Wow heres a day in the life with RSD that hits home so much for me. one to show the significant others opened my eyes as I saw me in her..

http://www.mypainreliefdoc.com/a-typ...ay-in-pain.htm

WOW

Thanks for posting that -- I added it to my on-line bookmarks so others can find it.

I like to help people do research on these boards -- especially the new parents with sick babies.

I always think that what helps the most are the "My Story' websites.

Nobody really understands until they can hear it in the words of someone who actually lives with it.

I don't have RSD. I was diagnosed with Fibromyalgia 17 years ago. Way back near the beginning when they first started diagnosing fibro and chronic fatigue syndrome -- it was like "oh, yeah, something wrong with her head" -- no one believed that the diseases even existed.

I believe all of these diseases are related. I believe they're caused by a poisened environment. We're the parakeets in the mineshaft.

Thank you for sharing. You're helping other people to learn and you're also helping other people in pain to be understood. Hugs

Barb

Thank you for this post,so many from different forums can relate.
Barb said it all as well,thanks to Barb as well. It sure said what
I feel somedays,maybe to many. to all of us, Sue PN

HI Sandel, I hope I'm doing this right. That is one of the best things I have read on pain. It captured most of what I go through on a daily bases. Thank You

moose53, I to have Fibro. For the most part the doctors act as though they don't believe in Fibro. Sometimes I feel like a stupid fool.

Post over at Fibromyaliga forum ,you see your not silly or foolish. But
many times Drs. can be. They know what your going through and i'm
Moose and the others will be of big help. Tell how you feel. Sue PN

I cried reading this thinking I could of written it.
With the added grief I have, I just feel a mess to my fa,ily as I go through the motions to look and act normal. But, inside I screaming a heart hurting nightmare.

I feel like everyone else has pain and problems they donlt live like this. they keep their home spiffy and not have clutter and two months of dust. Why can;pt I have strength, why am I so tored, why does just exsisting take so much energy.

But no one see the hidden pain. I don;t want them too.
Thanks for posting this.
dianne

Hi Moose53,
I've been diagnosed with fibro also by 3 neurologists & a rheumatologist (in addition to the RSD, although, I've seen many, many more docs for the RSD. I'm not running around to doctors for the fun of it, just trying to get some help.)
The fibro diagnosis has just come up in the last year or so for me so I don't know where it came from but wonder if the pain in my back that I've had forever is fibro? I don't know where the RSD ends & the fibro starts or vice-versa as far as the pain goes some days. They're both awful. Does your fibro pain ever feel like muscle spasms that just won't quit?
Sorry, that you had to be one of the early people with fibro. I know how some people can say that the pain is in your head. It must have been harder for you then, when less was known about it.
Linmarie

Hi Sandel,
Thanks for the link. It sounds so much like me.
When I got to the bottom, I noticed the name - Tim Sams. I've seen him, he's a pain psychologist. He was writing a book on pain. It should be out by now, I don't remember the name of it.
Linmarie

Hi Linmarie,

That was his website you were just looking at:
"Dr. Vernon Williams, M.D. and Dr. Timothy Sams, Ph.D. have developed the multidisciplinary pain treatment center at MyPainReliefDoc.com."

It's got stuff about his book there too,
all the best