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Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS) |
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04-21-2014, 04:39 AM | #31 | ||
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I keep beating myself up because I can no longer do simple tasks.
I am in the process of scheduling DBS.Life is just one big hassle, DX 2005 Symptoms 1999 |
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"Thanks for this!" says: | eevo61 (04-21-2014) |
04-21-2014, 11:00 PM | #32 | ||
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Junior Member
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Quote:
What I am saying is, yes it is true we can't lead normal lives but that doesn't mean we can't lead a good life. It takes us longer to complete tasks and some things we can't do at all but we try and that is good. what is DBS? |
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"Thanks for this!" says: | Brambledog (04-22-2014), eevo61 (04-30-2014) |
04-22-2014, 10:55 PM | #33 | |||
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Deep brain stimulation
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"Thanks for this!" says: | RSD ME (04-23-2014) |
04-23-2014, 02:49 PM | #34 | |||
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I can't believe that it's been 16 months & I'm still in mourning process.
I can't rmember all the stages of grief but i think I've been through most of them & revisited them again from time to time. In some ways I've come from the absolute anger (especially at surgeon) to a kind of acceptance. I'm commited to trying to find contentment with whatever good I can still find in life. Still, I feel like somewhat of an empty shell that I need to find a purpose for. The hardest thing is when friends & family ask things like what did you do today? & most days I don't have much eventful to account for. Some days simple tasks are painful & they seem to just not "get it". I still have my work briefcase in my closet that I still cannot bring myself to clean out. Some may think "it must be nice to "retire" early & be disabled." No, not really, I just wasn't ready & certainly NOT THIS WAY with this monster disease. Thanks for reading!
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RSD/CRPS and contracture of left hand and arm after surgery for broken wrist. |
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04-23-2014, 03:12 PM | #35 | ||
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AZDi, you are speaking for every single one of us I suspect....if not on every day, then on too many days...
Bram x
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CRPS started in left knee after op in Aug. 2011 Spread to entire left leg and foot, left arm, right foot. Coeliac since 2007. Patella femoral arthritis both knees. Keep smiling! . |
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"Thanks for this!" says: | allentgamer (04-25-2014), eevo61 (04-30-2014) |
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