Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 05-25-2007, 01:06 PM #1
InHisHands InHisHands is offline
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Quote:
Originally Posted by artist View Post
From the Patients PDF:
"A distinction is drawn between 'warm CRPS-I' and cold CRPS-I. Warm CRPS-I affects 95% of patients. In this form the skin is red and feels hot. Only 5% of patients experience 'cold CRPS-I' from the onset of the condition: the arm/leg feels cold, the skin is blue in colour and circulation is impaired."
Thanks, Artist! You're a big help.

According to this, I am still going along with the assumption I have
cold CRPS I... with the onset it started with cold, blue RSD hand/ arm...

I will go with that assumption, but will talk to my doctor about it!

Quote:
Originally Posted by artist View Post
Rogue420, if you can't find anything else, read these anyway, I don't think (?) the actual experience of the condition is very different between the two types of CRPS.
That is what I was thinking, but could be wrong... *hmm...*

Thanks so much, again, for all you've shared... I will be downloading all that info again. I did before, but a computer crash ruined that all, and I never got the chance to read everything. Will be doing that!
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Old 05-25-2007, 02:40 PM #2
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From what I know, I believe that article means that most people start with "warm RSD" and if not treated, transition to "cold RSD." Really though, the classic presentation of RSD is cold.

Most people also have periods of hot and periods of cold, sometimes changing suddenly many times a day. When I'm up and walking around, my foot/leg is usually warm, and it goes cold very quickly when I stop walking. In the evenings and and night, it's always pretty cold, but usually late at night it starts to get really uncomfortably hot. Most of the people with RSD I've talked to (hundreds, probably, over the past 12 years) describe some periods of hot and some of cold.

I do have a bit of a question though! Does anyone else kind of prefer the cold? When my leg is hot, I feel like the zappy pains are worse. When it's cold, I feel like I have a little bit of numbness or reduced sensation, which is better than actually having to feel EVERYTHING.

-Betsy
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Old 05-25-2007, 07:08 PM #3
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Thumbs up cold or hot

hello, i'm anewbie here as well as to rsd just diagnosed 4 wks. ago. i have read everything i could find but never really knew there was hot or cold. it's kind of funny (not ha! ha! funny) because as i sit here typing on the computer i am wearing a pink glove that belongs to my daughter. my right hand will feel like it's burning sometimes but other times it's cold as ice. i thought that's how everybody was! thanks for the info. you guys have really neat and inspirational sayings and pictures and links. i'm lucky just to figure out how to use this board so forgive me if it's a little bland i'm not very good with the computer. thanks again, jennifer
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Old 05-25-2007, 07:23 PM #4
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Hi Jennifer! nice to meet ya in cyber space.. LOL I get such cold hands.my daughter says, mommy.. please, your hand is cold. I forget!! I also get a sweaty hand and shiney too.I have a hand now that is getting kinda deformed.. all due to RSD the swelling, pain, discomfort is awful... but thank God for this board, eh?? Love, Desi
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