Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 09-06-2014, 10:45 PM #1
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Hi Catra,
I'm so glad your pregnancy is going well. I am also impressed that you are going through a pregnancy with CRPS.
I have been doing IVF for 4 years and only recently developed my multi location body pain in the last several months (not sure if it is CRPS).
May I ask: are you on any medications while pregnant? If not, how do you cope?
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Old 10-22-2014, 09:44 AM #2
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I'm so sorry you had a bad day, hoping you flare goes away soon. I am so happy for you, Congrats on your pregnancy! please take care of yourself and keep us updated...
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Old 06-09-2014, 01:54 AM #3
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[QUOTE=catra121;1074392]Had a really bad flare up yesterday...the worst one I have had in months. I was on the way to work and all of a sudden my hip started burning, then it went down into my thigh, then knee, etc until it ended at my ankle. The pain spread to my left hip back in December and this has definitely been the worst flare up I've had there yet. I think it was the vibrations in the car that did it...I also hit a couple of rough patches in the road. Because of my already large belly...the seat belt sits differently and right on that area. I was a mess and only lasted 4 hours at work before I had to leave...and I was not very productive those four hours. I spent several hours sitting on the floor in my office with the space heater aimed directly at my hip...which helped just enough that I could consider driving home...which I did. I hate when I have to leave work early or call off because of the pain...but this was a REALLY bad flare up...I cried the whole drive home.

Feeling a little better this morning but it will be a rough night at work. Hopefully the drive into work doesn't kill me...[/QUOTE

Sorry to heard that Catra, when I have bad flare ups hot patches help with th deep bone pain,after I apply my lidoderm or fechtor patch , I normally don't take pain killer ,tramadol is the one I had in combo with other drugs , also my scs helps the neurological pain but the Boone to bone rubbing will be always an issues,no surgery is recommended as long rsd is active ,scs don cover bone pain, I did know that until I got the device on,bad luck,I should know that before.
I hope soon you can be pain free , try to relax and rest all you can for now , we all wish you only the beets for both of you and soon you will be fine. Many blessings and wish you the best Jesika
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Old 06-09-2014, 08:28 AM #4
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Thanks everyone.

I have the day off work today so I'm just going to have restful recovery day. I survived work last night but took it pretty slow and easy all night. I did everything I had to do...but just at a much slower pace and with a lot of resting in between. Thankfully I had a good crew with me last night so things went really smooth even though we were busier than planned. I really hope that after maternity leave I will be able to come back to this same store. Even though it's a long drive...it's totally worth it to work with great people.
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Old 06-09-2014, 11:09 AM #5
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Wish you a great day and a wonderful motherhood
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Old 11-24-2014, 05:25 PM #6
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Quote:
Originally Posted by catra121 View Post
Had a really bad flare up yesterday...the worst one I have had in months. I was on the way to work and all of a sudden my hip started burning, then it went down into my thigh, then knee, etc until it ended at my ankle. The pain spread to my left hip back in December and this has definitely been the worst flare up I've had there yet. I think it was the vibrations in the car that did it...I also hit a couple of rough patches in the road. Because of my already large belly...the seat belt sits differently and right on that area. I was a mess and only lasted 4 hours at work before I had to leave...and I was not very productive those four hours. I spent several hours sitting on the floor in my office with the space heater aimed directly at my hip...which helped just enough that I could consider driving home...which I did. I hate when I have to leave work early or call off because of the pain...but this was a REALLY bad flare up...I cried the whole drive home.

Feeling a little better this morning but it will be a rough night at work. Hopefully the drive into work doesn't kill me...
FLARE-UPS are the worst! I am dealing with it right now. My whole body feels like ice running through my nerves!!!! I have not been out of bed and the holidays are here. LISAR624
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Old 11-25-2014, 09:34 AM #7
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Congratulations on your baby girl!!

So glad you didn't have to deal with the horrible doctor!
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Old 08-04-2014, 08:04 PM #8
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Quote:
Originally Posted by catra121 View Post
Just wanted to give a little update on the pregnancy (in a thread with a less negative title than "Terrible Day") and how it is/isn't affecting my RSD.

