Iain Stewart has now signed my Complaint to the Parliamentary and Health Services Ombudsman calling for Norman Lamb to be sacked for Gross Dereliction of Duty in his role as Health Minister and for failing to pass on information vital to this country's economy

[alt1268]

That's great. I'm happy for u. It seems everything that we do takes 3 steps forward. 2 back 4 forward them 3 back again. Eventually we do get 1 forward. But time, patience, and the lords guidance are at the front of our perservercence. I wish I the best.

[Brambledog]

You're not the only one fighting for awareness of this condition...

Well done getting your letter signed by your MP.

Bram.

I know you and a couple of others are also fighting it, just seems I'm on my own so much of the time and trying to get people to stand up and be counted is a heart-breaker

[alt1268]

When I was diagnosed I found only a hand full of dr.s knew what rsd was. But very few know what to do with it or how important it is for early intervention.
I wrote the local legislation about this because it states that all drs and nurses are to be fimiliar with rsd but I can tell you they aren't. I had to teach my pcp. And now my dermatologist

[eevo61]

I hope your guys effort to rsd been recognize and get the enough support soon will pay out, it doesn't matter which country as long as we patients can get he best care ,that's the Main goal, wish you the best and fingers crossed for the best out coming ,every single effort counts,no matter how small you thing it is, for you is a big step, please ,keep spreading the words about rsd and hope soon you will find the right help,here, in Uk and any country,we are all suffering and rsd makes no different in country cultures ,non of that matter,what matter is to keep the hope and the fight ,thank for sharing, Jesika