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Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS) |
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Junior Member
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My last appointment with my PM doc was nearly two months ago, my next one is coming up Monday morning. At my last appointment we set me up for a SGB (a useless waste of time, money, and neck-stabbing uncomfortableness) and PT. I'm probably about halfway through the amount of PT appointments my insurance will pay for, and I can't be entirely sure it's helping but it doesn't seem to be hurting so I keep going.
Anyway, at that last appointment the doctor told me that on top of everything else he thinks I also have bursitis in my left shoulder. My CRPS is in my left side only, from my lower back all the way down through my whole leg and foot and in my entire arm and hand, up through my shoulder, neck, face and head. He told me that he recommends a cortisone injection because of the amount and type of pain I'm having in my shoulder. (As if I wouldn't already be in pain anyway derp derp doc.) I declined at the time, although he was happy to do it right then. Here's the thing. I'm A: scared to death of needles. (I had to be sedated for my block or I would have had a panic attack.) I can barely tolerate having my blood drawn or an IV. And B: it just seemed at the time to be counter-intuitive to let someone stab me in my CRPS arm. I don't let people put IVs in that arm, take my blood pressure, etc. I don't even let my husband touch me. But the doc wants to freaking STAB ME IN MY JOINT?! ![]() I can't afford mistakes either. I have, somehow, managed to start my own business (sewing, sort of) this year. Which is a miracle. And while I have slowly been losing a lot of the strength and fine motor function in my left hand, I can do okay without that. But if I lost any of the gross movement of my arm, I'd be hosed.
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"...it needs to be about 20% cooler." Celiac DX Dec 2012; over 30 years symptoms to DX CRPS DX March 2014; 5 years, 1 month from first symptom to DX |
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