Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


advertisement
Reply
 
Thread Tools Display Modes
Old 04-15-2014, 04:18 PM #1
Vrae's Avatar
Vrae Vrae is offline
Member
 
Join Date: Apr 2011
Location: Denver
Posts: 703
10 yr Member
Vrae Vrae is offline
Member
Vrae's Avatar
 
Join Date: Apr 2011
Location: Denver
Posts: 703
10 yr Member
Default SGB & Bilateral LSB

Okay, so my doctor rules! He let me take my music and my studio noise cancelling headphones in with me. This made ALL the difference!! Put my tunes on, they gave me sedation, went to my warm happy place… it was all good! This was the easiest one yet! REALLY! They couldn’t believe that I was laughing and smiling before I even left the table. I talked with the nurse before hand and said would you tell me before he does anything painful so I can brace myself and she said I will lightly rub your shoulder. That worked. I would just do a calming breath and that was enough. They couldn’t believe it either, what a different some music made.

So I have gotten some relief, but am also still pretty drugged. My eye is a little droopy but they told me to expect that. They ended up doing a bilateral Lumbar which I was a little surprised about. I thought we were only doing one side, but cool. He is getting aggressive because CRPS II is getting aggressive with me. The Neck thing, IMO, was easier than the back. Maybe it’s the steroid that goes in my back that is so darn uncomfortable. I have had a few uncomfortable moments in my neck, but NOTHING in comparison to the pain I’ve been having everywhere.

My foot has warmed up again. I’m so happy about that. Man it was FROZEN when I went in today.

I am sooooo sleepy. I will update again later tonight. You guys are the best!! Thanks for holding my hand on this beachy Tuesday!

Vrae
__________________
CRPS II Full Body via L5-S1 Discectomy Surgery in 2004
Symptoms started upon waking from surgery in right foot/leg, mirrored to left foot/leg and then EVERYWHERE else.

Vision without action is a daydream. Action without vision is a nightmare. Japanese proverb,
Vrae is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
eevo61 (04-15-2014), fbodgrl (04-16-2014), Nanc (04-15-2014), zookester (04-15-2014)

advertisement
Old 04-15-2014, 04:58 PM #2
Brambledog Brambledog is offline
Senior Member
 
Join Date: Jul 2012
Location: England
Posts: 1,122
10 yr Member
Brambledog Brambledog is offline
Senior Member
 
Join Date: Jul 2012
Location: England
Posts: 1,122
10 yr Member
Default

So happy for you Vrae

I am sending calming, soothing, keep-going-with-the-warmth-and-nice-feelings vibes your way....



Bram.
__________________
CRPS started in left knee after op in Aug. 2011
Spread to entire left leg and foot, left arm, right foot.

Coeliac since 2007.
Patella femoral arthritis both knees.

Keep smiling!
.
Brambledog is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Vrae (04-15-2014)
Old 04-15-2014, 06:35 PM #3
zookester's Avatar
zookester zookester is offline
Member
 
Join Date: Jun 2013
Posts: 583
10 yr Member
zookester zookester is offline
Member
zookester's Avatar
 
Join Date: Jun 2013
Posts: 583
10 yr Member
Default

Doing the happy dance for you.. and I'm not even gimpn' this time!!
Head phones 'check' for next procedure, thanks for sharing that little tidbit of gold.

Rest well my friend,
Tessa
zookester is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
eevo61 (04-30-2014), Vrae (04-15-2014)
Old 04-15-2014, 06:44 PM #4
eevo61's Avatar
eevo61 eevo61 is offline
Member
 
Join Date: Aug 2013
Location: California
Posts: 389
10 yr Member
eevo61 eevo61 is offline
Member
eevo61's Avatar
 
Join Date: Aug 2013
Location: California
Posts: 389
10 yr Member
Default Vrae get plenty of rest!

I'm glad everything went well Just remember even if I insist too much,do not excersite or move too much,get plenty of rest and relax,you might experience some discomfort tomorrow and the following day,is normal,but as long as you rest you'll be fine, happy for you,blessings and take it easy ,ok! blessing from Jesika
Ps. You want music? Here is some to relax you,enjoy it !
__________________

.
eevo61 is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Vrae (04-15-2014)
Old 04-15-2014, 08:17 PM #5
Phaedra's Avatar
Phaedra Phaedra is offline
Junior Member
 
Join Date: Apr 2014
Location: Appomattox Va
Posts: 79
10 yr Member
Phaedra Phaedra is offline
Junior Member
Phaedra's Avatar
 
Join Date: Apr 2014
Location: Appomattox Va
Posts: 79
10 yr Member
Default

Glad to here this went so well for you today.
Phaedra is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
eevo61 (04-30-2014), Vrae (04-15-2014)
Old 04-15-2014, 09:04 PM #6
Vrae's Avatar
Vrae Vrae is offline
Member
 
Join Date: Apr 2011
Location: Denver
Posts: 703
10 yr Member
Vrae Vrae is offline
Member
Vrae's Avatar
 
Join Date: Apr 2011
Location: Denver
Posts: 703
10 yr Member
Default

Thanks so much for the support! I really do appreciate it more than you know!

