Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 04-18-2014, 11:55 AM #1
toepain2013 toepain2013 is offline
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Hi Friends,

I'm located in Seattle and curious if anyone knows of a CRPS support group.

Does anyone know of any in Seattle? I can't seem to find any (online or by contacting people locally).

Are any of you in Seattle or nearby. Would any of you be willing to attend a weekly or monthly support group in Seattle? I'll organize it and try to find a location.

Let me know gang.
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Old 04-18-2014, 12:59 PM #2
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I'd join a local CRPS group like a shot lol, but I'm in the UK, and trying to find anything like that is hopeless, even through the NHS, which should provide something! I've thought about organising one myself, but I'm just not sure I have the energy right now and don't want to let other folk down... Maybe one day

Bram.
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CRPS started in left knee after op in Aug. 2011
Spread to entire left leg and foot, left arm, right foot.

Coeliac since 2007.
Patella femoral arthritis both knees.

Keep smiling!
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Old 04-18-2014, 01:26 PM #3
RSD ME RSD ME is offline
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Hi Toe, Maybe RSD Hope or the RSDSA Foundation online may have support groups listed. I haven't joined one because the closest one for me is in Paterson NJ and that area ain't too safe. Lots of gang bangers and guns so I chose this online forum instead. It's much safer and I've made alot of good friends here who are very supportive. I hope you can find one close to you. With loving prayers, Renee.
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Old 04-18-2014, 02:48 PM #4
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Yea, I love the forum -- don't get me wrong. I just, I want to hug someone. It sounds so dumb, but I just want a hug and I want to give someone else who is in pain a big ole, warm hug.

I suppose I'll just have to hug my dog for now
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Old 04-18-2014, 03:26 PM #5
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I would join one too. You would think there would be one in London, right?

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Old 04-18-2014, 03:33 PM #6
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Lol, maybe we should all take some cold comfort from the fact that we are so rare and special.....??!

Bram.
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CRPS started in left knee after op in Aug. 2011
Spread to entire left leg and foot, left arm, right foot.

Coeliac since 2007.
Patella femoral arthritis both knees.

Keep smiling!
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Old 04-19-2014, 12:47 AM #7
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Quote:
Originally Posted by toepain2013 View Post
Hi Friends,

I'm located in Seattle and curious if anyone knows of a CRPS support group.

Does anyone know of any in Seattle? I can't seem to find any (online or by contacting people locally).

Are any of you in Seattle or nearby. Would any of you be willing to attend a weekly or monthly support group in Seattle? I'll organize it and try to find a location.

Let me know gang.
Hi toepain2031,

What a great idea! I live outside of Seattle, traveling would be my challenge in joining into a formal support group but, I would be happy to try when I am able. If you get things rolling.. please let me know.
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Old 04-21-2014, 12:35 PM #8
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Will do!

Interest seems a little low to merit a support group, but I still may look into organizing something. I'm going to talk to my pain doctor at the next appointment and see if he knows of anything / if he has patients that might be interested.
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Old 04-21-2014, 06:16 PM #9
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How toe,i was about too suggested you rsds.org or rsd hope but rsd Renee already did,I think many of us previously to be in this forum we already wasted all our option on where to get some kind of support and information,so,here was one of the places I though it would be good to express your concerns,hope you do research in those other websites and hopefully find what you need,yes ,we all need a gently,warm and soft hug often,for now we can only send you hugs by wishing you the best and hope you get better in all the ways soon ( physically and emotionally ),wish you the best ,blessings as well from Jesika
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Old 04-21-2014, 08:01 PM #10
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This is for you Toe . This is for everyone else
I would join a group too if I could find one.
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