Here is a link from Roz about the SCS:
http://www.rsdfoundation.org/en/en_c...uidelines.html

you can chose more than one answer.

Hi Everyone,

Come out, come out where ever you are. We are all bonded by this hell. Their is strength in more.

I checked the last question.

My first consultant (Doc) could not have put one in fast enough. I did not have one because after consulting with at least 2 other opinions, I was told I was not a good candidate for one. Please respond. Hugs, Roz

P. S.- This is my mistake, on the fifth question down it should say:
Did the trial work better than the real implant?

Question # 2: I had some relief from implanted SCS for approx 1 yr

Question # 5: The trial worked much better than the implanted SCS

I had it implanted in 1999 and they shut it off 1 year later. In that years time I ended up having 4 revisions done on it.

Hi Their,
Over 60 views and only 2 replys, that's pretty sad.

I already know I am not a candidate for the SCS.

Please reply. Roz

I haven't had one put in yet, but as my doc said that if I've had my rsd for over 2 years that there would be no nerve blocks, just gonna go with a scs. I'm waiting to see how the answers come out.
Mary

Thanks Mary,

This is exactly why it is vital for those with experience to reply. Hugs, Roz

roz..the views can be the same people checking over and over...to see if others have voted.

and you can vote...and not post a reply, for those who haven't voted yet.

Q1. Did you have a SCS put in?

A. Yes

Q2. If you were given relief from the SCS how long?

A. Very good for about 18 months, then the RSD "migrated" to another area, and the SCS does not cover it anymore.

Q3. Did you still have to take pain meds?

A. Yes, but fewer than before. Now that is has moved, I am taking more than before.

Q4. Any complications after having one put in?

A. Main complicatin is more of an inconvienience than a complication. The scars from the surgery are very painful. (Same thing happened after foot surgery - still hurts after 7 years.) The spot selected for the SCS generator was not large enough and it is puching against the skin from the inside, extremely unconfortable. And the installer did not drive the wore anchors far enough into the verebra, making a shart point from the inside. Nothing health-threatening, though.

Q5. Did the trial work better after the implant?

A. No, about the same.

Q6. Has it affected your mobility in anyway?

A. No

Mike

Hi Mike,

Thanks so much for sharing your wisdom and experience. Wishing you a day full of love and joy. Hugs, Roz

I just re-read my earlier post. WOW! What a lot of tyos. My hands are a little off today. Hope it was still somewhat legible.

Mike