Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


advertisement
Reply
 
Thread Tools Display Modes
Old 04-16-2014, 08:43 PM #1
Adalaide's Avatar
Adalaide Adalaide is offline
Junior Member
 
Join Date: Feb 2014
Location: Utah
Posts: 91
10 yr Member
Adalaide Adalaide is offline
Junior Member
Adalaide's Avatar
 
Join Date: Feb 2014
Location: Utah
Posts: 91
10 yr Member
Default dogs

I was at Costco today with my husband and we saw someone with a service dog. This started a conversation between my husband and me about service dogs. He made some sort of joke about getting one, and I had a lightbulb moment. Having one would prevent me from ever having a situation like I did on Monday with that kid that was out of control stepping on me.

Of course, we also don't have the money to pay for a dog either. You could buy a car for that much money! I'm wondering if anyone else has a service dog and it has helped. I'm thinking that I could try a lot of different avenues. First, when I see my PM doctor next I could see if he would recommend one and maybe my insurance would pay for it. If not, I could start contacting local agencies like the Lions, Elks, etc and see if any of them wanted to jump on board to help. As a last ditch effort, I was thinking I could do the train your own dog thing. I found a local trainer who does group training sessions for dogs for $250 for a month, then will do a couple individual sessions for $300. Since I don't have a lot of experience with training dogs, that would help me get what I needed at a reasonable price.

Anywho, I was wondering if anyone has any advice. I realize this could turn into a long process and right now it's something I'm just tossing around and haven't really decided on. We've always wanted a dog anyway, and having one who could be my companion to help keep me safe and give me a helping paw with everyday tasks seems like a great idea if we do decide to go down that road.
Adalaide is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
eevo61 (04-17-2014), RSD ME (04-17-2014)

advertisement
Old 04-16-2014, 08:50 PM #2
Llynnyia Llynnyia is offline
Junior Member
 
Join Date: Mar 2014
Location: California
Posts: 77
10 yr Member
Llynnyia Llynnyia is offline
Junior Member
 
Join Date: Mar 2014
Location: California
Posts: 77
10 yr Member
Default

Quote:
Originally Posted by Adalaide View Post
I was at Costco today with my husband and we saw someone with a service dog. This started a conversation between my husband and me about service dogs. He made some sort of joke about getting one, and I had a lightbulb moment. Having one would prevent me from ever having a situation like I did on Monday with that kid that was out of control stepping on me.

Of course, we also don't have the money to pay for a dog either. You could buy a car for that much money! I'm wondering if anyone else has a service dog and it has helped. I'm thinking that I could try a lot of different avenues. First, when I see my PM doctor next I could see if he would recommend one and maybe my insurance would pay for it. If not, I could start contacting local agencies like the Lions, Elks, etc and see if any of them wanted to jump on board to help. As a last ditch effort, I was thinking I could do the train your own dog thing. I found a local trainer who does group training sessions for dogs for $250 for a month, then will do a couple individual sessions for $300. Since I don't have a lot of experience with training dogs, that would help me get what I needed at a reasonable price.

Anywho, I was wondering if anyone has any advice. I realize this could turn into a long process and right now it's something I'm just tossing around and haven't really decided on. We've always wanted a dog anyway, and having one who could be my companion to help keep me safe and give me a helping paw with everyday tasks seems like a great idea if we do decide to go down that road.
umm a dog with a docked tail? I cant imagine having a dog around me.
Llynnyia is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
RSD ME (04-17-2014)
Old 04-16-2014, 10:23 PM #3
eevo61's Avatar
eevo61 eevo61 is offline
Member
 
Join Date: Aug 2013
Location: California
Posts: 389
10 yr Member
eevo61 eevo61 is offline
Member
eevo61's Avatar
 
Join Date: Aug 2013
Location: California
Posts: 389
10 yr Member
Default Great idea!

Like you said,you want to feel and be protected,I heard before when I was working , that the process for getting one is like you are actually adopting a child,very difficult and long process ,I used to help patients either blind or with severe glaucoma ,they were verly see shadows In front of them,one day I politely asked why they need the dog,some of then where not completely blind and they told me because of the condition they had ,their dr and medical group contacted the agency where the dog got trained,well I live in California but I'm sure all states have services for people like us,with special needs,back then I did not ask where they get the dog because I never imagine I will or will know someone who need it,shame on me,I asked about everything but I did skip that question,I still frequent the area where I used to work,if I see some of the patients ,I will ask for sure,meanwhile I hope you get one sooner,blessings and good luck from Jesika
__________________

.
eevo61 is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
RSD ME (04-17-2014)
Old 04-17-2014, 02:26 AM #4
PamelaJune's Avatar
PamelaJune PamelaJune is offline
Senior Member
 
