[RSD ME]

Does anyone have trouble seeing a doctor anymore? I just got back from my pm dr appt and am told that I may have to see a NP from now on because my pm dr changed his hours to a time I can't be there and that I can't see another dr in the group because they don't like switching patients, although they switched my drs on me once already and np's all the time for that matter. Is it just me or are others having this same thing happen. I don't want to see a np. No offense, but my pm drs are more knowledgeable with rsd. Hope you all are having a better day then me. I also just found out I have endometriosis again. Showed up on my gallbladder pictures. I feel like some of my drs don't care anymore and I'm scared and I just want to cry. I don't know what to do. There aren't that many pm drs in NJ that are good with rsd. Somebody please help me.

[zookester]

I am so sorry Renee that you are feeling this way. If your doctor had to make a change to his schedule and those are days you can't make it in then rest assured you weren't kicked to the curb, rather your schedules are no longer amicable. Is there anyway that you could make it on the days he/she is available or is that impossible for you? I have heard many grumblings about people being pushed off to ARNP's or PA's on a more frequent basis since the new health laws have taken affect. I hope it all works out for you.

Regarding the endo do you have symptoms or did they just alert you to it after viewing the results of your recent surgery? If you do not have symptoms yet then I would try not to worry as hard as that may be. Also, did you not have a hysterectomy? For some reason I thought you did with your previous treatment for endo - if you did and you are on estrogen then you might want to talk to your doctor about the estrogen causing recurrent endo. If you didn't have a hysto then that would be something to consider for resolution of the endo symptoms.

I do hope you feel better after a good nights rest,
Tessa

[RSD ME]

Thanks Tessa.

I'll try to see if I can make my appt when he is available, but that will be only mornings and my husband can only take me after work. Now he will have to take off half a day to drive me. I am worried that my drs won't see me because of my med mal suit I had last year that I dropped because the expert witness said the ortho dr met acceptable std of care even though my wrist is all crooked and I got rsd right after surgery three months later. My med mal lawyer was also a dr and said he thought the ortho dr might be negligent because he didn't do any open surgery and instead did a closed reduction because he was overloaded that night in the er when i broke my wrist. Apparantly a closed reductionc on multiple distal radius fractures has a significantly higher risk of getting rsd than an open surgery. I just needed to know if he hurt me and didn't want him to hurt anyone else and also though he should pay for my med bills if he was at fault. I don't think any dr would do any different if it happened to them or one of their family members. Now I feel like I'm being punished for it and that it's unfair because I'm already permanantly punished by having this horrific rsd. It's like insult to injury. It stresses me out and they are supposed to make me less stressed so that my rsd doesn't flare up.

I've never liked confrontation and never sued before and never will again. It's not my style, but I felt this was serious enough to investigate.

I don't know why I can't see my original pm dr in the group. He always told me that if I need to talk to him he would be there for me and now he's not.

And I know I can be a cranky patient/person sometimes, but I can't help it. The meds I take make me that way sometimes. I would think my drs would understand that.

My gallbladder surgeon showed me a picture of endo he found on my lower pelvis when he was getting my gallbladder out. I had a oopherctomy in april of 2012 and a complete hysterectomy in sept 2012. I had endo both times and was told by my endo specialist in sept 2012 that I was endo free after the surgery. I was put on hormone replacement pills for about six months for stomach pain and hot flashes and it helped the flashes but the pain got worse so he took me off of them. Then the pain got a little better, but not completely better. I have been feeling constant pain down there ever since and have told him on a followup last sept and he said maybe it was the rsd. I am supposed to follow up with him this sept again but will call him tomorrow to see if he can see me sooner. I don't know it he missed some endo or it came back again. Is that possible? I don't know.

Thanks so much Tessa for all of your advice and if you have any more that you can give me about these two things I would really appreciate it. I feel so alone and rejected right now. I'm not a bad person and I just want to feel better. I know I get cranky sometimes, but it's because of the meds I take and I would think my drs would understand that.

Thanks for trying to help me and I will try to do what you suggested. Maybe it will help. I hope you had a wonderful birthday. I didn't mean to bother you on your special day. You are a good friend and a very special person.

I hope you're still feeling better from your treatments. You and everyone else here are always in my prayers. Sincerely, your friend, Renee.

PS - Thanks for helping me to see the positive too. I tend to see only the negative in life alot of times and I'm glad I have a friend like you to help me to see the positive as well. You are alot like my husband. He always is very positive as well. I hope your birthday was great and that the you enjoyed your cake! Take care. From your friend, Renee.

[zookester]

Renee,

No need ever to apologize and please vent away that is what is so great about this forum - we all get it!!

Regarding the lawsuit. No need to explain or feel any shame or guilt in trying to protect yourself and your family from the financial toll that something like this will take on someone, especially when someone else is at fault. I don't think any of us would judge you for trying to stand up for yourself!!

