Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 05-24-2007, 12:05 PM #1
cjay cjay is offline
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Confused Hearing problems

Has anyone here had any issues with their hearing since getting RSD? About 1 yr after being dx with RSD, I started having hearing problems. I've been tested for Mineres' and just recently I was also given a CT scan to check for an Acoustic Neuroma. Every test that they done has come back negative. My hearing loss is not normal according to my Drs. They definitely say that something is wrong but stumped as to what is the cause of it. I'm just wondering if it's possible that the RSD is the culprit here?

Any help or suggestions would be greatly appreciated.

Cjay

P.S. Also just had my eyes tested and the Optomotrist says that my Optic nerve is very irregular in shape. He's very concerned about it, so he's going to run some specialized tests. All the normal tests he did don't show any signs of Glaucoma. Wondering if RSD could also be playing apart in this?
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Old 05-24-2007, 12:47 PM #2
InHisHands InHisHands is offline
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Hi there.

Since developing RSD I have had optic nerve problems, as well (called psuedo papilledema -looking like an elavated and inflammed optic nerve-), which were not there before!

Recently I have started losing hearing totally in my one ear, and it is apparently complications from RSD (in addition to migraines, ringing in the ears and tingling-- all neurological).


RSD is neurological, and my drs. assume all of this is from the RSD (since it is neurological in nature).

Do you lose all of your hearing at times or just some?


I think it all is indeed from the RSD. Somehow... who knows?!

I have had brain MRIs and every thing comes up normal.
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Old 05-24-2007, 01:00 PM #3
cjay cjay is offline
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Default Hearing problems

I've got hearing loss in both ears but the left one is the worst. I'm basically deaf in my left one. My loss is all of the time. My right ear seems to be better at times but still have a hard time in certain situations.

I kind of been thinking on the same lines that this all has to be connected somehow I'm at my wits end with all that is going to He** with me...don't know how much more I can deal with.

Thanks for your reply

Cjay
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Old 05-24-2007, 02:22 PM #4
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Default Meineres

I have hearing problems, but when they tested me it came back as meineres.

Almost completely deaf in left ear, and serious ringing in the right. The left used to give me atacks at first that would roar a couple days followed by some very serious spinning.

After a few years of that, the left ear is now just feeling clogged up with a very high pitched ring 24/7. They havent said it is RSD related but wouldnt surprise me either.

I kinda like the deaf ear at night
Put the good ear in the pillow, and sleep in total quiet cept for the ringing lol.

Although talking on the phone is becomong increasingly difficult as the ringing in both ears over rides peoples voices. Even watching TV has become difficult, all the sounds just blend together in one big jumble of noise.

Sorry about all that is goin wrong with you, this RSD is a monster!
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Old 05-24-2007, 02:38 PM #5
InHisHands InHisHands is offline
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This is SO strange... my left ear is the ear that acts up too!
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Old 05-24-2007, 04:20 PM #6
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for starting this thread. I had a major flare up and lost hearing in both ears for a short period of time. Just stood looking at my business partners lips moving without hearing a sound. When my hearing came back it was not what it had been, and it still comes and goes. I noticed I had to have the tv at full volume at times. I have not had it checked as that is just one more expense, and I do not want to have to see in black and white one more thing RSD has taken away . Only sorry that others have to have this problem, but at least I know now my mind isn't playing games with me. Carose
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