They will only have photo shoots at Epcot, Animal Kingdom, or Hollywood Studios...not Magic Kingdom (that would have been my first choice). Epcot it beautiful and I will get to be in the World Showcase part before it opens up to everyone else...which is very neat. I'm VERY much looking forward to this special experience for me and baby.

How cool!

What a great experience :-)

UGH...just need to vent a little bit. I went in for my glucose test today, got to listen to the baby's heartbeat (which is perfect) and they measured my belly. At my last appointment the doctor told me to schedule my 28 week appointment today along with the appointment with the specialist. So when I'm headed out I stop by the desk to do that. They tell me that I don't schedule an appointment through them...what happens is THEY fax over all of my information to the specialist and then the specialist calls ME to set up the appointment. Okay...that's fine. But wait...apparently the doctor (who I was not very thrilled with last time as I think I mentioned) notated on my chart that I DECLINED the specialist. WHAT??!! We seriously spent a good 15-20 minutes talking about how I should see the specialist, why it was important, etc. I am so frigging annoyed and have tried to spend the whole day NOT thinking about this because it is stressing me out which of course we know causes flare ups.

This is a huge reminder of WHY I don't see a doctor for my RSD and why I have been so happy since basically cutting all doctors out of my life. These situations...doctors not listening to me, making errors on my chart, dealing with ridiculous front desk staff...it stresses me out beyond belief. I honestly left the doctor's office today feeling like I have ZERO confidence in these doctors to take care of me and my baby...what a HORRIBLE feeling to have 25 weeks into a pregnancy. And I have no idea what to do about it either. Maybe it's just a supreme over reaction on my part and I'm being overly emotional about the whole thing...but I really have no confidence at all in these people to do the things that need to be done to take care of me with my RSD during delivery. I don't feel like they even care...but at this point what am I supposed to do about it? Go see another doctor? Wait to talk to the specialist? I'm just sort of freaking out now that something is going to go terribly wrong and that these people will not be equipped or prepared to handle it...

Ugh...I need some time to think all of this out once I cool down a bit. Monday I will be calling the office to confirm that they are, in fact, sending over all my information to the specialist because the lady at the front desk said she would have to "check with the doctor" before she could do anything. Thank goodness I have the weekend off to just relax and sort out all my thoughts about this...

That sucks!

Do you have any friends in the area who could possibly recommend another OB/GYN to go to?

Maybe the specialist will be good and have a recommendation.

Most of my doctors I have been seeing for 15 or more years...because I like them and their staff. I lucked out about 5 years back when I started seeing a new Rheumatologist. He us really great. He actually recommended the doctor I see for my RSD (he does Physical medicine, rehabilitation and pain management).

I'm sorry you are having to deal with this. Try and do your best to rest and relax while you are off. Of course we all know easier said than done!

Sorry this happened, Catra. I totally get why you are so upset. But, remember to put your enuergy into what is best for you and baby. I still think the specialist is a good idea and you should stay proactive, avoiding the slippery slope of being reactive which often ends up a waste of precious energy. Wishing you wellness ~ lottie

Hi catra
Been following your posts & frustrations. Most times I don't post much
because of my hand.
Oh, I have fought ignorant Dr. offices so much too!! For 1 thing I think you should make a special point to have them change incorrect info. in your
chart. I think it's important b/c they'll refer back to that as if it's
gospel and in my opinion much of it is ONLY to cover their butts!!
I hope you will somehow find a really good knowledgeable Dr. about RSD
who will help be your advocate.

Thanks guys. I got a call from the specialist's office this morning and got that appointment set up...so I guess they did follow up after I left on Friday. That's the one bit of good news today.

Bad news is that I failed the glucose screening test and now have to go for the 3 hour glucose tolerance test to test for gestational diabetes. The biggest concern I have with that is that IF I have it then I am much more likely to need a C-section which I was hoping to avoid. But it will be what it will be. Unfortunately I can't actually SCHEDULE the 3 hour test...I have to wait for the doctor to call me back (and hope I actually answer the phone) and THEN we can get it scheduled because the front desk staff can't do that. I've been waiting for that call back since 9am...but that too will be what it will be.

And I'm anemic too...found that out from this test on Friday. So now I have to get iron supplements to take in addition to my prenatal vitamins. May explain why I have been so TIRED lately (I just thought that was normal with pregnancy).

Good times all around...it's all going to be fine...I just have a new more things to be careful about is all...and they're all normal pregnancy things that have nothing to do with the RSD. I'm primarily concerned about the gestational diabetes (which I may not even have) because I was hoping for a natural birth because there haven't been any reports of spread from that but there have been from C-sections. Oh well...I will deal with all that when it comes. That's why I'm seeing the specialist, right?

Hi Catra,
I'm glad you and your baby are doing okay.
I'm sorry about the anemia and the possible gestational diabetes but I'm sure you and your baby will be fine.
Just make sure that you and your little one get plenty of rest.
Take care.
Sincerely, Renee.

Catra,
Im sorry of how things are going on but be positive and try to relax for your well being and your sweat little girl.
The dr will for sure do the what they can to treat your pregnancy and rsd the best way possible and care, is hard when we have all the worse case scenarios at once but there is always a light.
Try not to worry so much, If the test is not showing good results ,keep in mind ,many pregnancy woman suffer from stationary diabetics and will go after the pregnancy ,hope is not the case but there is a way to treat it an for you and the baby be well.
A c-section will also be if need to happens supervise by the rsd specialist and your ob/gyn and they together will,provide with the best care to prevent spreading and pain control pain , remember also our part is to let the dr know we can't be on pain,insist and educate them if necessary but don't lose hope,keep,the faith,you both will be fine.
Having pain control after any surgery is essential ,make sure you have medications for pain,also,if you planning to breast feeding ,keep in mind ,many drugs can be harmful for the baby ,consider the possibility at the first weeks nit to do it if you need to be in pain meds which I'm sure you will need if a c- section is require , you might nit be in the case but I just mentioned to prevent pain,always prevent pain after the surgery.i know this is not the same as having a baby,but after I had my gallbladder surgery,I was thinking I will to need pain killers and only my tramadol will do the job,but no ,my dr and anesthesiologist took good care of me avoiding pain,and when a woke up,I was in the first time feeling pain for real and realized ,tramadol won't do anything ,I called the dr right away and asked him for something else which he did ,he gave me Tylenol 3 for two weeks and it was a bless, I didn't have pain at all,considering I had two surgeries one after the other,I had my scs repositioning on my abdomen and the gallbladder like a Month apart but preventing the pain was the best thing that I ever had,I feel occasional pain in my scars but is not like rsd spreading , my rsd was spreading a year early and my dr didn't took care,the dr who saw me didn't know rsd but listen to me and helped me ,talk to the dr and sure they will help you ,my frustration made me believe and felt like he didn't care but I was wrong,I was in pain and did nit see the dr good intentions to understand me and help me ,but he did and I'm so thankful .
Hope you get a good care,I know is not same comparing my gallbladder surgery with your beautiful pregnancy ,it was my way to tell you,pain after any surgery needs to be prevent . Both of you will be fine , please try to be calm,rest ,relax and focus your energy in be well and you will be.
Gentle hugs and lost of love ,Jesika .

My sister(she doesn't have RSD) had a c section with my nephew 8 1/2 years ago. Cord was wrapped around his neck. She was given Vicodin for the pain for a short period.

If you think as it is closer a c section is going to be done and maybe if not since sometimes like with my sister they have to decide to do one as an emergency. Maybe you can start the vitamin C pre surgery protocol if it is safe for the baby.

Hopefully the specialist will be good and helpful