Join Date: Dec 2013
Location: Where my heart is
Posts: 1,140
10 yr Member
PamelaJune PamelaJune is offline
Senior Member
PamelaJune's Avatar
 
Join Date: Dec 2013
Location: Where my heart is
Posts: 1,140
10 yr Member
Default Unsuccessful and retired service dogs, rescue dogs

For every successful service dog there are many many more that don't quite reach the required standard. There may be retired service dogs as well? It is quite difficult to qualify for service dogs from what I am led to believe. You could also consider a rescue dog who in the right circumstances may become your true companion who you learn and grow with as you participate in training the dog to suit your needs?
PamelaJune is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
eevo61 (04-17-2014), RSD ME (04-17-2014)
Old 04-17-2014, 07:48 AM #5
catra121's Avatar
catra121 catra121 is offline
Senior Member
 
Join Date: Jan 2010
Location: Illinois
Posts: 1,785
10 yr Member
catra121 catra121 is offline
Senior Member
catra121's Avatar
 
Join Date: Jan 2010
Location: Illinois
Posts: 1,785
10 yr Member
Default

I've heard great things about service dogs and it's something I have considered...but not sure what kind I would get. Even though I have balance issues...I think having a smaller service dog would actually be better for me. One that could retrieve things for me (because sometimes I just can't get things I need because I can't get up), alert people if I need help (I have run into situations where I was "trapped" on the floor for several hours because I couldn't get up and no one walked by), etc. I don't think I am at the point yet where I need a service dog...but as time goes on it may become a necessary step.

One thing though that helps me with the space issue is my walker. I need it for balance and it helps with the pain...but it also has the benefit that people tend to give me a bubble. Not always...there are always exceptions...but I could count the number of those exceptions for an entire year on one hand (and they all happened in Disney World or Disneyland...so not common day occurrences). I don't know why the walker makes such a bigger difference with the space issue than just a cane or crutches (I used both of those before)...but it does. Maybe because it's harder to ignore and not as easy to miss (though I don't think I understand how you can miss crutches).

Anyway...just wanted to share my thoughts on both...sorry for getting a little off topic. I think the service dog is a good idea...but it would also be a lot of work and it is costly. There might be other options that could serve the same purpose that would cost less (like the walker). I got my walker on amazon.com for about $100 and it's a good one (4 wheels, canvas bag under seat so it's easy to fold up, large 8 in wheels so it works well even on uneven or rough surfaces, pink, shorter height since I'm only 5ft tall, etc). But it depends on what your main needs would be for a service dog. If it's just the space thing for now and/or balance needs...then a walker might help with that...but if you need things retrieved for you, help opening doors, etc then a walker obviously cannot do those things (though it is handy to use the basket under the seat to keep things with me that I might need and to carry things).

I think I also saw a post on here about service dogs in the past...definitely do a search because I know people posted with their actual experiences and they were all pretty positive.
catra121 is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
eevo61 (04-17-2014), RSD ME (04-17-2014)
Old 04-17-2014, 10:56 AM #6
RSD ME RSD ME is offline
Senior Member
 
Join Date: Sep 2013
Posts: 1,500
10 yr Member
RSD ME RSD ME is offline
Senior Member
 
Join Date: Sep 2013
Posts: 1,500
10 yr Member
Default

I don't know about service dogs, but it sounds like a great idea. I love dogs and have always had them. I had to put my little shiapoo to sleep yesterday because she had diabetes and was not responding well to all the shots of insulin that my husband had to give her. We tried, but it was too traumatizing on her. She was an old lady, but we loved her. She was my Great Aunt's dog and I promised to take care of her when she passed away last November. I did my best, but feel so gulity and sad. I can't stop crying. I loved that dog. I know this thread is about service dogs and am sorry I got sidetracked. This has been an awful week for me. I think you should look into the service dog idea. I know they train service dogs in Morristown NJ. They train alot of german sherpards and have been around for a long time. I can't remember the name of the company, but will look it up if you want me to. I don't know where you live, but you may want to give them or someone in your area a call about this great idea you had. Maybe they will start training more dogs to help people with rsd.
__________________
RSD ME
.
RSD ME is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
eevo61 (04-17-2014), PamelaJune (04-18-2014), zookester (04-17-2014)
Old 04-17-2014, 01:47 PM #7
Adalaide's Avatar
Adalaide Adalaide is offline
Junior Member
 
Join Date: Feb 2014
Location: Utah
Posts: 91
10 yr Member
Adalaide Adalaide is offline
Junior Member
Adalaide's Avatar
 
Join Date: Feb 2014
Location: Utah
Posts: 91
10 yr Member
Default

I'm so sorry about your dog. My husband recently had to put his cat to sleep because he was diabetic and just kept getting sick and it was just time. My husband was a wreck for a while.

