesika
Ps. To me you are like my sister,just like the other girl,you know sister don't agree all the time but we always will love each other ,brother/sister in pain,but always united,
__________________

.
eevo61 is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Nanc (04-09-2014), PamelaJune (04-10-2014)
Old 04-09-2014, 04:26 PM #7
anon6715
Guest
 
Posts: n/a
anon6715
Guest
 
Posts: n/a
Default

Jesika,

I'm glad your surgery is over and you are back at home. I hope you are feeling better soon. Try to relax as much as possible. Enjoy your gelato!

KimA
  Reply With QuoteReply With Quote
"Thanks for this!" says:
eevo61 (04-10-2014)
Old 04-10-2014, 07:35 AM #8
catra121's Avatar
catra121 catra121 is offline
Senior Member
 
Join Date: Jan 2010
Location: Illinois
Posts: 1,785
10 yr Member
catra121 catra121 is offline
Senior Member
catra121's Avatar
 
Join Date: Jan 2010
Location: Illinois
Posts: 1,785
10 yr Member
Default

I'm glad you are safe and sound back at home...I hope the pain gets better for you soon. Take care and keep us posted!
catra121 is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
eevo61 (04-10-2014)
Old 04-10-2014, 01:35 PM #9
eevo61's Avatar
eevo61 eevo61 is offline
Member
 
Join Date: Aug 2013
Location: California
Posts: 389
10 yr Member
eevo61 eevo61 is offline
Member
eevo61's Avatar
 
Join Date: Aug 2013
Location: California
Posts: 389
10 yr Member
Default Thanks you so much!

KimA and Catra121 thanks for taking the time to check on me,I'm doing much better,still have some hard time berthing but dr gave me instructions on how to breath slowly and a device to practice,my upper back and upper chest right side hurt when I tried to talk too much or breath to fast so I have to take it easy,is hard for me I'm a talking person,gosh, I sleep and talk guess for now need to tape my mouth is the only way I won't talk too much but for the rest so far I still avoiding any type of pain so I don't have a flare up anywhere ,but thanks for all you good wishes and be here for me,even if we are not close I know you guys are here, and blessings to you an your families too,from your friend Jesika aka eevo
Ps.i did enjoyed my lactose free gelato,talenti the best,no Popsicle in this area,but a half pint is fine hope you tried ,you will enjoyed.
__________________

.
eevo61 is offline   Reply With QuoteReply With Quote
Old 04-12-2014, 02:36 PM #10
RSD ME RSD ME is offline
Senior Member
 
Join Date: Sep 2013
Posts: 1,500
10 yr Member
RSD ME RSD ME is offline
Senior Member
 
Join Date: Sep 2013
Posts: 1,500
10 yr Member
Default

Hi Eev, I just wanted to let you know that I was thinking of you and hope you're recovering quickly from your surgery. I hope you're breathing better. Keep enjoying your gelato! You deserve to treat yourself. With loving prayers, Renee.
__________________
RSD ME
.
RSD ME is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
eevo61 (04-26-2014)
Reply


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
Hello- I'm new. Very depressed, pain is awful... Advice please Vandew New Member Introductions 2 02-18-2012 02:27 AM
Yeah, Finally, revision surgery lostmary Reflex Sympathetic Dystrophy (RSD and CRPS) 7 10-20-2008 02:22 PM
Finally a Surgery Date JAMY Thoracic Outlet Syndrome 10 03-27-2007 10:38 AM
This pain is awful. My first time. Star Fibromyalgia and Chronic Fatigue 3 12-13-2006 11:56 AM
This pain is awful. My first time. Star Fibromyalgia and Chronic Fatigue 0 12-12-2006 09:43 PM


All times are GMT -5. The time now is 03:22 PM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.