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Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS) |
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06-14-2014, 02:48 AM | #1 | ||
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That other person didn't have RSD they had a trapped nerve, that's why surgery resolved it.
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"Thanks for this!" says: |
06-14-2014, 03:53 AM | #2 | ||
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Thanks vision. I appreciate what you're trying to do here!
Just as a cautionary note, the word cure is a hard, no nonsense kind of word. What you might have got to is a stage of remission with the disease, where your symptoms have gone, but you retain the potential to have symptoms return with a subsequent injury or illness. I'm not trying to be a misery here, but this stuff has been documented, and while I admire hugely your positive attitude (that's the best way to beat it!), I just think that this is a more likely state of play. Remission can last for years, and I hope yours sets records! Wishing you all the best matey, I know you are trying to help the folk here, and I really admire you for it Bram x
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CRPS started in left knee after op in Aug. 2011 Spread to entire left leg and foot, left arm, right foot. Coeliac since 2007. Patella femoral arthritis both knees. Keep smiling! . |
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06-14-2014, 06:49 AM | #3 | |||
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I could say I was in "remission" from death - does that make me any less alive? |
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"Thanks for this!" says: | billycalexander (09-20-2014), whatnow (04-01-2015) |
06-14-2014, 02:00 PM | #4 | |||
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I could say I was in "remission" from death - does that make me any less alive?[/QUOTE]
Point taken, but with all due respect for your extremely positive input here (it does offer up so much hope) HOW IN THE WORLD did you have time to do all of that? Was the "cure" gradual or did it happen suddenly after doing all those things for a time?
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RSD/CRPS and contracture of left hand and arm after surgery for broken wrist. |
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06-14-2014, 07:22 PM | #5 | |||
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I didn't do all of these things at once. The regimen constantly evolved. It's the reason I called the outline "Dynamic Adjustment." Since it's a summary off ALL the things I did, I couldn't see a way to quantify what I did when, for how long, and how they overlapped. I could, however, specify what I think was most important now based on hindsight. I was blessed by the fact that I had hundreds of sick days built up as a result of a 10+ year career at the same company. And a sympathetic boss. And a loving family that let me get as weird as I needed to be. I will say that I was absolutely 100% obsessed with healing and it consumed the majority of my waking thoughts. It still does. The most important "cure," ironically, did happen all at once. I woke up at 3:30am one morning to discover that my whole leg was "mine" again. The pain was completely gone and has never returned. Took a picture of it with the flash of my iPhone in the dark. I still had residual symptoms after that, but they were much less intense and resolved over the next 6 months. I'd be more than happy and honored to go into more detail on any specifics on the Why and When and Where and How versus just the What. Absolutely anything I can do to help. Last edited by Chemar; 06-15-2014 at 07:53 AM. Reason: corrected quote tags for clarity |
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"Thanks for this!" says: | Jimking (06-17-2014) |
06-14-2014, 07:40 PM | #6 | ||
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Just have to say...
No one can be 'in remission from death' lol, as no one has been dead and then not been dead! The point is that you had CRPS, but now your symptoms have resolved. My point is just that I believe 'cure' is a strong word. We are all searching for a cure, and your list, while very helpful and interesting, is the kind of list that any one of us with intense CRPS symptoms might try to follow and still not find the results you have... I'm not saying its not useful - it definitely is - but a cure is a treatment/s for a condition that works on anyone with that condition. I suppose I'm trying to say that there's a lot of desperate folk hoping for a cure.... Wishing us all a cure one day Bram.
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CRPS started in left knee after op in Aug. 2011 Spread to entire left leg and foot, left arm, right foot. Coeliac since 2007. Patella femoral arthritis both knees. Keep smiling! . |
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"Thanks for this!" says: | anon6715 (06-15-2014), fbodgrl (06-16-2014), KathyUK (11-27-2014), Nanc (06-14-2014), visioniosiv (06-15-2014) |
06-15-2014, 05:50 AM | #7 | ||
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When I was first diagnosed with rsd, I asked my pm dr if it was curable. He said yes. I was so happy to hear this! Then I went home and did some research on rsd to educate myself on it. I found nothing saying that rsd was curable. I only saw that it could go into remission. So I went back to my pm dr and asked why he said rsd was curable when everything I read said the contrary. He said that if someone has rsd and then goes into remission until they die, then it's the same thing as being cured. Needless to say, I don't see this pm dr anymore. I don't believe he was honest with me and I don't trust him because of this. If rsd goes into remission until I die, it does not mean it is cured. It means it went into remission until I died. To me there is a big difference and I just needed to express my point of view on this subject. I do appreciate you trying to help offer your point of view on this thread though vision. I know you're just trying to help. Thanks.
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RSD ME . |
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"Thanks for this!" says: | Nanc (06-15-2014), visioniosiv (11-26-2014) |
06-15-2014, 09:15 AM | #8 | |||
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Anyways Bram you know how much I respect you and all the light you bring to the people here A discourse on the nature of life and death isn't my intention. Your post is spot on by the way, and I intended to address it in responding to Renee's post above. |
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10-16-2014, 06:19 PM | #9 | ||
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o Conscious abdominal breathing during all physical activity.
Did you mean "normal breating"? |
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10-16-2014, 06:45 PM | #10 | ||
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Magnate
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