Hi everyone. I just wanted to let you know that I was thinking of you and that I hope you're all doing okay. Bram, Tessa, Vrae, Nanc, AzDi, Kim, Tos, Jesika, Visoionv, Kevscar, Allinira, Fbdgrl, Llynnyia, Lottie, Slorian, Catra, Allentgamer and everyone else, I hope you are all doing okay. I miss you all and hope to hear from you someday again. With love and hugs, your friend, Renee.

Hi Renee. In my case not too bad, I was able to sleep finally yesterday and I'm awake now, obviously , normally i woke up around 12-1 pm due to my painsomnia but my dr ,who was so kind and saw me on Thursday ,suggested me to be one day on sleeping pill node day off so my sleeping pattern can comeback normally, so might not be able to sleep normal one day, let my body get exhausted, woke up at 8 am at least and got to bed 10 pm daily even if I can't sleep get up same time and will get my body used to, so worked ,I'm happy for that ,other thinks ,well still bad but I'm faithful and positive that changes will happen, hope soon , I'm almost in the group of the collection category for manny un pay bills, I'm trying my best but my benefits from wc got cut more and in a moth I get what I used to make I a week and a half, if was a good salary before ,now I'm more desperate for using more coupons and coupons to buy everything we need , but I'm sure the one upstairs will provide , I have faith . Hope you are doing better , I know is been real rough for you but keep the faith, hope will be always in our minds , with all my love and many hugs to you my sister ,Jesika .

Hi Renee! Thanks for the shout - out! The boards have been unusually quite lately. I'm hoping people are enjoying the summer time and that everyone is OK. Still recovering from my big trip, hoping to post some details soon!
Lottie

Lottie ,I was forgetting many things that I forgot to ask how was it? Did you have a lots fun,I'm afraid to travel far to to an nerve pain I had in my buttocks and leg still had not dr assigned to see what's the problem ,well my scs battery was there before and sure the problem is nerve damage but not official yet, but I can't stay sit for long periods, how was the timing on the plain and airport ,I remember you were little nervous about that ,I want to learn so I can have a break maybe few months from now, I need a break for sure, let us know more after you rest enough ok.? And thanks with love Jesika .

Things with me have been pretty crazy. I got a partially favorable closed decision on my SSDI. I have been struggling with that and to be honest down right ****** off about it. My long term disability is going to cut me off September 28 because I didn't get fully favorable and there s no way I will get that by their cut off. I met with a new attorney that is independent from the company that the LTD had representing me. I'm feeling better about what to do next.

Hope all is good with you :-)

Hey Shelly, I'm so sorry you're having such a tough time with your SSDI. IMO, if you are unable to work because of your rsd, they should give you a fully favorable decision. They obviously don't understand what rsd is. I am glad you have gotten a new attorney. I found it helpful to find one who specializes in SSDI and if they know what rsd is that's even better. I hope he can help you. There is so much info about rsd and ssdi. Check out rsd hope online for more info. Maybe print it out and give your lawyer a pamphlet they have explaining rsd so he has as much info as possible on this monster disease. Don't give up. You have a disablitity that SSDI recognizes so keep trying until you get results! Take care my friend. From your friend, Renee.

SHELLY, Renee is right! SSDI does recognize CRPS as a disability. Do not give up! Find good people who will help you! Good luck, Lottie

Thanks Renee and Lottie!

After meeting with the new attorney I feel much better. I am going to accept the partially favorable closed decision and file a new claim starting after the closed date the ALJ used. Everyone agrees there were a lot of strange and some legally incorrect things done, but the chances of losing at Appeals council are too great and will take probably another year and a half to get through. It is better to start the new claim. Hope it doesn't get denied and if it does I have better representation now. He gave me a lot of ideas on what my doctors need to be documenting, etc. My Rheumatologist has me sending him a letter ( that he won't be putting with my records) documenting a lot of symptoms, side effects of my medications, what I can and can't do, etc. So he can better document his records, forms and letters for SSDI. I've also discussed with my pain management doctor what he needs to document better. He as a habit of concentrating on only the RSD in the left arm and not documenting other things like the tendinitis in my right arm, trigger finger on that hand and the fact I can't do repetitive tasks with that arm because of those things. Along with other problems.

Shelly ,
Something you mentioned is so right , many dr just focus on an specific conditions ,rsd in our cases and left out so many other medical issues and when those records are needed ,they never wrote a single word,happened to me with my wc case, they focused in my foot and ankle and mentioned rsd but not like part of my condition developed due to my injury and everything from there gets all mess up. Don't let them get away it ,keep,a journal in every single appointed you had and from there documented everything you discuss with the drs, might help is some way.
I hope your case soon can be fixed and properly represented , rsd and wc or SSDI are so hard to handle and with dr making mistakes ,we pay the price and is too high !!!.
Best wishes and hope everything gets a better turns soon, with love Jesika .