Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 06-12-2014, 08:40 PM #11
Burnbabyburn Burnbabyburn is offline
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Hi and thanks.

Great advice and yes I eat really healthy and have been a health nut for years. I now look back and see how hyper and anxious and scattered my original post was. WOW, sorry all! I am in a much better, normal, positive place. I forgot about NAC so that is a great reminder and meant to buy GSE tonight, forgot.

Yes the mental part is everything. I usually find a way to get through everything, and keep going. I just went through a few weeks of panic I guess with surgery on the table (as soon as they finally schedule it). My head is in a good place, ahhhhh it feels good to be back to me. . I am can-do queen again. HA HA

I truly appreciate your help, support, posting and time, thank you very much!

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Originally Posted by visioniosiv View Post
Burnbabyburn:

Gotta second Jenna on everything above. What a great post from someone with tangible (unfortunately)experience!

(Non-medical professional disclaimer applies to all of the following):

RSD doesn't magically transfer to new sites via the nervous system going haywire; it transfers via free radicals in the bloodstream. The trauma from surgery causes tons of inflammation locally to the surgical site.... and what's inflammation? Swelling and increased bloodflow in response to a trauma!

Supplementing with antioxidants/free radical scavengers (like Vitamin C as Jenna mentions above) before and after is a very, very good idea. Other options include NAC (N-Acetyl Cysteine), Vitamin E, grape seed extract, and many many others. (VicC is a former poster here for whom I have muchos respect who swore by grape seed extract.)

I don't need to caution anyone about the dangers of supplementation without guidance of a doctor/medical professional, but like many of us here, I'm very "disappointed" (understatement) by the lack of support out there from the medical establishment.

I've personally supplemented with Vitamin C and NAC. 600 mg 3x a day of NAC for 90 days when I first got RSD, and I cycle Vitamin C on and off now as a regular supplement to support my immune system. The general warning in super-dosing Vitamin C is that it can result in kidney stones. There is mixed research on that. It's never happened in my experience.

Another thing Jenna mentioned was avoiding processed food - she's right on point there too! Bigtime unpaired electrons (free radicals) result from processed food, artificial sweeteners, etc etc.

Last but not least - the mental part. Always easier said than done but being confident that you are doing the right thing for you is the most valuable tool you have.
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eevo61 (07-30-2014)

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Old 07-29-2014, 03:05 AM #12
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I also had a surgery and got RSD. It started as an angiogram that said I was fine. To a blocked Femoral artery at the site of the angiogram 7 days later.

They told me there would be permanent damage, but couldnt tell me how much or how bad....etc....for a year or so. Then I would probably know without any help. Yep, I knew alright.

Finally a vascular surgeon sat me down and told me about RSD. Then a few years later a neurosurgeon sat me down and explained that there was really nothing to do but keep moving, and try to relieve the pain through meds and such......but no cure.
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Old 07-30-2014, 08:12 PM #13
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Thanks Kevscar, we do need many times to educate our own dr just forums to feel safe, now I will also add your link to my journal of links and also print the nice list of how take care of rsd patients. Makes such of difference when dr really understand what we are dealing with .
Best wishes to all and gentle hugs,Jesika
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