[debbiehub]

I just don't understand why RSD is considered a RARE Mysterious disease. I live on Long Island NY and personally know 4 RSDers within 2 miles of my house. I have heard and read that about 1/2-1 million people have RSD. I just also heard that only about 30,000 people in the US have Huntingtons Chorea which is much more well known. Why isn't the word getting out there. There is a big fund raiser in Central Park (Manhatten) and there were only about 125 people there supporting RSD last year.

Any thoughts- this is driving me nuts!