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Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS) |
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Your situation all depends on the accuracy of the CRPS diagnosis. What I mean is if you were accurately diagnosed them surgery or any other attempt that would disrupt the nerve could cause much worse pain and symptoms. Once CRPS is in motion the general consensus among experts is not to do anything that could further cause trauma to that same nerve(s). I can personally attest to that horrible scenario because in my case CRPS caused by nerve damage during surgery was originally thought to be a nicked/trapped nerve. The recommendation prior to a thorough and proper evaluation by a neurosurgeon was to re-operate and sever the nerve completely unless it could easily be freed up from the scar tissue. I went ahead with surgery not knowing anything about CRPS and woke up to even more pain and in a much larger area than I had prior to surgery. Since then, it has gotten much worse very rapidly. On the other hand if you do truly have a 'traction injury' to the nerve then steroid injections with anesthetic could very well alleviate pain while the nerve regenerates. This process of regeneration could take quite some time but most studies do indicate that nerve traction injuries do heal. Have you been thoroughly and properly diagnosed by at least 2 well neurosurgeons who are well versed in CRPS II /Causalgia? Did they show you the nerve by ultrasound or MRN? Or did they diagnose the traction injury through diagnostic injections? When did your symptoms start and for how long have you been suffering? This is all helpful information for the others who might chime in. Glad you had a good day, those are rare with CRPS! My advice... tread cautiously with regard to repeat surgery unless you are willing to take the risk knowing that if CRPS is present, that things could get much worse. If I could turn the clock back I would have pushed harder for a neurological consult and MRN prior to the surgery performed after the initial nerve damage occurred. All of my current doctors agree that the rapid/severe progression is a direct result of the second surgery. Please don't take one doctors opinion - My doctor was/is an expert in the field of hip trauma and I respect him for that 100% but he is not a nerve specialist and that was a detriment to me. Wishing you the best, Tessa |
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