I grew up in PA where I know there are a lot of companies and organizations close by that train service dogs. While I absolutely love it, I live in Utah now and there doesn't seem to be a wealth of such things around here. Obviously that needs to be corrected, because not everyone can travel obscene distances for a dog. I know I can't. I don't do well in winter because of my Raynaud's and I don't travel well in summer because of my heat allergy. So, it's going to be local(ish) if I want one. Colorado or Idaho wouldn't be bad drives, or maybe western Wyoming. Other than that I doubt I could get any farther. But, I have nothing but time on my hands, love to learn and read and am an ace at research. If there is one thing I can do it is learn something. So I can learn what I need to to go into training my own with the help of a professional trainer with my eyes wide open on what I'm getting into.
Adalaide is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
RSD ME (04-17-2014)
Old 04-17-2014, 01:56 PM #8
daylilyfan daylilyfan is offline
Member
 
Join Date: Oct 2006
Location: ohio
Posts: 405
15 yr Member
daylilyfan daylilyfan is offline
Member
 
Join Date: Oct 2006
Location: ohio
Posts: 405
15 yr Member
Default

I have written quite a bit about service dogs on this forum, so I will just give links to those threads. However... After being around the service dog "world" now for over 5 years, I no longer recommend anyone train their own dog unless they have had EXTENSIVE background in training obedience dogs, including at least to CDX level, preferably UD. Even then, I have read over and over and over again of people thinking they can train their own dog, and in reality, the dogs will not get the correct training for public work. I have had over 40 years training experience and taught classes, showed competitively etc... And still, training my own dog was quite a challenge, and expensive.

If your dog is not properly trained for public work, it is a liability. To your health, and to other people. People, and their children do very dumb things around dogs, especially service dogs and the risk of injury is not to be ignored... Especially in a society where everyone sues for every thing. I had one toddler come flying out of no where, grab my dog and tumble her to the floor, landing heavily on top of her. I do not have children, she is not around children very often. If you do not constantly keep up your training for these type situations, and the dog were to do anything that would injure a child... It could be very expensive. I heard of one instance where a young child tried to jump over a service dogs leash, fell, hit his head on a store shelf. Kid cut his head, required a couple stitches. Parent sued service dog owner and the store. Cost the service dog owner several thousand dollars because they did not have proper insurance. I carry a very high $$$ insurance policy for liability on my dog.

Places like Canine Companions for Independence do not charge for their dogs. Most of the GOOD reputable service dog organizations do not charge. But there are a LOT that put out under trained dogs at very high prices. Even though CCI does not charge, you will be required to travel to their facility to stay for 1-2 weeks to be matched with a dog, and to get basic training to learn to use the dog. You pay for that yourself.

CCI was featured on a PBS special a couple years back that can be found on YouTube, and worth watching. I believe it was called Through a Dogs Eyes, but not 100% sure. The woman who was featured is Jennifer Arnold. That should help find it on YouTube.

Here are the links to other threads about service dogs here in the RSD forum.
http://neurotalk.psychcentral.com/sh...ht=Service+dog

http://neurotalk.psychcentral.com/sh...ht=Service+dog

There is also a service dog or service animal sub forum here on NeuroTalk, in the Pets forum.

Also.... About training your own dog. Even though I did things right in picking a dog, my dog has had some issues with bladder infections. I just got back from the vet today, and even though she is still a young dog, we are waiting on test results because it looks like she may have some sort of kidney disease. This may mean her retirement. IF she was a "Program" dog, the Program would take her back, rehome her into a pet home, and place another dog with me. Instead, since I can only afford one dog, and I won't rehome her... This means I could go many years with a sick dog, then get a puppy, start all over, and be about 3 years for that pup to learn to what I need it to. IF that pup ended up having what it takes for public work... As way more than half don't make it, even with a very experienced trainer.

Also, in one if the posts, I mention the organization IAADP. They no longer have sponsors covering medications, flea and tick products etc. 3 weeks ago, I paid (with discount from my vet) about $240 for annual exam, shots, flea and tick preventative and heartworm preventative. The cost is higher depending on the size of dog. Josie is 47 lbs, so she squeaks in under 50 lbs, or the cost would be even higher.
daylilyfan is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
anon6715 (04-17-2014), Brambledog (04-18-2014), catra121 (04-18-2014), RSD ME (04-18-2014)
Old 04-18-2014, 06:54 AM #9
catra121's Avatar
catra121 catra121 is offline
Senior Member
 
Join Date: Jan 2010
Location: Illinois
Posts: 1,785
10 yr Member
catra121 catra121 is offline
Senior Member
catra121's Avatar
 
Join Date: Jan 2010
Location: Illinois
Posts: 1,785
10 yr Member
Default

Quote:
Originally Posted by daylilyfan View Post
I have written quite a bit about service dogs on this forum, so I will just give links to those threads. However... After being around the service dog "world" now for over 5 years, I no longer recommend anyone train their own dog unless they have had EXTENSIVE background in training obedience dogs, including at least to CDX level, preferably UD. Even then, I have read over and over and over again of people thinking they can train their own dog, and in reality, the dogs will not get the correct training for public work. I have had over 40 years training experience and taught classes, showed competitively etc... And still, training my own dog was quite a challenge, and expensive.

