Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 06-02-2014, 03:20 PM #11
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I'm going to chime in with my experience.
Whenever my CRPS gives me that chilled to the bone type of feeling sitting in the sun feels great. But my neurologist and the med label says that the Amitriptyline I take makes it where I should stay out of the sun..
So now I'm in a quandary....
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Old 06-10-2014, 09:28 AM #12
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I say go you never know unless you try you could even bring an umbrella to block the sun I agree we should never let the what ifs get in our way of having fun bring music and have a good time
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Old 06-10-2014, 09:54 AM #13
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Quote:
Originally Posted by murgir View Post
I haven't posted in a while. I have been working full time but not sure how much long I can hold out. The pain is so much worse. I think I over worked my hand this week. We have had a camping trip planned for a while and I am not sure if it hurts worse to get in the sun. A friend is going with plans of spending time at the lazy river. Would want to let her know whether or not I will be able to.
I am weird when it comes to sun.... I love it and then my legs hate it. At first for awhile it feels amazing but then it feels as if my flesh is burning so I have to put a blanket or towel over them. I don't know how long it takes. I think it just depends on how hot it is or the day I'm having. But the beginning is so worth it! Its like it melts my pain away. I think it is going to have to be a trial and error thing for you. Good luck.
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Old 06-10-2014, 10:26 PM #14
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Muirgur - did you go camping? Let us know how you did. -Lottie
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1999 Chronic spine pain related to Degenerative Disc
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July 2011 removal of broken
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Aug 2011 Stabilization of spine at L3/L4/L5.
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Old 06-10-2014, 11:38 PM #15
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Thank you all so much. I leave tomorrow. It has been a very stressfully 2 days at work and my upper body has been burning a lot more than usual. Gonna ride around on the golf cart before paying for the water park at the camp ground. Usually ride around the lazy river. Afraid if the stress at work continues I may have to quit. No chance of remission with all the stress. I carry the health insurance for the family, always have. I have been the 32 years and love it most of the time. I will keep in touch.
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Old 06-17-2014, 04:53 PM #16
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I hope you had fun or are having fun. I noticed in my legs that I have about 10 minutes in the sun after that it starts to hurt like that intense sandpaper feeling. So I in and out with the dogs all day. Yes the wind can be a bit to much at times especially if it is cool out.
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Old 06-19-2014, 11:39 PM #17
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Ok camping was great. Wore jeans and a tee shirt the whole time. Not sure if I'm ready to face the reality about being in the sun yet. That may have been a real bummer. Didn't try the water park and was fine with that. Rode around on a golf cart with a top and it was great. No burning until Sunday after getting home, I think from just dreading trying to make it another week at work. Well the story isn't over. Got sick on Monday and was off 2 days with stomach virus v/s rocky mnt. Spotted fever! Taking just in case meds now. Found a attached tick the first day. Have all the symptoms but also the same as stomach virus. I do feel some better today so I think just a virus. At least tomorrow is Friday and I'm ready for a weekend at home. Thank you all for all the advice. I meet a friend of Less the pawn shop guy. Got a picture of her and him with his son. Meeting up her and her husband in Tunica Miss. In Sept. Y'all have a great weekend
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Old 06-19-2014, 11:55 PM #18
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Allen, I am so interested in ghost hunting. It is really neat what you do. I watch all the shows. I would probably be a big chicken if I were to go tho. May give it a try someday. So does being possessed mean getting someone's else's body? Haha. Just thinking ahead
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