Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 07-11-2014, 08:05 AM #21
Burnbabyburn Burnbabyburn is offline
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Join Date: May 2014
Posts: 78
10 yr Member
Burnbabyburn Burnbabyburn is offline
Junior Member
 
Join Date: May 2014
Posts: 78
10 yr Member
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Thanks so much Jessika

I am at work so I can't respond more than THANK YOU right now. You are so sweet to offer support and advice.

Quote:
Originally Posted by eevo61 View Post
I had around 7-8 block and was always got first through pre op, wondering why they are changing their mind?
Confusing for sure, my first block was ok ,little pain after but I was working he next day and few days later I ended having muscle spams , after that my PCP rode a three days off to let my body rest and medication to work as it's supposed to but never lasted enough time ,the effect. At the end I got my scs, what I recently found out is hat while I was getting my scs ,my left side leg was already rsd active and dr and even I missed ,I thought I was pushing my leg to much do to my right side been so affected that all my weight was on my left leg, but I have hell of a ride after the scs implant, until this past January it was repositioned to my abdomen , a month later got a second surgery ,gallbladder removal,due to stones and limb nodes, but I was very well care by my GI dr and the anesthetist who both new rsd,not crps, but rsd,mention both terms make a difference in my care, they where so careful before and after the surgery ,so my abdomen have quite few scars,I don't mind,but I'm ok,safe and sound, no extra trauma,neither pain at all from any of those procedures and why is that? Dr where educated about rsd/crps ,both teams where the difference , if they are changing your treatment means either they don't know for sure or don't care enough, you don't need any of that bs, you need to be and feel safe,change dr if something don't feels quite right to you, your body know how much pain you already endure ,don't let them add more.
That's why I switched dr ,pm dr after few months, recalling conversations are not their specialty,really,they suddenly got memory loss,so why are the files for , the records they review in each appointment, just to get their offices full,of trash, really, no, if you don't get what you need to avoid rsd spreading you are done there. I even heard an story about a lady getting rsd while a blood drawn and one after having a surgery and having taking her blood pressure, rsd can be trigger in many ways, why take the risk .
I had successful surgeries with not rsd spreading because the dr where prepare and educate enough, be mean than, print out rsd eraser meh and give those to your dr and anesthetist,maybe they need few lessons don't feel shy, teach them !!!!
Ignorance won't make us feel worse ,we don't deserve more pain, fight them with education and if they are still in denial changing the plans ,move and don't take chances, is something you can't risk ,you have enough , we can only manage so much,don't allow anyone to hurt you, leave and go a place where you can have real references from patients ,get the dr numbers ,stop by their offices and sit there ,ask patients how the dr are,is way to make sure they are for real caring people.
I hope you find he best treatment you deserve and need and guess what, bs who thinks that is not right !!!!
So my advise, be more aggressive and demand if they don't listen,remember you can leave and complaint to medical board ,they are dr and anesthetist with public records and a complaint is something that hurts the credibility and also how professional they are , you can hurt them more when a board of medicine investigate them,each state records are public, go the dr board of medicine and complaint about the way they had treat you and leave,you don't need to get rsd everywhere for a negligent dr and anesthesiologist , you deserve right.
Good luck and hope everything get resolve in the best way for you ,no adding and getting afraid to get more harm,with love and blessings Jesika .
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"Thanks for this!" says:
birchlake (07-12-2014), eevo61 (07-11-2014)

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