If your dog is not properly trained for public work, it is a liability. To your health, and to other people. People, and their children do very dumb things around dogs, especially service dogs and the risk of injury is not to be ignored... Especially in a society where everyone sues for every thing. I had one toddler come flying out of no where, grab my dog and tumble her to the floor, landing heavily on top of her. I do not have children, she is not around children very often. If you do not constantly keep up your training for these type situations, and the dog were to do anything that would injure a child... It could be very expensive. I heard of one instance where a young child tried to jump over a service dogs leash, fell, hit his head on a store shelf. Kid cut his head, required a couple stitches. Parent sued service dog owner and the store. Cost the service dog owner several thousand dollars because they did not have proper insurance. I carry a very high $$$ insurance policy for liability on my dog.

Places like Canine Companions for Independence do not charge for their dogs. Most of the GOOD reputable service dog organizations do not charge. But there are a LOT that put out under trained dogs at very high prices. Even though CCI does not charge, you will be required to travel to their facility to stay for 1-2 weeks to be matched with a dog, and to get basic training to learn to use the dog. You pay for that yourself.

CCI was featured on a PBS special a couple years back that can be found on YouTube, and worth watching. I believe it was called Through a Dogs Eyes, but not 100% sure. The woman who was featured is Jennifer Arnold. That should help find it on YouTube.

Here are the links to other threads about service dogs here in the RSD forum.
http://neurotalk.psychcentral.com/sh...ht=Service+dog

http://neurotalk.psychcentral.com/sh...ht=Service+dog

There is also a service dog or service animal sub forum here on NeuroTalk, in the Pets forum.

Also.... About training your own dog. Even though I did things right in picking a dog, my dog has had some issues with bladder infections. I just got back from the vet today, and even though she is still a young dog, we are waiting on test results because it looks like she may have some sort of kidney disease. This may mean her retirement. IF she was a "Program" dog, the Program would take her back, rehome her into a pet home, and place another dog with me. Instead, since I can only afford one dog, and I won't rehome her... This means I could go many years with a sick dog, then get a puppy, start all over, and be about 3 years for that pup to learn to what I need it to. IF that pup ended up having what it takes for public work... As way more than half don't make it, even with a very experienced trainer.

Also, in one if the posts, I mention the organization IAADP. They no longer have sponsors covering medications, flea and tick products etc. 3 weeks ago, I paid (with discount from my vet) about $240 for annual exam, shots, flea and tick preventative and heartworm preventative. The cost is higher depending on the size of dog. Josie is 47 lbs, so she squeaks in under 50 lbs, or the cost would be even higher.
Thank you for posting...I KNEW I had read about service dogs on here before and all of your information has been very helpful. You bring up some very great points about the costs of having a service dog...many things that people probably don't generally think about. That's very helpful and helps us see the whole picture. Thanks.
catra121 is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
RSD ME (04-18-2014)
Old 04-18-2014, 12:56 PM #10
Brambledog Brambledog is offline
Senior Member
 
Join Date: Jul 2012
Location: England
Posts: 1,122
10 yr Member
Brambledog Brambledog is offline
Senior Member
 
Join Date: Jul 2012
Location: England
Posts: 1,122
10 yr Member
Default

Brilliant post daylily

Bram.
__________________
CRPS started in left knee after op in Aug. 2011
Spread to entire left leg and foot, left arm, right foot.

Coeliac since 2007.
Patella femoral arthritis both knees.

Keep smiling!
.
Brambledog is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
RSD ME (04-18-2014)
Reply


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
What if we were dogs? lurkingforacure Parkinson's Disease 8 04-07-2013 06:40 AM
My dogs heatherm176 Pets & Wildlife 2 02-09-2013 02:10 PM
I'm sorry, but I cant let your dogs out. Dejibo The Stumble Inn 26 08-18-2011 02:08 PM
Question about training adult dogs for service dogs. tovaxin_lab_rat Service & Support Animals 12 02-16-2009 05:12 PM
seven dogs Doodle bug7 Pets & Wildlife 2 10-19-2007 02:26 PM


All times are GMT -5. The time now is 11:07 PM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.