Thanks for the info and glad you were a good advocate for yourself. Is it helping you feel better right now? I hope so. Yeah I see very very few docs and if I bring up anything Ketamine they freak. Even PM docs. It's like it is the devil...but persistence is helpful, I give up too easily with docs since I have had this so long, I expect very little, and get that, LMAO

Feel better and tx. Yeah if you don't mind PM me sometime with docs name or number that would be great. I am not in NJ or NY but am on East Coast.

Can't imagine working with docs that fight for you, in a good way, lol. It has been difficult at best ...but I have a PM I like, they are just so conservative. ULTRA.

thanks so much

Can anyone help me understand what symtoms improve with nasal ketamine treatment? Thanks, Lottie

For me it relieved my symptoms of the burning and needle pain I have and takes away the hypersensitivity in my limbs. Ketamine is an anesthetic so it actually numbs the nerves down for some it takes it all away the sensitivity and burning pain for others it just calms it down to be bare able. I use to always have all my skin covered cause the breezes would cause to much pain, but I don't need to anymore. I have gotten more strength back as without the severe pain I can get up and do things like Iam heading home to Alaska and watch my family commercial fish, we live in a cabin in a remote village and before the ketamine nasal spray I couldn't go I stayed home on a couch now I can ride four wheelers and be on the beach with my family. I cant thank my doctors enough for helping me to have more of a life. I do still have my limits and flares here and there but before the ketamine I was in the ER and most times hospitalized for up to 10 days in flares every 2-3 weeks now I have only gone in after 6 months and that was due to a major fall that really flared me up. before just a dog stepping on me or a scratch would do that. I know my aunt is the same with it helping her. I don't know how others have done with it, I know of one person having a reaction to it and she had a too high dose and she had a bad hallucination, everyone is different on what they can handle and how it helps. But just from my perspective its been my miracle.

Samantha

For me it reliefs my pain ,and also helps with my anxiety I have.but for me the biggest thing it does is knocks down my inflammation in my face ,stomache ,limbs exc..helps me digest my food better.i have major stomache issues.best of luck Danny

Thank you for responding alaska49 and 89danboy! So glad that someone responded to Lottie's question. I have been waiting. So there is relief to the muscle and joint pain then?

The compound Ketamine creams would/should help with muscle and joint pain also right?

I am adjusting a med right now that should take about a month to level out. Once that is done my doc has said he will give me the compound. I could tell he didn't know anything about the nasal spray when I mentioned it. I would love to hear more feedback on results from those who use it! Also, is it expensive? Thanks in advance!

Free, I've used the ketamine compounded cream and didn't get improvement. Now! I do have to admit that I did not use it daily because its messy and got on my clothes, furniture and seat of my car (applied it to my calf). Maybe I should try it again and ask for it in a less messy formulation.~lottie

I've just gotten the spray after a year of paying (an unholy amount of $) cash for infusions. Spray is unbelievable. Wonderful. As much of an impact as the infusions. I hope I can back off the infusions a bit, without losing progress made, only because of the cost. I'm still pretty severely impaired, but, managing a bit better. Only reason I was able to get infusions, only reason I was able to get the spray: self - advocating!!

Got mine a few days ago. It's a game-changer. Still in a verrrry challenging place but not in the grip of the pain in quite the same way. Good luck with the Rx.

Seriously- that's terrific, good for you!! Can you share your self advocacy tips? Any suggestions on how to convince the doctor and the insurance company? Thanks in advance for any tips you are comfortable sharing. Wishing you continued improvement ~ Lottie

I live in Indiana, a super conservative state, and I have been super active in trying to advocate for myself for ketamine spray. My doctors practically laugh me out of the room every time. They actually have said to me and mother (who I bring to my appointments bc she is an RN) that it is ridiculous to suggest treating me with a "street drug". This is after we have showed them peer-reviewed journal articles and basically done their work for them. They do the same thing with any sort of progressive medicine, even if it isn't pain medicine related. They know very little about CRPS. It is very frightening that they are responsible for my healthcare. The only way I am going to get adequate care is to go out of state and I just don't have the money to do that right now. Luckily, I won't have to travel far once I have saved up the money. There are a cluster of forward-thinking doctors in Chicago, or at least I have heard.

I am pleased to hear about your good results! It gives me hopes for when I finally can get my CRPS treated properly!