NeuroTalk Support Groups

NeuroTalk Support Groups (https://www.neurotalk.org/)
-   Reflex Sympathetic Dystrophy (RSD and CRPS) (https://www.neurotalk.org/reflex-sympathetic-dystrophy-rsd-and-crps-/)
-   -   Not finding... (https://www.neurotalk.org/reflex-sympathetic-dystrophy-rsd-and-crps-/20332-finding.html)

Linmarie 05-25-2007 11:21 PM

My hands and feet have alway felt cold to me (some coolness but not much to other people's touch, not like Reynaulds) even before the RSD. My hand did start to turn a bluish/purple but now has a red area on it. My legs are always mottled & my knees get purple. But, sometimes my feet will get "hot flashes". Weird. I too, almost always have on socks & slippers. Wish I could wear those cute shoes I see others wearing.
Linmarie

artist 05-25-2007 11:23 PM

Hi Betsy,

Then I don't think there's anything to agree or disagree with :) That small paragraph I quoted was just talking about the starting temperature of the RSD process, but the Guidelines (not an article) agree with you (and me) throughout, that there is "cold RSD" "hot RSD" and "both RSD".

Yes, I'm sure in 10 years times it'll be a whole other story; many of us here believe there are probably many different kinds of RSD, possibly including things like erythromelalgia and Reynaud's....time will tell!

all the best.

PS Here's the PARC link:
http://www.rsdcanada.org/parc/englis...anderlaan.html
"A huge committee of doctors, researchers and experts in Holland worked tirelessly for 5 years to write the standard treatment protocols guidelines for treating CRPS in Holland..."

Linmarie 05-25-2007 11:38 PM

That's what my PM doc recently told me, only he said in 50 years there will be alot of different RSD classifications. I don't like to think the research is going that slowly.
Linmarie

betsyherm 05-26-2007 12:03 AM

I didn't read the whole article...it shows, huh? I probably should have, I'm bored out of my mind (I don't start work until August)...but oh well!

-Betsy


All times are GMT -5. The time now is 05:42 AM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.