Unfortunately...I haven't experienced a full remission or anything like it. I knew there was an outside shot of remission in pregnancy but I wasn't counting on it. If I am honest though...I'm sort of grateful that I haven't experienced a full remission. It took a long time for me to learn all the coping techniques and to learn to just get used to this level of pain. If it suddenly went away and then came back full forced after the pregnancy was over...I don't know if I could cope with that. I mean...I know I COULD...I just don't know how long it would take for me to regain the function and everything afterwards and I will NEED to be functional to take care of the baby. So I am looking at this as a positive thing.

I do have to admit though that on a day to day, moment to moment basis...I feel better than I have in a long time. I still get flare ups and the pain is always worse at the end of the day...but I just don't feel as bad as normal. Maybe it's the pregnancy hormones helping me out...or it could just be that I am so frigging happy and am distracted from the pain because I am always thinking about the baby...or a combination of both. But this is genuinely the best I have felt in years.

As for the pregnancy itself...it is going very well and very smoothly right now. At my 12 week ultrasound the baby was very active and moving around a lot. So far every test for problems has come back negative...and the baby is measuring exactly the size they are supposed to be. Me on the other hand...I'm HUGE already at 14 weeks. People seriously think I'm 5-6 months along because my belly has gotten so big already...but I'm happy about the big belly and proud of it. Makes everything feel so real and makes me even more excited. Sitting on the couch, rubbing my belly...best coping mechanism for the pain I've encountered yet because it just makes me so happy.

I will try to post updates about everything and any affects the pregnancy has on my RSD...mostly because I get so very frustrated at the very small amount of information out there about what it's like to be pregnant and have RSD. I know it will be different for everyone...and each pregnancy is different too...but SOME information is better than none, right?

Hope everyone is doing well.
Hi, Catra,

I haven't been on the site for a long time so I did not know about your
expecting a baby. I am so happy for you. God bless you and keep you
safe and happy.
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Old 11-24-2014, 05:14 PM #9
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Quote:
Originally Posted by catra121 View Post
Just wanted to give a little update on the pregnancy (in a thread with a less negative title than "Terrible Day") and how it is/isn't affecting my RSD.

Unfortunately...I haven't experienced a full remission or anything like it. I knew there was an outside shot of remission in pregnancy but I wasn't counting on it. If I am honest though...I'm sort of grateful that I haven't experienced a full remission. It took a long time for me to learn all the coping techniques and to learn to just get used to this level of pain. If it suddenly went away and then came back full forced after the pregnancy was over...I don't know if I could cope with that. I mean...I know I COULD...I just don't know how long it would take for me to regain the function and everything afterwards and I will NEED to be functional to take care of the baby. So I am looking at this as a positive thing.

I do have to admit though that on a day to day, moment to moment basis...I feel better than I have in a long time. I still get flare ups and the pain is always worse at the end of the day...but I just don't feel as bad as normal. Maybe it's the pregnancy hormones helping me out...or it could just be that I am so frigging happy and am distracted from the pain because I am always thinking about the baby...or a combination of both. But this is genuinely the best I have felt in years.

As for the pregnancy itself...it is going very well and very smoothly right now. At my 12 week ultrasound the baby was very active and moving around a lot. So far every test for problems has come back negative...and the baby is measuring exactly the size they are supposed to be. Me on the other hand...I'm HUGE already at 14 weeks. People seriously think I'm 5-6 months along because my belly has gotten so big already...but I'm happy about the big belly and proud of it. Makes everything feel so real and makes me even more excited. Sitting on the couch, rubbing my belly...best coping mechanism for the pain I've encountered yet because it just makes me so happy.

I will try to post updates about everything and any affects the pregnancy has on my RSD...mostly because I get so very frustrated at the very small amount of information out there about what it's like to be pregnant and have RSD. I know it will be different for everyone...and each pregnancy is different too...but SOME information is better than none, right?

Hope everyone is doing well.
I am so happy for you. I have PCOS so I was never able to have any. I am now 51 in menopause. Truly enjoy your pregnancy! LISAR624
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