Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


advertisement
Reply
 
Thread Tools Display Modes
Old 06-21-2014, 12:56 AM #1
makingmusic makingmusic is offline
Newly Joined
 
Join Date: Jun 2014
Posts: 1
10 yr Member
makingmusic makingmusic is offline
Newly Joined
 
Join Date: Jun 2014
Posts: 1
10 yr Member
Default What Should I Do?

I am looking for a little advice, and help...

I am 27 and my doctor just diagnosed me with CRPS.

3 month ago I fractured a bone in my foot and sprained my ankle. It never really healed right. The doctor said by looking at my x-rays the bone had healed, just mention signs osteoporosis. Still in pain and not able to walk I ask to seen by a different doctor.

They gave me a more experienced doctor. He told me I have CRPS. My foot and ankle gets very red and spotty. Also it swells up in pain after I hobble on it for more than 4 hours. It is sensitive to touch, tingly, and colder than my other foot. Sometime I want to take my sock off. I am still on crutches. Also these symptoms I had before ever knowing about CRPS, so I know they aren't in my head. After speaking with the doctor, I started to notice sweatiness.

I know part of the reason it is hard to walk is because my ankle is weak. But after it starts swelling up, gets red, and it starts hurting... I never saw the point of pressing onward with walking. I just use the crutches until it goes away.

When on crutches, I am in very minimal pain. I feel like I near 100%.

Walking just gets me.

What do think is best to do for easy stages of CRPS?

Any advice on good ways to find a physical therapist? I am willing to drive or fly somewhere.
makingmusic is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
eevo61 (06-23-2014)

advertisement
Old 06-23-2014, 02:14 AM #2
eevo61's Avatar
eevo61 eevo61 is offline
Member
 
Join Date: Aug 2013
Location: California
Posts: 389
10 yr Member
eevo61 eevo61 is offline
Member
eevo61's Avatar
 
Join Date: Aug 2013
Location: California
Posts: 389
10 yr Member
Default

Quote:
Originally Posted by makingmusic View Post
I am looking for a little advice, and help...

I am 27 and my doctor just diagnosed me with CRPS.

3 month ago I fractured a bone in my foot and sprained my ankle. It never really healed right. The doctor said by looking at my x-rays the bone had healed, just mention signs osteoporosis. Still in pain and not able to walk I ask to seen by a different doctor.

They gave me a more experienced doctor. He told me I have CRPS. My foot and ankle gets very red and spotty. Also it swells up in pain after I hobble on it for more than 4 hours. It is sensitive to touch, tingly, and colder than my other foot. Sometime I want to take my sock off. I am still on crutches. Also these symptoms I had before ever knowing about CRPS, so I know they aren't in my head. After speaking with the doctor, I started to notice sweatiness.

I know part of the reason it is hard to walk is because my ankle is weak. But after it starts swelling up, gets red, and it starts hurting... I never saw the point of pressing onward with walking. I just use the crutches until it goes away.

When on crutches, I am in very minimal pain. I feel like I near 100%.

Walking just gets me.

What do think is best to do for easy stages of CRPS?

Any advice on good ways to find a physical therapist? I am willing to drive or fly somewhere.
Welcome makingmusic!!
I only can tell you the most important thing to do now is find a good pain management dr, he will decide the treatment to follow,can be a combination of medications,psychical therapy, acupuncture , ketamine infusions,lumbar blocks,spinal cord stimulator, tens units, so many good treatments your body will tell you what works better but you need that dr who will do that and works with you.
You can't tell how rsd/'crps changes or evolve,we had not control, but avoiding stress to flares your body will be beneficial , relax and rest.
Good luck and hope your rsd get control in some way soon gentle hugs from Jesika .
__________________

.
eevo61 is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
AZ-Di (06-24-2014)
Old 06-23-2014, 02:17 PM #3
AZ-Di's Avatar
AZ-Di AZ-Di is offline
Member
 
Join Date: Mar 2013
Location: Arizona
Posts: 453
10 yr Member
AZ-Di AZ-Di is offline
Member
AZ-Di's Avatar
 
Join Date: Mar 2013
Location: Arizona
Posts: 453
10 yr Member
Default

I would agree with what eevo said too.
Just to add, it's important to start treatment with pain mgt. Dr. & physical
therapy ASAP! The sooner treatment is started the better results
you'll have. Take their advice & for me I tried all less invasive treatments
first. To date there is no cure, but remission is possible. From
what I understand it's more likely in younger patients.
Unfortunately there's no "one size fits all" treatment. Read & educate yourself!
Good sites: RSDSA and RSDHope.org.
BE SURE TO FIND A DR. WHO REALLY KNOWS ABOUT RSD/CRPS.
Don't know what area you're in, if you post that you may get some Dr.
names.
__________________
RSD/CRPS and contracture of left hand and arm after surgery for broken wrist.
AZ-Di is offline   Reply With QuoteReply With Quote
Reply


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off



All times are GMT -5. The time now is 10:52 PM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.