Unfortunately Renee endometriosis can recur in a small percentage of people even after the uterus and ovaries are removed, this risk is even higher if the endo was growing outside of the uterus. Many dietary changes can improve the pain caused by endo especially if consuming foods that are exposed to hormones (ie; dairy products, chicken, beef and trans fats). Additionally there are other things that mimic endometriosis such as PID, Diverticulosis, IBS, Iterstitial cystitis and a few others that you may consider ruling out along with seeking a consult with your OBGYN about your ongoing pain and new findings from your recent operation. Are you still set up for your GI studies?

Regarding your PM - can you place a call to the office administrator or his physicians assistant to inquire about the scheduling issues, to see if there is any alternatives to remedy this short of changing PM's? Don't be afraid to voice your concerns about feeling like your appointments are being intentionally cancelled - it may be coincidental (let's hope it is) but, asking point blank should set you at ease or worse confirm the need to find a new PM. It is important for your overall care to feel confident in your care team!!

Wishing you the best Renee,
Tessa

[RSD ME]

Thanks Tessa for making me feel better about venting and my lawsuit. I've never done anything like a lawsuit before, but I was just so upset when a dr who was a lawyer said my ortho may have caused my rsd. It's been so debilitating both physcially, emotionally and finanacially. I would never have even considered it except I felt that I had to protect my family and others who could have this same thing happen to them. I wouldn't wish rsd on anybody. I don't know if this is the reason my drs are avoiding me or it's just a coincidence and a scheduling problem, but I will take your advice and call them tomorrow and ask straight out. If I have to, I will find another pm dr. Maybe it's for the best anyway because they are upsetting me so much and don't seem to even care.

I am going to call my gastroentrogolist (sp?) tomorrow to set up my GI studies. She wanted me to wait until I'm healed from my gallbladder sugery first and I saw my surgeon today and am feeling better with my upper stomach so I will call her tomorrow. Then I will call my Endo specialist and see what he wants me to do. He will probably want to see me to confirm it's endo I have. I'm pretty sure the endo was growing outside of my uterus prior to my hysterectomy as well as inside. There was alot of it per my dr. If it is endo, do you think they have to remove it surgically again or can they leave it alone since it's apparantly a small amount this time? I would really appreciate it if you could let me know what you think. I hope I don't need more surgery for fear of rsd spread and because I'm having trouble breathing after my last two surgeries. The hospital kept me longer because of my lungs not working properly after surgery. I'm getting so tired of rsd, fibromyalgia, endometerios and surgeries. My mind and body are starting to wear out on me and I don't know how many more times I can go through surgery. It's so hard. I'm sorry I'm venting again. It just seems like I get one thing fixed and then something else happens. I just want a break. Even for a day. I know you have been through so much more. I shouldn't be complaining and it's your birthday and you should be celebrating. You're so nice for taking the time to help make me feel better. And you did make me feel better. Thank you so much for that. I really needed someone to lift my spirits and not feel so alone. And you did that for me. Thanks Tessa. My eyes are starting to water up, but not because I'm sad this time, but because I'm so happy and blessed that I have you as a friend. Now forget about me and go have some more birthday cake. You still have 15 minutes left of your birthday! With loving thoughts, your friend, Renee.

[Vrae]

oh Renee honey... you have a lot going on. I am still under the influence of my procedure today or I would respond more. Hang in there. Don't quit.. keep fighting for the answers you need.

I know it feels like.. well great! one more damn fire hoop. But it just might be the fire hoop you needed. You can do it!

[RSD ME]

Thanks so much for being so nice too Vrae. It means more to me than you know. I'm going to try to keep fighting and not quit. You and Tessa have been through so much more than me, and you are both so strong. I have never been a strong person, but am trying to be more like you guys. It's just so hard. I'm just so darn tired and my heart is getting tired. I can feel it. I lost my only sister to heart problems and it scares me. I know I have to keep trying though for my family. My husband and son still need me even if they don't know it. And I need them and all of you. I'm so glad I have you as a friend too. Thanks for being such a good friend. I hope you feel better soon too. I'm always praying for all of you. I pray every day now. I figure it can't hurt. I hope you can get some well needed rest tonight and feel painfree too. With loving prayers, your friend, Renee.

[visioniosiv]

Renee I wish I had your answers - been thinking about you - - and all of us choose to be here to support you.

[allentgamer]

Dont have any answers.....but have a shoulder to use anytime

[eevo61]

Renee,I'm sorry that you are dealing with so many things at the time,keep the faith and always fight back for what is right of you,don't give up,you already know rsd/crps is so hard to deal with,but don't get disappointment get you,we still have a long road to walk, we are all holding your hand,please never give up,you deserve better days than this awful days,soon the storm will past and you will see a shiny rainbow at the end,be patient , you are such a good friend to all of us, remember ,we are all here,I hope things get better soon,blessings my friend and big to you and your family,from Jesika
Ps. Keep smiling !!!!! Never give up!!!!