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Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS) |
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#1 | |||
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Since the foot issue (rash) 3 weeks ago, my left hip has been burning to no avail. I feel like a piece of cattle being hit with a hot prode. (Poker) I am getting an MRI today. Has anyone else had this issue?
I got to tell you I'm taking every combo of medication I can to get relief, plus alcohol.
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. GOD help me be faithful in the midst of my suffering. Alt1268 |
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Hope you get better and nothing affected your body again,you need a break,good luck for jesik ![]() Ps yes t had the pain for a yer now after scs surgery on 2013. Kind of get me there since then.but again with scs not MRI ,mine can only be seem with X-ray or ultrasound,sciatic nerve damage according with my pm dr.
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"Thanks for this!" says: | alt1268 (05-30-2014) |
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#3 | ||
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Senior Member
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I have hip pains because I have osteopenia in my right hip. A bone density test from my ob/gyn confirmed this. I also had burning pain deep in my hip bones after getting an MRI to check for other problems with my hips. It lasted only one night after the MRI but was definitely there. I don't know if it's related to rsd, but I've had other MRI's on other parts of my body, like my abdomen, and never had this problem before. I hope that you find what is wrong and feel better soon.
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RSD ME . |
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#4 | |||
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Sorry you're not doing so well Alt. My hips give me grief when I try to lay on them. I have not had the hot poker effect yet. Perhaps the MRI will tell the docs and you what's going on. I hope you feel better quick!
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CRPS II Full Body via L5-S1 Discectomy Surgery in 2004 Symptoms started upon waking from surgery in right foot/leg, mirrored to left foot/leg and then EVERYWHERE else. Vision without action is a daydream. Action without vision is a nightmare. Japanese proverb, |
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#5 | ||
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Junior Member
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Hi, so so sorry for all your pain, it seems crazy level pain and I do related. I did have a flair in my hip after a diagnostic injection and it was brutal. I take very little meds and have level crazy pain, lol, all the time.
For the burning did you try topical lidocaine or a ketamine combo topical cream? These can lessen the burning if only a little, it may help. Cold wash cloth or will that send it through the roof?? Quote:
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"Thanks for this!" says: | eevo61 (05-31-2014) |
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#6 | |||
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I did not try cold because I know cold is a big no no with rsd. My dr. Does not believe in ketamine, so I haven't tried that either. But thanks for the suggestions.
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. GOD help me be faithful in the midst of my suffering. Alt1268 |
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"Thanks for this!" says: | eevo61 (05-31-2014) |
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#7 | |||
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Everyday I am having major pain I'm my hip and foot. Although my mysterious rash is gone. I have not been eating the best lately because of increased pain like a vicious circle. Pain-meds-bad eating-less exercise-less sleep. No wander I hurt ! Damn! I hate rsd!
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. GOD help me be faithful in the midst of my suffering. Alt1268 |
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"Thanks for this!" says: | eevo61 (05-31-2014) |
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#8 | |||
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Trust me ,adding tension to your aching body only makes your neurological pain to increase . try to avoid it just a little by little ,I know sounds easy,but I was in such of horrible flare ups,the worst ever for me that stress increased my pain. I was sweating very much,getting body temperature changes so quickly ,was hardly able to keep up with the time ,day and night seemed the same for a while,I hope you can find a distraction soon,do something you like,I'm lucky to be still able to use my hands even when I had flare ups,I do crochet,baby blankets,shoes,whatever helped me,I tried ,medications can only do so much,also my scs,but change on the attitude helps a little,blessings a hope the best,get better soon,ok? ![]()
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#9 | |||
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Got the MRI results hips are good. Back not so much. Fluid here and there, scoliosis, herniation, all different things. But I'm still confused how does this play in with my hips burning. Guess I have to wait until I get results from dr. ( yes I got my own results) pcp takes to long. If I waited for him I'd be dead.
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. GOD help me be faithful in the midst of my suffering. Alt1268 |
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"Thanks for this!" says: | eevo61 (06-06-2014) |
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#10 | ||
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Hi alt, so sorry you are going through a tough time. Hopefully the MRI will rule out any badness. Maybe you need some gentle physical therapy. Be careful self- medicating with alcohol, it causes many more problems than it ever solves. I don't recall your profile, but if you're over 50 perhaps a bone scan is in order to look for bonne loss in the hip. Just some thoughts. Wishing you wellness - Lottie
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1999 Chronic spine pain related to Degenerative Disc Disease, Sept 2001. C6 / C7 discectomy & fusion. Jan. 2005 L5/S1 discectomy and Artificial Disc Replacement. July 2011 removal of broken . Artificial Disc Replacement. Woke up in recovery room with RSD Monster.: . Aug 2011 Stabilization of spine at L3/L4/L5. October 2014 Rheumatoid Arthritis. |
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