Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 06-23-2014, 01:47 AM #11
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Always remember ,time with family: priceless !!!! Keep I enjoying your exciting days and best wishes as always for Jesika .
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Old 06-23-2014, 02:37 PM #12
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Originally Posted by Lottie View Post
Thanks to everyone who replied. I appreciate your support. We've been traveling six days now and I only lost my composure once. Trying to negotiate 700 year old cobblestone streets in a wheelchair and the occassional walking with a cane is very challenging. Ramps are hard to find, handicapped signage is non-existent, but the Italian people have been warm and gracious, willing to pitch in to help.
Pacing my activities and controlling pain and fatigue is somedays ok, somedays not. ~lottie
Lottie, what parts of Italy are you visiting? I very much want to go to Italy. My Grandfather is from Santa Caterina in Calabria--southern Italy. A mountain village 2200 feet up, over looking the mediterranean. My wife has RSD and your experience may help us make the trip.

Places I'd like to visit is--(south to north) Greek temples in central Sicily, Santa Caterina. Tropea, pompeii and herculaneum, Rome-----oh hell, the whole country.

Have a great trip!!!
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Old 06-28-2014, 04:54 PM #13
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Lottie, what parts of Italy are you visiting? I very much want to go to Italy. My Grandfather is from Santa Caterina in Calabria--southern Italy. A mountain village 2200 feet up, over looking the mediterranean. My wife has RSD and your experience may help us make the trip.

Places I'd like to visit is--(south to north) Greek temples in central Sicily, Santa Caterina. Tropea, pompeii and herculaneum, Rome-----oh hell, the whole country.

Have a great trip!!!
Hi Jim King, thanks! We will be here a total of two weeks. Rome, Vatican, Florence, Assissi and Sorrento (near Vesuvius). If you want to PM me we can chat more on the particulars..Italy is a beautiful country and the italians have gone out of their way to be accomodating of my mobility challenges. Let me know if you would like some tips.
-lottie
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1999 Chronic spine pain related to Degenerative Disc
Disease,
Sept 2001. C6 / C7 discectomy & fusion.
Jan. 2005 L5/S1 discectomy and Artificial Disc Replacement.
July 2011 removal of broken
.
Artificial Disc Replacement.
Woke up in recovery room with RSD Monster.:
.

Aug 2011 Stabilization of spine at L3/L4/L5.
October 2014 Rheumatoid Arthritis.
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Old 06-29-2014, 10:29 AM #14
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Just keep enjoying the best time you can have and yes sometimes little thugs can be so big but just see it this way, not always you have a change to see so many places at once,keep enjoying the most you can,you'll see son you will telling us how exciting was and we all will like to do it as well,have some fun loiter ,you deserve it,gentle hugs from Jesika .
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Old 06-30-2014, 01:30 AM #15
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This very VERY inspiring!! I am soooo glad you went out and took a risk!!!

I know it might take longer to do things, and you might miss out on some other things, and when you get home it will be a time for recovery......But!

There is nothing that can take away that feeling of accomplishment!! You will have some cherished memories forever!! Plus.....the best part! It wont be as hard the next trip to where ever your heart leads you!!!

Ecstatic that you are living life on your terms!!
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Old 07-01-2014, 10:46 PM #16
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This very VERY inspiring!! I am soooo glad you went out and took a risk!!!

I know it might take longer to do things, and you might miss out on some other things, and when you get home it will be a time for recovery......But!

There is nothing that can take away that feeling of accomplishment!! You will have some cherished memories forever!! Plus.....the best part! It wont be as hard the next trip to where ever your heart leads you!!!

Ecstatic that you are living life on your terms!!
Thanks Allen for your really nice note! You inspire me too!

How are you doing? Haven't seen you online recently. Working on the video?

~Lottie
__________________
1999 Chronic spine pain related to Degenerative Disc
Disease,
Sept 2001. C6 / C7 discectomy & fusion.
Jan. 2005 L5/S1 discectomy and Artificial Disc Replacement.
July 2011 removal of broken
.
Artificial Disc Replacement.
Woke up in recovery room with RSD Monster.:
.

Aug 2011 Stabilization of spine at L3/L4/L5.
October 2014 Rheumatoid Arthritis.
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Old 07-01-2014, 10:52 PM #17
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Just keep enjoying the best time you can have and yes sometimes little thugs can be so big but just see it this way, not always you have a change to see so many places at once,keep enjoying the most you can,you'll see son you will telling us how exciting was and we all will like to do it as well,have some fun loiter ,you deserve it,gentle hugs from Jesika .
Thank you Jesika for all your support. It means a lot to me. I will post a "trip report" as soon as I get caught up with my rest. You guys are the best!
__________________
1999 Chronic spine pain related to Degenerative Disc
Disease,
Sept 2001. C6 / C7 discectomy & fusion.
Jan. 2005 L5/S1 discectomy and Artificial Disc Replacement.
July 2011 removal of broken
.
Artificial Disc Replacement.
Woke up in recovery room with RSD Monster.:
.

Aug 2011 Stabilization of spine at L3/L4/L5.
October 2014 Rheumatoid Arthritis.
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Old 07-02-2014, 09:11 PM #18
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Lottie ,take your time to relax and recover from all the fun moments you had, don't even worry we will waiting until you get ready, and hope you had such of fun than soon will take a new trip take us ,ok? Best wishes and lots of love from Jesika
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Old 07-03-2014, 10:28 AM #19
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I'm so glad you're enjoying your trip. I hope you continue to have a great time!
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