My lower back is a bit uncomfortable but I kind of expected that. I have some numbness in my .... everything.. lol. But I went in with my arm being at about 8.5 and it's about 2.5. My lower back is hurting a little more than when I when I went in. It's aggravated from the actual injection and well flo doesn't help things either. Maybe I'll put a patch on it if it doesn't settle down.

My eye is all better. No more drooping. yay!

Oh and I don't mean to sound like a headphone snob. I use them for work. I am a video producer, or I was, or I hope to be again some day. And I was trying to drive home that I could NOT hear all the sounds of the procedure room, that made it extra wonderful! It made it much easier to drift away and not get so amped up over what was going on. Well that and the great music I was listening to.

Well, we've splurged and ordered out for dinner and the doorbell just rang.. yay! Did I mention they gave me steroids? ok, ok, I know they probably haven't kicked in yet.


Vrae
__________________
CRPS II Full Body via L5-S1 Discectomy Surgery in 2004
Symptoms started upon waking from surgery in right foot/leg, mirrored to left foot/leg and then EVERYWHERE else.

Vision without action is a daydream. Action without vision is a nightmare. Japanese proverb,

Last edited by Vrae; 04-15-2014 at 09:53 PM. Reason: Forgot the very important word "NOT" I could NOT hear all the sounds of the procedure room & that was great!
Vrae is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
eevo61 (04-30-2014), zookester (04-15-2014)
Old 04-15-2014, 09:46 PM #7
Lottie Lottie is offline
Member
 
Join Date: Nov 2013
Location: United States
Posts: 363
10 yr Member
Lottie Lottie is offline
Member
 
Join Date: Nov 2013
Location: United States
Posts: 363
10 yr Member
Default

Hey vrae, so glad it went smoothly brave girl! Be well~lottie
__________________
1999 Chronic spine pain related to Degenerative Disc
Disease,
Sept 2001. C6 / C7 discectomy & fusion.
Jan. 2005 L5/S1 discectomy and Artificial Disc Replacement.
July 2011 removal of broken
.
Artificial Disc Replacement.
Woke up in recovery room with RSD Monster.:
.

Aug 2011 Stabilization of spine at L3/L4/L5.
October 2014 Rheumatoid Arthritis.
Lottie is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
eevo61 (04-30-2014), Vrae (04-15-2014)
Old 04-15-2014, 10:09 PM #8
RSD ME RSD ME is offline
Senior Member
 
Join Date: Sep 2013
Posts: 1,500
10 yr Member
RSD ME RSD ME is offline
Senior Member
 
Join Date: Sep 2013
Posts: 1,500
10 yr Member
Default

I'm glad your doing okay Vrae and that everything went well. I'm rooting for you to get better soon!
__________________
RSD ME
.
RSD ME is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
eevo61 (04-30-2014), Vrae (04-15-2014)
Old 04-15-2014, 10:22 PM #9
Nanc's Avatar
Nanc Nanc is offline
Member
 
Join Date: Jan 2011
Location: VA
Posts: 975
10 yr Member
Nanc Nanc is offline
Member
Nanc's Avatar
 
Join Date: Jan 2011
Location: VA
Posts: 975
10 yr Member
Default

Yay! Been thinking about you all day on this beachy Tuesday . So glad things went well for you. Droopy eye and warm foot = great signs!!! That means they hit the right mark! Sounds like you did so well, you should be proud of yourself! I know I am proud of you I tend to agree with you, the neck was a little easier on my then the back too. I am glad they gave you sedation since they were doing both SGB & LSB..

When you are finished with your dr can you send him my way?? I definitely need a good one.

Take it easy!
Nanc
Nanc is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
eevo61 (04-30-2014), Vrae (04-15-2014)
Old 04-15-2014, 10:35 PM #10
Vrae's Avatar
Vrae Vrae is offline
Member
 
Join Date: Apr 2011
Location: Denver
Posts: 703
10 yr Member
Vrae Vrae is offline
Member
Vrae's Avatar
 
Join Date: Apr 2011
Location: Denver
Posts: 703
10 yr Member
Default

Quote:
Originally Posted by Nanc View Post
Droopy eye and warm foot = great signs!!!
You crack me up!
__________________
CRPS II Full Body via L5-S1 Discectomy Surgery in 2004
Symptoms started upon waking from surgery in right foot/leg, mirrored to left foot/leg and then EVERYWHERE else.

Vision without action is a daydream. Action without vision is a nightmare. Japanese proverb,
Vrae is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Nanc (04-16-2014)
Reply


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
bilateral tos tinesh01 Thoracic Outlet Syndrome 12 10-15-2013 10:20 AM
Bilateral PN Following Hip Replacement Zman Peripheral Neuropathy 10 05-04-2012 04:14 PM
Nothing Bilateral here RX Horatio Peripheral Neuropathy 0 01-08-2012 10:16 AM
When you guys say bilateral... brainedout Trigeminal Neuralgia 8 01-10-2011 08:57 AM
TN bilateral Lynda Trigeminal Neuralgia 6 09-27-2006 12:31 PM


All times are GMT -5. The time now is 01:01 PM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.